Find a Doctor
If you are looking for a doctor then this is the best place to start.
PLEASE NOTE:
Nationally and/or internationally recognized carcinoid/NET specialists are indicated by light blue shading in the physician's listing.
How do we define a carcinoid/NET specialist?
- 10-20 years or more experience in treating carcinoid/NET patients
- Authored or coauthored more than 10 peer review articles on carcinoid/NETs
- Treating 100+ carcinoid/NET patients over time
Carcinoid/NET Friendly Physicians
It is very difficult for many carcinoid/NETs patients to find a local physician to meet their medical needs on an ongoing basis. In addition to specialists there are doctors from a variety of medical fields that have been identified as:
- Having an interest in diagnosing and treating carcinoid and neuroendocrine tumor patients
- Willing to consult with national and international carcinoid/NETs specialists
- Recommended by patients who use them locally and trust the (patients' comments are often included for these doctors)
Disclaimer:
You should be aware that not all the doctors listed here have the same treatment approach. You must make your own inquiries as to whether a particular doctor's approach complements how you want to treat your condition. In that regard, talking to your family doctor, and other carcinoid patients, whether at a local support group or in one of the online groups may help you make your decision.
Support groups are also an excellent source for information about local doctors who have gained experience in treating carcinoid/NETs.
No endorsement by the Foundation is intended of any of the doctors on this list, nor should an endorsement be inferred or implied.
Doctor Directory
United States
Arizona

Scottsdale, AZ 85258
Newsworthy: Top Cancer Surgeon Joins Scottsdale Healthcare
http://www.evliving.com/2009/04/09/cancer-surgeon-scottsdale-healthcare/

Scottsdale, AZ 85259
Dr. Halfdanarson is very involved in NET research, both clinical trials and epidemiological studies. His clinical interests include neuroendocrine malignancies, carcinoid tumors and pancreatic endocrine (islet cell) tumors, as well as other endocrine malignancies.

Scottsdale, AZ 85258
Dr. Ramanathan specializes in new drug development and phase 1 clinical trials for patients with advanced carcinoid and neuroendocrine tumors.

Phoenix, AZ 85006
California

San Francisco, CA 94115
Dr. Bergsland specializes in clinical trials.

Santa Monica, CA 90403
Publications http://www.corigroup.org/Bilchik%20CV%2012-4-09.pdf
Curriculum Vitae http://www.corigroup.org/Bilchik%20CV%2012-4-09.pdf

Voted Best Doctor 2009-2010

Santa Monica, CA 90404
Dr. Hecht is an internationally known clinical and translational researcher in the field of gastrointestinal cancers. He has published widely on the molecular biology, early detection, and treatment of gastrointestinal malignancies. He has both clinical and research interests in the treatment of neuroendocrine tumors of the GI tract and works closely with UCLA surgeons, interventional radiologists, gastroenterologists, and endocrinologists as part of a multi-disciplinary group. He was the UCLA Principal Investigator (PI) for 4 NET trials (All 3 RADIANT trials and one IMC-A12) and has been the UCLA PI for more than 30 trials and overall PI for 14 multicenter (both US only and international) phase II and phase III trials.

Los Angeles, CA 90095
Specialist in Yttrium 90 treatment for liver metastases, radiofrequency ablation, cryoablation, chemoembolization, diagnostic imaging and response.
NOTE: Dr. Liu also has a practice in Canada.

San Francisco, CA 94143-1932

Stanford, CA 94305-5641
Stanford Cancer Center http://cancer.stanford.edu

Sacramento, CA 95817
Works with Dr. Richard Warner, NYC

Los Angeles, CA 90048
Dr. Wolin directs a large patient care and clinical research program, including a Multidisciplinary Weekly Carcinoid/Neuroendocrine Tumor Patient Management Conference. The renowned research program of Dr. Wolin is discovering treatments which are more effective and less toxic, including new somatostatin analogues, mTOR inhibitors, other types of biologic therapy. Cedars-Sinai has become a PRRT Center in the US, using 177Lu-DOTA0-Tyr3-Octreotate (Lutathera®) in the NETTER-1/AAA-III-01 study for carcinoid patients.
Colorado

Denver, CO 80218
Recruiting contact: Allen.Cohen@USOncology.com
Comments: "He is outstanding and works with the guys in LA all the time." KH, Colorado

Aurora, CO 80012
Comments: "In September 2006, Dr. Nick DiBella gave me my 25 year survival pin for having carcinoid with liver metastases for 25 years. Perhaps I can give hope to other carcinoid patients by telling my story." Marilyn Thurston, Pueblo, CO

Fort Collins, CO 80524
Comments: "After reading (on the carcinoid ACOR list) some of the horror stories about clueless medical staff I've gained an even greater appreciation of Dr. Medgyesy's professional skills. She isn't a carcinoid specialist per se, but knew of the disease." Woody Hesselbarth

Englewood, CO 80112
Areas of interest: Chemoembolization, Radiofrequency Ablation, Theraspheres, Sirspheres
Connecticut

New Haven, CT 06520-8062

Guilford, CT 06437
Comments: Works with Dr. Richard Warner, NYC
Florida
Fort Lauderdale, FL 33308
Comments: Dr. Faig is caring for patients originally seen by Dr. Richard Waner, NYC, for consults and continues to communicate with Dr. Warner regarding specific problems.

Miami, FL 33199
Comments: Dr. Gulec is board certified in both surgery and nuclear medicine. Dr. Gulec's clinical area of interest is surgery of endocrine/neuroendocrine tumors. He collaborates with Dr. Richard Warner, NYC.

Tampa, FL 33612-9416
Will only accept histologically diagnosed carcinoids

Tampa, FL 33612-9416
Comments: Part of Dr. Larry Kvols' neuroendocrine tumor team
Research Interests: Phase 2 trials in neuroendocrine cancers, specifically carcinoid and pancreatic endocrine tumors focusing on biologic targeted therapy
Clinical Interests: Neuroendocrine malignancies, specifically carcinoid tumors and pancreatic endocrine (islet cell) tumors
Georgia
Atlanta, GA 30342
Comments: "Dr. Dubovsky is currently the President of Atlanta Cancer Care and holds positions at St. Joseph's Hospital as Chairman of the Institutional Review Board and Director of the Cancer Data Center. I have been under Dr. Dubovsky's care since March 2004. He is very knowledgeable about carcinoid tumors and seems willing to work with specialists, namely Dr. Larry Kvols in Tampa, FL." Patricia Howard

Newnan, GA 30263
Illinois

Chicago, IL 60611
Comments: Will only accept histologicall diagnosed carcinoid patients.
This doctor prefers to see new patients after discussing their care with their current physician. Please have your physician contact the Northwestern Memorial Physician Access Line (PAL) at 800-638-3737.

Evanston, IL 60201
For interventional radiology only. Dr. Farrell's practice with oncology patients includes performing bland embolization and yttrium radioembolization on NET cancer patients.

Chicago, IL 60611
Comments: "Re: SirSpheres/Theraspheres procedures. After much research, Dr. Salem appears to be one of the most experienced interventional radiologists in the nation with this procedure and from his writings has had excellent results." DF
Dr. Salem's assistant is Patricia Jackson, 312-695-5753.
Indiana

Indianapolis, IN 46202

Indianapolis, IN 46202
Comments: Works with Dr. Richard Warner, NYC
Iowa

Iowa City, IA 52242

Iowa City, IA 52242-1009

Iowa City, IA 52242
Clinical trials participation: 319-335-9580
Kentucky

Lexington, KY 40536-0093
Clinic appts: 866-340-4488
Louisiana

Kenner, LA 70065

Kenner, LA 70065

Kenner, LA 70065
Cell phone: 504-884-3555
Home phone: 504-468-8426

Kenner, LA 70065
Click here for more information.
Maryland

Baltimore, MD 21287-4667
Appointment phone: 410-933-1233
Research interests include clinical trials in hepatobiliary, neureoendocrine, pancreatic, and colorectal malignancies

Baltimore, MD 21287

Bethesda, MD 20892-1802
Research Statement: The Genetics and Endocrinology Section studies the genetic bases of primary hyperparathyroidism and its relations to other neoplastic disorders. We have cloned the gene for multiple endocrine neoplasia type 1 and found that it is implicated in many non-hereditary tumors. This tumor suppressor gene encodes a novel protein, menin. We are studying the actions of menin protein by yeast two-hybrid, micro-array, knockout, and other approaches. We have identified an important interaction of menin with junD, a nuclear transcription factor.

Bethesda, MD 20892-1109
Dr. Pacak is an international expert on pheochromocytoma/paraganglioma and has put together this research protocol at the NIH. He is currently working as the Chief of Section on Medical Neuroendocrinology, NICHD.
Massachusetts

Boston, MA 02115
Comments: We have established a robust clinical and translational research program at Dana-Farber Cancer Institute, focused on neuroendocrine tumors. As part of our clinical research program, we evaluate over 200 neuroendocrine tumor patients annually and have studied numerous novel therapies for neuroendocrine tumor patients.

Boston, MA 02445
Dr. Saif is an internationally known clinical and translational researcher in the field of gastrointestinal cancers. He has published widely on the molecular biology, early detection, and treatment of gastrointestinal malignancies. He has both clinical and research interests in the treatment of GI cancers (liver, pancreas, biliary, colon, rectum, carcinoid, GIST, stomach, esophagus, anal) and works closely with Tufts surgeons, interventional radiologists, gastroenterologists, and endocrinologists as part of a multi-disciplinary group. In addition, he specializes in new drug development and phase 1 clinical trials for patients with advanced carcinoid and other GI tumors.

Burlington, MA 01805
View a list of Dr. Stuart's ongoing clinical trials.
Minnesota

Rochester, MN 55905-0001
Interests include carcinoid and heart disease and pregnancy and heart disease.
Mayo Clinic website: http://www.mayoclinic.org/

Minneapolis, MN 55455

Rochester, MN 55905

Rochester, MN 55905

Rochester, MN 55905

Rochester, MN 55905
Dr. Rubin's research interest is in gastrointestinal tumors with a particular interest in neuroendocrine cancers (carcinoid and islet cell tumors). He has worked with Intervention Radiology in evolving techniques for clinical care. In addition, there is collaborative work with the Oncology Laboratory to look for new treatments based on molecular/genetic properties of these tumors. His laboratory has worked nationally with pharmaceutical companies in development of new treatments for these patients. In addition to GI tumors, Dr. Rubin has been involved with most of the gene therapy trials at Mayo and continues to have an interest in developing new programs of treatment. He has been involved in Mayo's phase I drug development program for many years.

Minneapolis, MN 55407
New Hampshire

Littleton, NH 03561
New Jersey
Englewood, NJ 07631

Red Bank, NJ 07701
New Mexico
Albuquerque, NM 87131
New York

New York, NY 10021

New York, NY 10003
Clinically, Dr. Brower's expertise focuses on various forms of cancer, including carcinoid tumors, hepato-cellular carcinoma, and liver and pancreatic diseases. In addition, he leads major investigational initiatives in proteonomics, genomics, gastrointestinal cancers and clinical pathology research.
Great Neck, NY 11021

Buffalo, NY 14263

New York, NY 10021

New York, NY 10029

Buffalo, NY
Comments: Clinical research interests include laparoscopic liver resection, radiofrequency ablation (RFA) of liver tumors, and multidisciplinary treatment of neuroendocrine (carcinoid) tumors.

Bronx, NY 10467
Dr. Libutti’s clinical practice is focused on the surgical management of patients with cancer and endocrine neoplasms. Dr. Libutti’s research, which began at the National Cancer Institute (NCI), focuses on the formation of new blood vessels, which nourish tumors, as well as the interaction between tumor cells, endothelial cells, and components of the tumor microenvironment that influence tumor growth, invasion and spread.
Port Washington, NY 11050

New York, NY 10128
D. Mechanick's clinical interests include thyroid disorders, osteoporosis, nutrition, parathyroid disease, neuroendocrinology, and endocrinology. He currently serves on the Board of Directors of the American Association of Clinical Endocrinologists (AACE), where he is President-Elect, and is a member of the President's Council on Fitness, Sports, and Nutrition - Science Board.

New York, NY 10028

New York, NY 10029
Dr. Warner is known internationally as an expert in carcinoid and related neuroendocrine tumors (NETs). Having been a pioneer in this field for half a century, he has vast experience in clinical practice and research in the diagnosis and management of these tumors and their syndromes. He has written scores of papers, reviews, and textbook chapters and conducts a very active consultative practice for all carcinoids/NETs. As a long-time voluntary faculty member he has been very involved in both teaching house staff and faculty colleagues as well as in clinical research. His continuing carcinoid/NETs research project is the longest continuously IRB-approved project in the history of Mount Sinai School of Medicine – 50 years to the present. Dr. Warner is currently a Clinical Professor of Medicine (Gastroenterology) at Mount Sinai and will continue all these activities in his new full-time position as Professor of Medicine (Gastroenterology).

New York, NY 10128
Dr. Zacks has extensive experience caring for patients with carcinoid heart disease. He is the founder of the Carcinoid Heart Center, located in New York City.
North Carolina

Cary, NC 27511

Durham, NC 27710
Ohio
Columbus, OH 43210
Dr. Bloomston's clinical interests focus on the management of cancers of the liver, biliary tree, and pancreas as well as neuroendocrine cancers. Research in these areas include clinical trials, outcomes analysis, and molecular correlative studies. Basic science research deals with the role of microRNAs in pancreatic cancer.

Columbus, OH 43210-1280
Comments: Dr. Goldberg’s assistant is Regina Robinson-Easter, 614-366-6355, regina.robinson-easter@osumc.edu
Clinical Interests: Colorectal and other GI cancers, carcinoid and GI tract neuroendocrine tumors, new drug development, inherited predisposition to GI cancers
Research Interests: Dr. Goldberg’s research focuses on four areas: 1) clinical studies in patients with GI cancers (principally colorectal cancer); 2) translational studies done on biologic specimens from patients with cancer done with laboratory collaborators; 3) development of new cancer drugs and drug combinations; and, 4) clinical trials methodology.

Toledo, OH 43623

Columbus, OH 43210

Cleveland, OH 44195

Cleveland, OH 44195
Oregon

Portland, OR 97239
Dr. Pommier comments on carcinoid crisis and surgery. Click here to read more.
Pennsylvania

Philadelphia, PA 19104

Hershey, PA 17033

Philadelphia, PA 19104

Philadelphia, PA 19104

Philadelphia, PA 19104

Hershey, PA 17033
Philadelphia, PA 19104
The Penn Neuroendocrine Tumor Treatment Program in Philadelphia is an interdisciplinary program centered on the diagnosis, staging and treatment of gastroenteropancreatic neuroendocrine tumors (GEP-NETs) and paragangliomas/pheochromocytomas (PHEOs). By treating both GEP-NETS and PHEOs, Penn has established itself as one of the only sites in the country with a unified program for both neuroendocrine tumor subtypes. Click here to learn more about the program and the physicians who treat NET cancer patients.
Tennessee

Nashville, TN
Dr. Liu is Director of the Vanderbilt Neuroendocrine Center and Director of Surgical Services. He was recruited to Vanderbilt in 2009 to develop the Neuroendocrine Center, after studying with renowned neuroendocrine surgeon Kjell Oberg, MD, PhD, in Sweden, who was perfecting the use of radioactive imaging tracers that offered patients new treatment options. Dr. Liu's clinical interests include all aspects of surgical oncology and endocrine surgery with an emphasis on the treatment of neuroendocrine and carcinoid tumors, gastrointestinal, and endocrine diseases He actively engages in research, developing new biomarkers and imaging techniques for better diagnosis of neuroendocrine tumors.
Texas
Houston, TX 77030

Houston, TX 77042
Principle Investigator of FDA authorized Investigational New Drug (IND):
1. High activity In-11 Octreotide PRRT
2. Lu-177 Octreotate PRRT
3. Ga-68 Octreotate PET/CT
4. Multicenter trial of Lu-177 Octreotate therapy for midgut carcinoid sponsored by Advanced Accelerator Application (AAA).
Dr. Delpassand's extensive experience includes the disciplines of therapeutic nuclear medicine, Peptide Receptor Radionuclide Therapy (PRRT), monoclonal antibody imaging and positron emission tomograpy (PET).

Houston, TX 77030
Comments: by Dr. Yao
We are leading the development of RAD001 trials. We have completed accrual to the MDA single institution trial. There are three large multi-institution Novartis sponsored trials.
1. Phase II study in islet cell carcinoma after chemotherapy (either progression while on chemo or progression anytime after completion of 3 courses of chemo). This study is open.
2. Phase III study in carcinoid to open probably in January
3. Phase III study in islet cell (prior chemo not required) to open later in 2007
We have sent patient (sic) to Rotterdam for LU177 octreotate before as well.
Patient needs to be seen for screening to make sure that they are eligible. There are a number of tests required by the Rotterdam group for the referral process. Dr.Yao's specialty is in clinical trials.
Virginia
Virginia Beach, VA 23464

Norfolk, VA 23502
Fredericksburg, VA 22408
Fredericksburg, VA 22401

Norfolk, VA 23510
Washington
Seattle, WA 98112
Wisconsin

Madison, WI 53792
Dr Chen and his research laboratory staff investigate the development, progression, and treatment of endocrine tumors including gastrointestinal carcinoids, thyroid cancer, adrenal cancer, and pancreatic islet cell tumors.
They focusing on the role of cellular signaling pathways in the differentiation and growth of neuroendocrine (NE) tumors including carcinoid, pancreatic islet cell, pheochromocytoma, and medullary thyroid cancer.
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Argentina
1900 La Plata
Australia
Western Australia
Fremantle WA 6160, WA
Brazil
Centro, 12.245-750 - São José dos Campos - SP

Sao Jose dos Campos
Dr. Pinto's specialties include medical oncology; health care administration; cancer programs and projects: planning and development.
Sa˜o Paulo, SP 01509 – 010
Canada
Alberta

Calgery, AB T2N2T9
British Columbia

Vancouver, BC V5Z1M9
Ontario
London, ON N6A5W9
London, ON N6A5C1

London, ON N6A4G5
Montreal, ON H3G1A4
France
92118 -CLICHY-CEDEX
Germany
d-35033 Marburg
The Bad Berka Center for Neuroendocrine Tumors (BBC-NET) is one of the largest neuroendocrine tumor centers worldwide with over 1,000 patient visits per year. It combines all specialties and procedures needed for the optimal interdisciplinary treatment of NET patients: nuclear medicine, PET/CT center, gastroenterology, endocrinology, oncology, surgery (with special experience in NETs), interventional radiology (including liver-directed therapies such as SIRT, RFA, TACE, etc.). The Bad Berka Center for Neuroendocrine Tumors has been designated as an ENETS (European Neuroendocrine Tumor Society) Center of Excellence.
Berlin

Berlin, BE D-13353
Prof. Bertram Wiedenmann's major research interests are molecular and cell biology involving especially cellular signal transduction pathways in the field of gastrointestinal oncology.
For further information, contact Elizabeth Zach, Elizabeth.Zach@charite.de,
http://www.charite.de/hges/
Hong Kong S.A.R., China
AmMed International is building a network of comprehensive ambulatory cancer diagnosis and treatment centers in Asia. It provides comprehensive cancer screening services including PET-CT imaging, medical oncology services, chemotherapy infusion, and radiotherapy using an IMRT linear accelerator. A complete center at the Adventist Hospital in Hong Kong has been in operation since 2002 and is now supported by a satellite clinic in Central. A new center in Kowloon is being set up. AmMed is affiliated with the Memorial Sloan-Kettering Cancer Institute in New York.
Office hours, by appointment, are Monday through Friday, 8:30 am to 5:30 pm, closed on Saturdays and public holidays.
Italy
Milano
MI 20133
Roma
RM 00161
Japan
Wakayama
Kimiidera, 30 641-8510
Netherlands
Rotterdam, 3015 GD
The postal address is:
P.O. Box 2040
3000 CA Rotterdam, Netherlands
Erasmus MC Lutetium 177 Treatment*
Information about the Receptor therapy given to patients in the Netherlands ......Read More
Prof. Dr. Eric Krenning is the Head of the Department of Nuclear Medicine at Erasmus.
Singapore
Dr. Liau has a research interest in surgical treatment of hepatobiliary cancers, in particular, hepatocellular carcinoma (liver cancer), cholangiocarcinoma (bile duct cancer), gallbladder carcinoma (gallbladder cancer), pancreatic adenocarcinoma (pancreas cancer), pancreatic neuroendocrine tumors (i.e. insulinoma, glucogonoma, VIPoma, gastrinoma, etc.), gastrointestinal neuroendocrine neoplasm and metastatic neuroendocrine tumors to the liver. He has also dedicated signficant effort to understand molecular basis, nuclear and novel mangement of liver, pancreatic cancers, and neuroendocrine tumors.
Sweden

Uppsala, SE-751 85

Uppsala, SE 75185

Uppsala, SE-751 85

Uppsala, SE-751 85

Uppsala, SE 75185

Uppsala, 751 85
The section of Endocrine Oncology, Uppsala University Hospital, is the national referal center for patients with neuroendocrine tumors. At the section of Endocrine Oncology basic scientific research is combined with improvement of diagnostic procedures and medical treatment of neuroendocrine tumors. To the specialized ward with 15 beds patients are referred from all over Sweden as well as from the Nordic countries, Europe, the Middle East, South America and USA for diagnosis and treatment.
Members of the Endocrine Oncology Department are:
- Professor: Kjell Öberg, Chairman Department of Medical Sciences, Vice Chairman Division of Internal Medicine
- Associate Professor: Barbro Eriksson, Head Section of Endocrine Oncology, Member of ENET
- Associate Professor: Britt Skogseid, Consultant in Endocrinology and Medicine
- Associate Professor: Eva Tiensuu Janson, Dr Med Sc Anders Gobl, Molecular Biologist
- Head Nurse: Monica Hurtig
- Research Nurse: Gunnel Larsson
- Consultant Doctor: Dan Granberg
United Kingdom
London, W12 OHS
Professor Bloom's research work over the years falls into five related categories: endocrinology clinical research, physiology and pathology of gut hormones, control of insulin release and insulin resistance, role of neuropeptides in organ control and the role of neuropeptides in CNS regulation of appetite and related hypothalamic functions. He currently leads a research group investigating hypothalamic appetite control systems and gut hormones.

London, NW3 2QG
London W12 ONN
Carcinoid Cancer Foundation
333 Mamaroneck Avenue #492
White Plains, NY 10605
1-888-722-3132

