Late NET Talk 2018 — Chicago, Atlanta, Phoenix

September 17, 2018

Chicago on September 20, Atlanta on October 18 and Phoenix on November 1 — it’s “Late NET Talk,” a FREE  evening of inspirational stories and connections hosted by stand-up comedian Steve Mazan. You and a guest are invited!…

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Carcinoid NETs Health Storylines App Launches New Features

August 23, 2018

Living with Neuroendocrine Tumors (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier.

 

Zebra Tales presents real stories about real life experiences by people…

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Luncheon with the Experts, l to r, Drs. Michail Shafir, Edward Wolin, Jerome Zacks, October 2018

October Luncheon with the Experts in White Plains, NY for the Neuroendocrine Tumor Community

August 14, 2018

The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, October 14, 2018 at 12:30 pm at the Westchester Hills Golf Club, 401 Ridgeway…

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PRRT infographic, segment_2

Peptide Receptor Radionuclide Therapy, PRRT: Updates and Locations

July 26, 2018

Since we shared the news of the FDA’s January 26, 2018 approval of peptide receptor radionuclide therapy, PRRT, with Lutathera  (lutetium Lu 177 dotatate), more information has become available for the neuroendocrine tumor community, including…

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Cancer Coach Live, Carcinoid Syndrome program, on-demand-2

Live Online Carcinoid Syndrome Program for Patients and Caregivers

June 14, 2018
Register Today and Ask Your Questions for the June 20, 2018 Online Education Program on Carcinoid Syndrome! http://www.cancercoachlive.com/landing-page-carcinoid-syndrome/ Sign Up for the On Demand Program If You Can’t Join Us Next Week… READ MORE
Carcinoid Syndrome, Live Online Event, June 2018, Dr. David Metz, Bonnie Bennett

Patient & Caregiver Education on Carcinoid Syndrome: Talking to Your Doctor About Symptoms, Diet, and Treatment

June 5, 2018
A  Free, Live Online Event on Wednesday, June 20, 3:00-4:00 pm EST Click Here to Register

 

Last Spring, we were pleased to create an interactive resource for people living with Carcinoid Syndrome with our partner CancerCoachLive – we’ve teamed…

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Steve Mazan, Laugh and Learn, June 2018

Laugh and Learn with Comedian Steve Mazan

May 30, 2018

Come and laugh with Steve Mazan, stand-up comedian, inspirational speaker, and 13-year NET cancer survivor. “CS Happens” is a Laugh and Learn special evening for the NET community, and is complementary courtesy of Lexicon Pharmaceuticals. This…

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Endocrinology Society Recognizes Neuroendocrine Cancer Physician and Researcher for Excellence at 2018 Annual Meeting

April 15, 2018

When Amit Tirosh, MD came to the United States in 2015 to be a senior endocrinologist at the National Institutes of Health (NIH), he began a journey that will lead full circle when he returns to Israel this summer to establish and lead a new neuroendocrine

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Edward Wolin, MD joins Markey Cancer Center as Director of the Carcinoid and Neuroendocrine Tumor Program

June Luncheon with the Experts in New York City for the Neuroendocrine Tumor Community

April 3, 2018

Join neuroendocrine tumor (NET) patients in New York City on Sunday, June 10, 2018 for a unique opportunity to have lunch with two medical experts. Share your experiences with others who have similar concerns and hear from physicians on issues ranging…

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PRRT – FDA Approves Lutathera®, What’s Next?

February 20, 2018

The FDA approval of Lutathera®, a peptide receptor radionuclide therapy (PRRT), on January 26, 2018 signals a new era in treatment options for the neuroendocrine cancer community.  It has also raised a host of questions including:

  • What exactly is
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