Carcinoid NETs Health Storylines
Have you heard about or downloaded the Carcinoid NETs Health Storylines self-care app? The app is now available in 7 countries: the United States, Canada, Australia, Ireland, New Zealand, Singapore, and the United Kingdom*.
Developed by Self Care Catalysts in partnership with the Carcinoid Cancer Foundation (CCF), Carcinoid NETs Health Storylines makes it easy to record your symptoms, nutritional concerns, moods, medication, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share with your doctor about what happened between visits. You can choose from a suite of health tools to help you better manage carcinoid and NET cancer, whether you are just diagnosed, on active treatment, or on surveillance, including:
RECORD FOOD REACTIONS
Document what foods may be triggering symptoms such as flushing or diarrhea. This helps you choose and adjust to the right foods, which may be helpful to give you better control over your symptoms.
DAILY MOODS AND JOURNAL
Track and understand your emotions and what might be driving them. Keep a journal as it has been shown to increase well being.
Pick and choose other tools so you can customize the app to meet your needs. Many users have found the Stool Diary (available from the Tool Library) useful in helping them track their bowel patterns and triggers.
Among the newest features in the app are:
- Daily check-in feature to remind you to track your health (sometimes it is hard to remember with so much going on!)
- A Healing Music Box to inspire peacefulness through your cancer journey, featuring music composed by Giovanna Imbesi
- Community polls so you know how others like you are doing
If you haven’t used Carcinoid NETs Health Storylines, or have not yet experienced this new and improved version, try it today:
*Note: The medication list available in the app is currently drawing from the United States FDA and Health Canada’s drug database, and may not contain certain medications that are only available in other countries. It will be updated in the future with the drug list from your country.
My NET Manager
My NET Manager, a free app provided by Novartis Oncology, offers carcinoid cancer and neuroendocrine tumor (NET) patients a unique opportunity to track their symptoms, set reminders, access test results, and view important dates. The app includes a medication tracker, an insurance tracker, a place to list physicians’ names and contact information, information about NETs, including a glossary, and more!
The app features:
- My Profile
- My Doctors
- My Test & Result Tracker
- My Medication Tracker
- My Insurance Tracker
- More About NETs
A Contacts section offers the app user a place to list laboratories, doctors, pharmacies, and insurance companies. The is available for downloading on the iPhone, iPad, and Android.