Facebook Live with Neuroendocrine Cancer Expert Richard R.P. Warner, MD

In celebration of the Carcinoid Cancer Foundation’s 50th anniversary in March 2018, CCF presented a Facebook LIVE event with Richard R.P. Warner, MD, founder of CCF and one of the world’s leading neuroendocrine cancer experts, on February 2, 2018.  You can watch the LIVE session below or on our Facebook page, https://www.facebook.com/Carcinoid/, where you can see all of the questions and comments. Thanks for watching and sharing!

The Latest News

FDA Approves LUTATHERA® for Peptide Receptor Radionuclide Therapy (PRRT) for the Treatment of Gastroenteropancreatic Neuroendocrine Tumors

On January 26, 2018 the US Food and Drug Administration approved LUTATHERA® marking the first time a radioactive drug, or radiopharmaceutical, has been approved for the treatment of gastroenteropancreatic neuroendocrine tumors (GEP-NETs).  The drug will be used in Peptide Receptor Radionuclide Therapy (PRRT), which is a form of targeted treatment.  LUTATHERA®(lutetium Lu 177 dotatate) is indicated for adult patients with somatostatin receptor-positive GEP-NETs, including foregut, midgut, and hindgut neuroendocrine tumors. Read more

Gallium 68 PET/CT Scanning for Neuroendocrine Tumors — Information and Locations

The US Food and Drug Administration’s June 1, 2016 approval of the Gallium-68 PET/CT DOTATATE scan using NETSPOT® heralded a new age of nuclear imaging in the United States for neuroendocrine tumors. Click here for more information about the scan and locations of where it is being offered throughout the US.  We will be adding to the list on a monthly basis based on feedback from the NET community.

Exciting News about Edward M. Wolin, MD, CCF’s  Co-Medical Director

It is with great pleasure that the Carcinoid Cancer Foundation announces that Edward M. Wolin, MD, Co-Medical Director of CCF, has been named Director of the Center for Carcinoid and Neuroendocrine Tumors at The Mount Sinai Hospital in New York City, effective March 26, 2018. Dr. Wolin will be joining Michelle Kang Kim, MD, PhD, Associate Professor of Medicine, Gastroenterology, and Associate Director of the Center, and all the physicians comprising the renowned multidisciplinary NET team at Mount Sinai. With Dr. Wolin’s arrival he will see patients at Mount Sinai beginning in the spring of 2018 and will bring with him multiple new treatment options and clinical trials.

New NET Fellowship Established at Stanford University School of Medicine

Stanford University School of Medicine in California has established a new one-year Neuroendocrine Tumor (NET) Fellowship under the direction of NET expert Pamela L. Kunz, MD, who is Director of the Stanford Neuroendocrine Tumor Program and a Board Member of the North American Neuroendocrine Tumor Society (NANETS).  Applicants for the NET fellowship must have completed one of the following:

  • ACGME-certified fellowship in Hematology and/or Oncology
  • ACGME-certified residency or fellowship in Nuclear Medicine
  • ACGME-certified residency in Surgery

The deadline to apply for the fellowship is January 31, 2018. For more information on how to apply, click here: https://www.nanets.net/stanford-university-net-fellowship

CCF Releases New Infographic for NET Cancer Day: 6 Questions to Ask Your Doctor

Have you or someone you love been diagnosed with a neuroendocrine tumor or carcinoid cancer?  It can feel like a daunting task to figure out next steps and doctor appointments may be overwhelming.   You can help yourself or support a loved-one by learning about the disease and preparing yourself for doctor visits.  The first visit may be the most challenging, so It’s important to arm yourself with relevant questions.  Here we provide you with six questions, specific to neuroendocrine tumors, to ask your doctor.   Click here to download the infographic.

CCF Offers Toolkit for NET Cancer Day Media Coverage

The Carcinoid Cancer Foundation, with support from Advanced Accelerated Applications, is offering a Media Toolkit to assist organizations or individuals who planning an awareness-raising event to incorporate news media in their efforts.  The Toolkit provides insights on working with print and broadcast newsrooms as well as ideas for leveraging social media. Read more and download the Media Toolkit.

New Carcinoid Syndrome Website

The Carcinoid Cancer Foundation has launched a new website, www.carcinoidsyndrome.org. This website is a space for everything about carcinoid syndrome – from diagnosis and treatment to news and community updates. We believe this site is a great resource for patients, caregivers, and physicians alike – looking to learn more about carcinoid syndrome. Please visit often and let us know your thoughts as we plan to regularly update the site. Welcome to carcinoidsyndrome.org!

Guide to Understanding Carcinoid Syndrome

Know the signs and symptoms — skin flushing, diarrhea, heart racing . . . it could be carcinoid syndrome!  How is it diagnosed, what are the treatment options, what questions should you ask your healthcare provider?  Read more in this new publication, Guide to Understanding Carcinoid Syndrome,  from Health Monitor and the Carcinoid Cancer Foundation: https://www.carcinoid.org/wp-content/uploads/2015/10/Carcinoid-Syndrome-Guide-to-Understanding.pdf.

New England Journal of Medicine Publishes Article on PRRT Clinical Study for Neuroendocrine Tumors

One of the most prestigious medical journals in the United States, the New England Journal of Medicine, published an article (January 12, 2017 issue) about the results of the NETTER-1 Phase 3 clinical trial results evaluating the efficacy and safety of Lutetium-177-Dotatate for patients with advanced, progressive somatostatin receptor-positive midgut neuroendocrine tumors. Shedding light on PRRT, peptide receptor radionuclide therapy! Click here to read more

Reaching Those Who Are Still Undiagnosed

To combat statistics showing that it often takes 5 to 7 years for patients to receive the correct diagnosis of a neuroendocrine tumor (NET), the Carcinoid Cancer Foundation has partnered with Advanced Accelerator Applications to create an infographic listing common symptoms and misdiagnoses.  Please share this broadly in hopes of helping others get the proper diagnosis more quickly. Download the infographic here.