The following organizations offer information about financial, travel and housing assistance for cancer patients. Each organization has their own set of guidelines regarding approval for financial assistance.
- Advanced Accelerator Applications (AAA) has expanded its financial assistance programs for neuroendocrine tumor patients who are treated with Lutathera. For more information about AAA PatientCONNECT, visit https://aaapatientconnect.com/ and click on Patient Access Support or call 1-844-638-7222.
- American Cancer Society (ACS) Understanding Health Insurance, Financial Assistance for the Cancer Patient, Managing Cancer as a Chronic Illness
- The Assistance Fund provides co-pays for medications. Neuroendocrine tumors is one of the more than 40 covered diseases. Click here to see which funds are open and which are closed, https://tafcares.org/program-listing/.
- Cancer Care “When you don’t know where to turn,” Cancer Care can help. If you or someone you know has just been diagnosed with carcinoid/neuroendocrine cancer—or has been living with carcinoid/neuroendocrine cancer for some time—you may have questions or need support. This website defines the five areas of service they offer for carcinoid/NET cancer patients and their families.
- National Cancer Institute (NCI) Financial Assistance for Cancer Care — Cancer imposes heavy economic burdens on both patients and their families. For many people, a portion of medical expenses is paid by their health insurance plan. For individuals who do not have health insurance or who need financial assistance to cover health care costs, resources are available, including Government-sponsored programs and services supported by voluntary organizations.
- Novartis Patient Assistance Foundation The Novartis Patient Assistance Foundation, Inc. (NPAF) is committed to providing access to Novartis medications for those most in need. If you are experiencing financial hardship and have limited or no prescription coverage, then you may be eligible to receive Novartis medications for free. Click here to read more about the eligibility requirements and how to apply.
- Novartis Patient Assistance Program Novartis is committed to providing access to their medications for those most in need through the Novartis Pharmaceuticals Corporation’s Patient Assistance NOW. PANO provides assistance to patients experiencing financial hardship who have no third party insurance coverage for their medicines.
- Novartis Sandostatin LAR Depot Co-Pay Assistance Program Effective February 2014, Novartis Pharmaceuticals Corporation has established a Co-Pay Assistance Program for carcinoid syndrome patients taking Sandostatin LAR Depot. Read more
- Ipsen Cares On December 16, 2014 the Food and Drug Administration approved Somatuline Depot (lanreotide) for treatment of gastroenteropancreatic neuroendocrine tumors (GEP-NETs) in adult patients with unresectable, well or moderately differentiated, locally advanced or metastatic disease to improve progression-free survival (PFS). Ipsen Cares is a program that helps patients with coverage, access, reimbursement and education support. Read more
- Xermelo is available by prescription, in a 250 mg oral tablet. In an effort to ensure all appropriate patients have access to fast and affordable treatment, TerSera Therapeutics is offering a comprehensive program designed to guide patients through each step of their treatment journey. For additional information, please visit https://www.xermelo.com/. For information about the Xermelo co-pay assistance program, click here: https://copay.xermelo.com/. And for Xermelo support, click here: https://www.aboutcarcinoid.com/answers-from-experts.
- Patient Assistance Programs for Prescription Drugs In addition to programs offered by pharmaceutical companies, there are some assistance programs offered by individual state governments and nonprofit groups. Read more