Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences and More


Several patient-oriented carcinoid seminars and conferences are held each year. In this section, you can find videos and lecture  transcripts by prominent carcinoid and neuroendocrine tumor (NETs) specialists.
These video recordings and lecture transcripts give both simple and more in-depth information about carcinoid and other neuroendocrine tumors (NETs).

In 2012, the Carcinoid Cancer Foundation began a new series of videos featuring carcinoid/NET specialists and patients. Read more about the series here. These videos are made possible thanks to the generosity of Kim, Heather and Lauren Simpson and other family and friends and were created in “loving memory of Cheryl Stanley Simpson of Gainesville, Florida.”

COPYRIGHT NOTE: Direct linking to any of these transcripts, podcasts, or video recordings is prohibited.

NOTE: Videos in this section are best viewed with Adobe Flash Player. If you are unable to view pictures of the lecturers (from high speed broadband connection), make sure that you use Adobe Flash Player installed and that Real Player is uninstalled.

Year 2018

In celebration of the Carcinoid Cancer Foundation’s 50th anniversary in March 2018, CCF is releasing a year-long video series beginning with a feature on Dr. Richard Warner, founder of CCF. The series is made possible thanks to the generosity of and in collaboration with Lexicon Pharmaceutical’s Fit-to-Fight program.

Laughter Is the Best Medicine: Steve Mazan

Steve Mazan has known since he was a kid that he wanted to make people laugh. A diagnosis of neuroendocrine cancer in 2005 made this stand-up comedian and inspirational speaker more determined than ever to realize his dream of being on the David Letterman show. He was told he had 5 years to live; 13 years later he’s a nationwide performer, an Emmy Award winning television writer, an author, and a TED speaker. “It doesn’t matter how much time you have,” says Steve, “It’s what you do with it.”


Fate and Friendship

When Xochi and Ellen met little did they know they would form a unique bond. Together, these awesome friends have held each other up, provided comfort during difficult times, and navigated next steps in the journey of living with neuroendocrine cancer.

Letting Go and Looking Forward

Diagnosed with a pancreatic neuroendocrine tumor in 2014, Stacie’s first reaction was fear and anxiety. Then she found yoga, where she is strong, present, and in control. “You have to find something to be grateful for every day, because there is always something to be grateful for,” says Stacie.

Fear and Hope

Mack was devastated when he was diagnosed with carcinoid in 1997, especially when the doctor said, “You have cancer.” Fear was his initial reaction but his faith, a loving wife, wonderful friends, and becoming the leader of the neuroendocrine cancer support group in Georgia led him to living with the disease with hope and optimism.

A Lifetime of Commitment: Richard R.P. Warner, MD

Supported by his family and friends, Dr. Richard R.P. Warner founded the Carcinoid Cancer Foundation in 1968. “Over these past five decades, CCF has become an integral part of the support system that improves patients’ lives by providing information, connecting patients and doctors, by building and supporting patient communities and by promoting an environment that encourages further research. In fact, the goal of improving patients’ lives has driven everything we do,” says Dr. Warner.

Year 2017


With special thanks to the Society of Nuclear Medicine and Molecular Imaging for allowing us to share general and NET specific videos from the SNMMI 2017 Annual Meeting held in Denver, Colorado in June. Click here for more information about the 2017 Patient Education Day. 


Year 2016

January 2016 Bay Area Neuroendocrine Tumor Patient Conference, hosted by UCSF Helen Diller Family Comprehensive Cancer Center in cooperation with NorCal CarciNET Community, the NET Research Foundation, and Stanford University Medical Center.  Featured topics on the latest developments in NET research and treatment included treatment options, clinical trials and phase III results, nuclear medicine and molecular imaging as well as strategies for living with cancer.  New this year was a Pre-Conference Primer on NETs for those who are newly diagnosed or who need a refresher on the basics of NETs.  With special thanks to Josh Mailman and the guest presenters for sharing these videos.

01 – Intro to the Day – Ron Hollander from NorCal CarciNET Community on Vimeo.

Dr. Emily Bergsland – NET Primer from NorCal CarciNET Community on Vimeo.


General Session Welcome – Dr. Bergsland from NorCal CarciNET Community on Vimeo.

Dr. Ashworth – President UCSF Helen Diller Comprehensive Cancer Center – Opening Remarks from NorCal CarciNET Community on Vimeo.

Pamela Kunz – 2015 Clinical Trial Review from NorCal CarciNET Community on Vimeo.

Dr. Thomas Hope on Imaging NETS from NorCal CarciNET Community on Vimeo.

Dr. Erik Mittra – PRRT from NorCal CarciNET Community on Vimeo.

Dr. Daniel Sze – Liver Directed Therapy from NorCal CarciNET Community on Vimeo.

Dr. Eric Liu – Bio Markers from NorCal CarciNET Community on Vimeo.

Q and A Panel from NorCal CarciNET Community on Vimeo.

Warner Advocacy Award Presentation from NorCal CarciNET Community on Vimeo.

Tumor Board Panel from NorCal CarciNET Community on Vimeo.

Dr. Lawrence Fong – Immunotherapy from NorCal CarciNET Community on Vimeo.

Ron Hollander – Funding Research from NorCal CarciNET Community on Vimeo.

Dr. Eric Nakakura on Research from NorCal CarciNET Community on Vimeo.

Ron Hollander Projects Under Funding from NorCal CarciNET Community on Vimeo.

20 – Dianne Shumay from NorCal CarciNET Community on Vimeo.

Working with your Care Team Panel from NorCal CarciNET Community on Vimeo.

Closing from NorCal CarciNET Community on Vimeo.


Year 2015

New Jersey Carcinoid Cancer NETwork Conference, October 2015

Carcinoid/NETs: Living Longer, Living Better, a day-long conference sponsored by the New Jersey Carcinoid Cancer NETwork on October 3, 2015 shared information on a variety of topics for carcinoid/neuroendocrine tumor (NET) patients, caregivers, and all interested in learning more about NETs. Topics covered ranged from carcinoid heart disease and the role of diet for NET patients to an update in the diagnosis and management of neuroendocrine cancers and significant developments in NETs over the past two years.  Patients also learned more about how to navigate their disease.  The conference featured carcinoid/NET specialists Dr. Richard R.P. Warner and Dr. Thomas O’Dorisio, cardiologist Dr. Jerome Zacks, oncology nutritionist Leigh Anne Burns, and nurse practitioner Nancy Roehnelt.

The first video below is an introduction to the conference.  Click here for the conference agenda.  We are grateful to the guest speakers for sharing copies of their presentations to accompany the videos.  These are not to be reproduced unless permission is granted by the speaker.


Year 2013

New Jersey Carcinoid Cancer NETwork Conference, November 2013

Carcinoid/NETs: Moving Forward, a day-long conference sponsored by the New Jersey Carcinoid Cancer NETwork on November 2, 2013, gave participants the opportunity to learn more about recent developments regarding these rare diseases; surgical treatment options, including what’s currently available and what will be coming next; how neuroendocrine tumors (NETs) are treated; what are the neuroendocrine symptoms and diseases associated with carcinoid; and everything you always wanted to know about PRRT (peptide receptor radionuclide therapy) but didn’t know who to ask.  The conference featured carcinoid/NET specialists Dr. Richard R.P. Warner, Dr. Eric H. Liu, andDr. Yi-Zarn Wang, as well as endocrinologist Dr. Justina Deitz. 

The first video below is an introduction to the conference and gives the patient, physician, and advocate perspectives on the value of attending carcinoid/NET conferences.

PDF of Dr. Warner’s Presentation

PDF of Dr. Deitz’s Presentation

PDF of Dr. Liu’s Presentation

PDF of Dr. Wang’s Presentation

With deepest appreciation to the Carcinoid Cancer Texas Survivors Support Group for sponsoring, videotaping,and giving permission to the Carcinoid Cancer Foundation to share this special presentation featuring carcinoid/NET specialist Eric H. Liu, MD, Director of the Neuroendocrine Center at Vanderbilt University Medical Center in Nashville, Tennessee. “Neuroendocrine Cancer: Making Sense of the Disease”was held on June 8, 2013 at Baylor Hospital in Dallas, Texas.

Dr. Liu’s talk is shared here in 3 parts, with the last part being the Questions and Answers session.

Year 2012

The ABC’s of Carcinoid and Neuroendocrine Tumors

Faces of Hope

Surgery and Treatment Options: Carcinoid and Neuroendocrine Tumors

Why I Became Interested in Carcinoid/NETS
What prompted carcinoid and neuroendocrine tumor specialist Dr. Eugene Woltering to become interested in these rare cancers?

Year 2011

New Jersey Carcinoid Cancer Network conference

November 5, 2011

Carcinoid/NETs: Not Your Average Cancer

These videos are made possible through a collaborative effort of the New Jersey Carcinoid Cancer Network and the Carcinoid Cancer Foundation.

The symposium videos can be viewed here in order of presentation:

  • Introduction and Welcome, Jim Weiveris and Judy Golz
  • Richard R.P. Warner, MD (presentation is in two parts)
  • Michael Soulen, MD
  • Robert Fine, MD
  • Guiseppe Condemi, MD
  • Rodney Pommier, MD
  • Q & A


CCF’s 14th Annual Carcinoid NETs Symposium

Mt. Sinai Medical Center, New York, NY
May 1, 2011

Neuroendocrine Tumor Management:  The Era of Personalized Medicine

Read More about the Symposium.

Due to technical difficulties the question and answer period following Dr. Wolin’s presentation is not available in a video format.

The symposium videos can be viewed here in order of the presentations:

  • Keith Warner
  • Richard R.P. Warner, MD
  • Edward M. Wolin, MD
  • Eugene A. Woltering, MD
  • Q & A with Dr. Woltering
  • Patient Panel moderated by Gilles Frydman

Year 2010

International Carcinoid NET Conference and Symposium for Patients and Medical Professionals

Vancouver, British Columbia, Canada

May 13-16, 2010

With kind permission from the Canada NeuroEndocrine Tumor Society CNETS, we present NeuroEndocrine Cancers: Networks of Expertise. The conference featured distinguished neuroendocrine cancer experts from Canada, the United States, the United Kingdom, Ireland, the Netherlands, and Sweden. All lectures except for two are reproduced here. Those lectures will be released at a later date.

View lectures here

CCF’s 13th Annual Carcinoid NETs Symposium

Mt. Sinai Medical Center, New York
April 11, 2010

Determining Molecular Signature: A Guide for Targeted Therapy of Neuroendocrine Tumors

Imagine a treatment created just for you as a carcinoid or other neuroendocrine tumor patient based upon a personalized genomic analysis. This is the cutting-edge research which is the focus of the work of Michael J. Demeure, MD, MBA, and his team at TGen, the Translational Genomics Research Institute, based at the Virginia G. Piper Cancer Center, Scottsdale Healthcare, in Arizona. Dr. Demeure talked about this research when he was the guest speaker for the Carcinoid Cancer Foundation’s symposium.

Year 2009

CCF’s 12th Annual Carcinoid NETs Symposium

Mt Sinai Hospital New York, NY
April 2009
The theme of the lectures were advances in surgical care for carcinoid and neuroendocrine tumors. The talk featured presentations by distinguished guest speakers Dr. Philip J. Boudreaux, Surgeon and Professor of Surgery at Louisiana State University Hospital School of Medicine (in Kenner, Louisiana) and Dr. Rodney F. Pommier, Surgeon and Professor of Surgery at Oregon Health Sciences University Cancer Institute (in Portland, Oregon).

View video
View photo/slide show

Year 2008

With kind permission from the Canada Neuro-Endocrine Tumor Society CNETS, we present video recordings from their first International Carcinoid Neuroendocrine Conference for Patients and Medical Professionals in Toronto, Ontario, Canada on October 16 – 19, 2008

Listen to lectures

Video recordings of lectures from the Carcinoid Cancer Foundation’s (CCF) 11th Annual Carcinoid/NET’s Conference

“Progress in Research and Treatment”
April 13, 2008 at Mount Sinai Hospital New York, NY
Guest Speakers:
Herbert Chen, MD, Madison, WI
Andrew S. Kennedy, MD, Cary, NC

Listen to lectures

Webcasts from NANETS’ first Professional Conference, February 8-9, 2008, Southampton, Bermuda.

Current Management Strategies
When NET diseases have advanced, what treatments are most effective? Experts in the field are continually improving treatment strategies and developing new approaches to symptom control.


Year 2007

  • Carcinoids: The Slow Pace of Rapid ProgressApril 2007
    Presented by the Carcinoid Cancer Foundation.
    Mount Sinai Hospital, New York, NYThis conference was for patients, family, friends and medical professionals. Our guest speaker was Dr. Irvin M. Modlin from Yale University School of Medicine, New Haven, CT.
    Most of the content of his presentation was recently published. Access the article
    Additional medical journal publications by Dr. Modlin are available in abstract form from PUB MED

Year 2006

  • 3rd Annual Carcinoid Cancer Awareness Network (CCAN) conference
    November 11, 2006, Long Island, NY.Listen to Drs. Gerstein, Goldsmith,Woltering,Warner,Vinik and Gardner lecturing on “The Diagnosis and Treatment of Carcinoid Cancer / NET Tumors”View the conference recordings
    Visit the CCAN website
  • National Carcinoid/NETs conference in Portland, OR
    September 2006 ?Portland, OR 2006
    To view the conference recording, click here
    Note: These video recordings can ONLY be viewed in Internet Explorer.Acknowledgment: Production of these video recordings was made possible by a generous educational grant from NOVARTIS ONCOLOGY.One full set of DVDs and CD-ROMS will be produced and distributed to all support groups in time. Please note that it is a very complex and time-consuming process to produce these video recordings and DVDs or CD-ROMS. Remember that when done you will have access to 30 lectures by the world’s leading carcinoid/NET specialists. We appreciate your patience.

This event was coordinated and executed by Kari Brendtro and Corie Dean from the Pacific Northwest (PNW) carcinoid/NET support group and cosponsored by The Carcinoid Cancer Foundation.

Year 2005

Year 2004

  • Carcinoid Conference 2004 (video recording)
    In New Orleans, LA
    September 23-24, 2004
  • This conference was designed to make patients with this rare disease aware of the most recent medical information concerning the diagnosis and management of their tumors. The fourteen speakers included the world experts on carcinoid and carcinoid syndrome.These individuals presented the latest, often unpublished, updates on these tumors.
    • “This conference represents the cutting edge of medical information dispersal. Getting life saving information to patients with this exceedingly rare disease allows the patient to educate their local doctors rather than the usual paradigm in which physicians are the ones with the knowledge.”  Dr. Eugene Woltering of LSUHSC

    Presentations by (1. Physicians in order of appearance): Drs. Larry Hollier, Eugene Woltering, Richard Warner, Thomas M. O’Dorisio, Lowell Anthony, Larry Kvols, Louis Linares, Daniel Frey, Jay Thomas, (2. other nonphysician contributors); Gregory Espenan; Mary Hardy; Barbara Schwerin,JD; Leigh Anne Geisler Burns, LDN/RD; Charles Kerwood).

Year 2003

  • Carcinoid Treatment Today and Tomorrow:
    Carcinoid Conference 2003
    (for Carcinoid Patients, Caregivers, Family, and Friends) Coordinated by California Carcinoid Fighters (CalCF)
    Saturday October 25, 2003
    Santa Ana, CA
    Guest Speakers:
    Larry Kvols MD, Kjell Öberg MD,Thomas O’Dorisio MD, Rodney Pommier MD, Richard Warner MD, Eugene Woltering MD
  • Carcinoid Case Presentation and Discussion – The American Perspective
    Dr. Richard R P Warner
    Department of Medicine, Gastrointestinal Division, The Mount Sinai School of Medicine,
    One Gustave L. Levy Place, New York, NY 10029, USA
    Presented at the ENET meeting in London, May 2003Abstract
    The rationale underlying an aggressive approach in the management of some carcinoid patients is explained and illustrated by the presented case of a middle-aged man with advanced classic typical midgut carcinoid. The patient exhibited somatostatin receptor scintigraphy positive massive liver metastases, Carcinoid Syndrome, severe tricuspid and pulmonic cardiac valve disease with congestive heart failure, ascites, and malnutrition. He had been treated for several years with supportive medications and biotherapy including octreotide and alpha interferon but his tumor eventually progressed and his overall condition was markedly deteriorated when he first sought more aggressive treatment. This consisted of prompt replacement of both tricuspid and pulmonic valves, followed by hepatic artery chemoembolus injection and then surgical tumor debulking including excision of the primary tumor in the small intestine. In addition, radiofrequency ablation was utilized to reduce the volume of metastases in the liver. Prophylactic cholecystectomy was also performed and a biopsy of tumor was submitted for cell culture drug resistance testing. This was followed by systemic chemotherapy utilizing the drug (docetaxel) which the in vitro studies suggested as most likely to be effective. His excellent response to this succession of treatments exemplifies the successful application of aggressive sequential multi-modality therapy.
  • Diagnosing and Treating Carcinoid
    Transcript of lecture from the METRO NY Carcinoid Support Group meeting
    Sunday, April 27, 2003
    Mt Sinai Hospital, NY
    The Dana-Farber Experience
    Guest Speaker: Matthew Kulke MD,
    Assistant Professor of Medicine Department of Medical Oncology
    Dana-Farber Cancer Institute, Boston

Year 2002

  • METRO NY Carcinoid Support Group Tri-State Meeting
    January 13, 2002
    Mount Sinai Hospital, NYC
    2002 Annual Update and Review of Carcinoid Disease

    Presented by Richard R.P.Warner MD
    Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
    Clinical Associate Professor of Medicine, Weill Medical College of Cornell University, New York, NY, and Medical Director, Carcinoid Cancer Foundation, Inc.
  • Carcinoid Wellness Conference
    March 9, 2002
    Memorial Medical Center
    New Orleans, LA
  • Carcinoid Symposium 2002
    Tampa, Florida
    April 12-13, 2002
    Coordinated by Dianne Comstock, R.N., M.Ed. and Rhonda Ryan RN
    Made possible by an educational grant from Norvartis Oncology

Year 2000

  • National Carcinoid Symposium 2000
    Sarasota, Florida
    May 11, 2000
    Coordinated by Dianne Comstock, R.N., M.Ed.
    Made possible by an educational grant from Norvartis Oncology and sponsored by the The Wellness Community-Southwest Florida


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