Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences and More
Several patient-oriented carcinoid seminars and conferences are held each year. In this section, you can find videos and lecture transcripts by prominent carcinoid and neuroendocrine tumor (NETs) specialists.
These video recordings and lecture transcripts give both simple and more in-depth information about carcinoid and other neuroendocrine tumors (NETs).
In 2012, the Carcinoid Cancer Foundation began a new series of videos featuring carcinoid/NET specialists and patients. Read more about the series here. These videos are made possible thanks to the generosity of Kim, Heather and Lauren Simpson and other family and friends and were created in “loving memory of Cheryl Stanley Simpson of Gainesville, Florida.”
COPYRIGHT NOTE: Direct linking to any of these transcripts, podcasts, or video recordings is prohibited.
NOTE: Videos in this section are best viewed with Adobe Flash Player.? If you are unable to view pictures of the lecturers (from high speed broadband connection), make sure that you use Adobe Flash Player installed and that Real Player is uninstalled.
In celebration of the Carcinoid Cancer Foundation’s 50th anniversary in March 2018, CCF is releasing a year-long video series beginning with a feature on Dr. Richard Warner, founder of CCF. The series is made possible thanks to the generosity of and in collaboration with Lexicon Pharmaceutical’s Fit-to-Fight program.
Laughter Is the Best Medicine: Steve Mazan
Steve Mazan has known since he was a kid that he wanted to make people laugh. A diagnosis of neuroendocrine cancer in 2005 made this stand-up comedian and inspirational speaker more determined than ever to realize his dream of being on the David Letterman show. He was told he had 5 years to live; 13 years later he’s a nationwide performer, an Emmy Award winning television writer, an author, and a TED speaker. “It doesn’t matter how much time you have,” says Steve, “It’s what you do with it.”
Fate and Friendship
When Xochi and Ellen met little did they know they would form a unique bond. Together, these awesome friends have held each other up, provided comfort during difficult times, and navigated next steps in the journey of living with neuroendocrine cancer.
Letting Go and Looking Forward
Diagnosed with a pancreatic neuroendocrine tumor in 2014, Stacie’s first reaction was fear and anxiety. Then she found yoga, where she is strong, present, and in control. “You have to find something to be grateful for every day, because there is always something to be grateful for,” says Stacie.
Fear and Hope
Mack was devastated when he was diagnosed with carcinoid in 1997, especially when the doctor said, “You have cancer.” Fear was his initial reaction but his faith, a loving wife, wonderful friends, and becoming the leader of the neuroendocrine cancer support group in Georgia led him to living with the disease with hope and optimism.
A Lifetime of Commitment: Richard R.P. Warner, MD
Supported by his family and friends, Dr. Richard R.P. Warner founded the Carcinoid Cancer Foundation in 1968. “Over these past five decades, CCF has become an integral part of the support system that improves patients’ lives by providing information, connecting patients and doctors, by building and supporting patient communities and by promoting an environment that encourages further research. In fact, the goal of improving patients’ lives has driven everything we do,” says Dr. Warner.
With special thanks to the Society of Nuclear Medicine and Molecular Imaging for allowing us to share general and NET specific videos from the SNMMI 2017 Annual Meeting held in Denver, Colorado in June. Click here for more information about the 2017 Patient Education Day.
January 2016 Bay Area Neuroendocrine Tumor Patient Conference, hosted by UCSF Helen Diller Family Comprehensive Cancer Center in cooperation with NorCal CarciNET Community, the NET Research Foundation, and Stanford University Medical Center. Featured topics on the latest developments in NET research and treatment included treatment options, clinical trials and phase III results, nuclear medicine and molecular imaging as well as strategies for living with cancer. New this year was a Pre-Conference Primer on NETs for those who are newly diagnosed or who need a refresher on the basics of NETs. With special thanks to Josh Mailman and the guest presenters for sharing these videos.
New Jersey Carcinoid Cancer NETwork Conference, October 2015
Carcinoid/NETs: Living Longer, Living Better, a day-long conference sponsored by the New Jersey Carcinoid Cancer NETwork on October 3, 2015 shared information on a variety of topics for carcinoid/neuroendocrine tumor (NET) patients, caregivers, and all interested in learning more about NETs. Topics covered ranged from carcinoid heart disease and the role of diet for NET patients to an update in the diagnosis and management of neuroendocrine cancers and significant developments in NETs over the past two years. Patients also learned more about how to navigate their disease. The conference featured carcinoid/NET specialists Dr. Richard R.P. Warner and Dr. Thomas O’Dorisio, cardiologist Dr. Jerome Zacks, oncology nutritionist Leigh Anne Burns, and nurse practitioner Nancy Roehnelt.
The first video below is an introduction to the conference. Click here for the conference agenda. We are grateful to the guest speakers for sharing copies of their presentations to accompany the videos. These are not to be reproduced unless permission is granted by the speaker.
- Presentation by Dr. Jerome Zacks
- Presentation by Dr. Thomas O’Dorisio
- Presentation by Leigh Anne Burns
- Presentation by Nancy Roehnelt
- Presentation by Dr. Richard Warner
New Jersey Carcinoid Cancer NETwork Conference, November 2013
Carcinoid/NETs: Moving Forward, a day-long conference sponsored by the New Jersey Carcinoid Cancer NETwork on November 2, 2013, gave participants the opportunity to learn more about recent developments regarding these rare diseases; surgical treatment options, including what’s currently available and what will be coming next; how neuroendocrine tumors (NETs) are treated; what are the neuroendocrine symptoms and diseases associated with carcinoid; and everything you always wanted to know about PRRT (peptide receptor radionuclide therapy) but didn’t know who to ask. The conference featured carcinoid/NET specialists Dr. Richard R.P. Warner, Dr. Eric H. Liu, andDr. Yi-Zarn Wang, as well as endocrinologist Dr. Justina Deitz.
The first video below is an introduction to the conference and gives the patient, physician, and advocate perspectives on the value of attending carcinoid/NET conferences.
With deepest appreciation to the Carcinoid Cancer Texas Survivors Support Group for sponsoring, videotaping,and giving permission to the Carcinoid Cancer Foundation to share this special presentation featuring carcinoid/NET specialist Eric H. Liu, MD, Director of the Neuroendocrine Center at Vanderbilt University Medical Center in Nashville, Tennessee. “Neuroendocrine Cancer: Making Sense of the Disease”was held on June 8, 2013 at Baylor Hospital in Dallas, Texas.
Dr. Liu’s talk is shared here in 3 parts, with the last part being the Questions and Answers session.
The ABC’s of Carcinoid and Neuroendocrine Tumors
Faces of Hope
Surgery and Treatment Options: Carcinoid and Neuroendocrine Tumors
Why I Became Interested in Carcinoid/NETS
What prompted carcinoid and neuroendocrine tumor specialist Dr. Eugene Woltering to become interested in these rare cancers?
New Jersey Carcinoid Cancer Network conference
November 5, 2011
Carcinoid/NETs: Not Your Average Cancer
These videos are made possible through a collaborative effort of the New Jersey Carcinoid Cancer Network and the Carcinoid Cancer Foundation.
The symposium videos can be viewed here in order of presentation:
- Introduction and Welcome, Jim Weiveris and Judy Golz
- Richard R.P. Warner, MD (presentation is in two parts)
- Michael Soulen, MD
- Robert Fine, MD
- Guiseppe Condemi, MD
- Rodney Pommier, MD
- Q & A
CCF’s 14th Annual Carcinoid NETs Symposium
Mt. Sinai Medical Center, New York, NY
May 1, 2011
Neuroendocrine Tumor Management: The Era of Personalized Medicine
Read More about the Symposium.
Due to technical difficulties the question and answer period following Dr. Wolin’s presentation is not available in a video format.
The symposium videos can be viewed here in order of the presentations:
- Keith Warner
- Richard R.P. Warner, MD
- Edward M. Wolin, MD
- Eugene A. Woltering, MD
- Q & A with Dr. Woltering
- Patient Panel moderated by Gilles Frydman
International Carcinoid NET Conference and Symposium for Patients and Medical Professionals
Vancouver, British Columbia, Canada
May 13-16, 2010
With kind permission from the Canada NeuroEndocrine Tumor Society CNETS, we present NeuroEndocrine Cancers: Networks of Expertise. The conference featured distinguished neuroendocrine cancer experts from Canada, the United States, the United Kingdom, Ireland, the Netherlands, and Sweden. All lectures except for two are reproduced here. Those lectures will be released at a later date.
CCF’s 13th Annual Carcinoid NETs Symposium
Mt. Sinai Medical Center, New York
April 11, 2010
Determining Molecular Signature: A Guide for Targeted Therapy of Neuroendocrine Tumors
Imagine a treatment created just for you as a carcinoid or other neuroendocrine tumor patient based upon a personalized genomic analysis. This is the cutting-edge research which is the focus of the work of Michael J. Demeure, MD, MBA, and his team at TGen, the Translational Genomics Research Institute, based at the Virginia G. Piper Cancer Center, Scottsdale Healthcare, in Arizona. Dr. Demeure talked about this research when he was the guest speaker for the Carcinoid Cancer Foundation’s symposium.
CCF’s 12th Annual Carcinoid NETs Symposium
Mt Sinai Hospital New York, NY
ON THE CUTTING EDGE
The theme of the lectures were advances in surgical care for carcinoid and neuroendocrine tumors. The talk featured presentations by distinguished guest speakers Dr. Philip J. Boudreaux, Surgeon and Professor of Surgery at Louisiana State University Hospital School of Medicine (in Kenner, Louisiana) and Dr. Rodney F. Pommier, Surgeon and Professor of Surgery at Oregon Health Sciences University Cancer Institute (in Portland, Oregon).
With kind permission from the Canada Neuro-Endocrine Tumor Society CNETS, we present video recordings from their first International Carcinoid Neuroendocrine Conference for Patients and Medical Professionals in Toronto, Ontario, Canada on October 16 – 19, 2008
Video recordings of lectures from the Carcinoid Cancer Foundation’s (CCF) 11th Annual Carcinoid/NET’s Conference
“Progress in Research and Treatment”
April 13, 2008 at Mount Sinai Hospital New York, NY
Herbert Chen, MD, Madison, WI
Andrew S. Kennedy, MD, Cary, NC
Webcasts from NANETS’ first Professional Conference, February 8-9, 2008, Southampton, Bermuda.
Current Management Strategies
When NET diseases have advanced, what treatments are most effective? Experts in the field are continually improving treatment strategies and developing new approaches to symptom control.
- The 2007 North American Carcinoid-NeuroEndocrine Conference? For Patients and Physicians“Providing Empowerment of Knowledge Together For Life and the Quality of Life”
Thursday, September 27 – Sunday, September 30, 2007
Sheraton Waterside Norfolk Hotel
Norfolk, VirginiaView the conference recordings
- Carcinoids: The Slow Pace of Rapid ProgressApril 2007
Presented by the Carcinoid Cancer Foundation.
Mount Sinai Hospital, New York, NYThis conference was for patients, family, friends and medical professionals. Our guest speaker was Dr. Irvin M. Modlin from Yale University School of Medicine, New Haven, CT.
Most of the content of his presentation was recently published. Access the article
Additional medical journal publications by Dr. Modlin are available in abstract form from PUB MED
- 3rd Annual Carcinoid Cancer Awareness Network (CCAN) conference
November 11, 2006, Long Island, NY.Listen to Drs. Gerstein, Goldsmith,Woltering,Warner,Vinik and Gardner lecturing on “The Diagnosis and Treatment of Carcinoid Cancer / NET Tumors”View the conference recordings
Visit the CCAN website
- National Carcinoid/NETs conference in Portland, OR
September 2006 ?Portland, OR 2006
To view the conference recording, click here
Note: These video recordings can ONLY be viewed in Internet Explorer.Acknowledgment: Production of these video recordings was made possible by a generous educational grant from NOVARTIS ONCOLOGY.One full set of DVDs and CD-ROMS will be produced and distributed to all support groups in time. Please note that it is a very complex and time-consuming process to produce these video recordings and DVDs or CD-ROMS. Remember that when done you will have access to 30 lectures by the world’s leading carcinoid/NET specialists. We appreciate your patience.
This event was coordinated and executed by Kari Brendtro and Corie Dean from the Pacific Northwest (PNW) carcinoid/NET support group and cosponsored by The Carcinoid Cancer Foundation.
- Carcinoid/Neuroendocrine Tumors: Diagnosis and Treatment
Presented by the Carcinoid Cancer Foundation.
April 2, 2006 at Mount Sinai Hospital, NYCWhat’s Tried and True – What’s New?
A symposium for patients, caregivers, family, friends, & medical professionals
Guest Speaker: James C. Yao, MD, MD Anderson Cancer Center, Houston, TXAccess video recordings
- The National Carcinoid-NET Conference 2005 (For Patients)
was held on September 22, 23 and 24th in Philadelphia, PA
The Philadelphia Committee, in partnership with NAAPNET and the Carcinoid Cancer Awareness Network (CCAN), should be proud of this successful conference.View video recordings
- Living with Carcinoid 2005 – Hope for the Future
Metro New York Carcinoid Support Group
Drs. Richard Warner, Matthew Kulke and Shankar Vallabhajosula
MNYCSG Patient Conference – Sunday April 10, 2005
- Carcinoid Conference 2004 (video recording)
In New Orleans, LA
September 23-24, 2004
- This conference was designed to make patients with this rare disease aware of the most recent medical information concerning the diagnosis and management of their tumors. The fourteen speakers included the world experts on carcinoid and carcinoid syndrome.These individuals presented the latest, often unpublished, updates on these tumors.
- “This conference represents the cutting edge of medical information dispersal. Getting life saving information to patients with this exceedingly rare disease allows the patient to educate their local doctors rather than the usual paradigm in which physicians are the ones with the knowledge.”? Dr. Eugene Woltering of LSUHSC
Presentations by (1. Physicians in order of appearance): Drs. Larry Hollier, Eugene Woltering, Richard Warner, Thomas M. O’Dorisio, Lowell Anthony, Larry Kvols, Louis Linares, Daniel Frey, Jay Thomas, (2. other nonphysician contributors); Gregory Espenan; Mary Hardy; Barbara Schwerin,JD; Leigh Anne Geisler Burns, LDN/RD; Charles Kerwood )
- Carcinoid Treatment Today and Tomorrow:
Carcinoid Conference 2003
(for Carcinoid Patients, Caregivers, Family, and Friends) Coordinated by California Carcinoid Fighters (CalCF)
Saturday October 25, 2003
Santa Ana, CA
Larry Kvols MD, Kjell Öberg MD,Thomas O’Dorisio MD, Rodney Pommier MD, Richard Warner MD, Eugene Woltering MD
- Carcinoid Tumors and Carcinoid Syndrome: ?What they are, how they behave and how they are diagnosed
Presented by Richard R.P.Warner MD
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and? Clinical Associate Professor of Medicine, Weill Medical College of Cornell University , New York, NY, and Medical Director, Carcinoid Cancer Foundation, Inc.
- New Concepts in the Treatment of Carcinoid Turmors? What’s New, What’s Not, and What’s Hot
Presented by Eugene A. Woltering MD
James D. Rives Professor of Surgery and Neuroscience at Louisiana State University Health Sciences Center
Chief of the Sections of Surgical Endocrinology and Surgical Oncology
Director of Surgery Research at Louisiana State University
- Peptides and Amines: ?What are They and What do They do?
Presented by: Thomas M. O’Dorisio, M.D.
Professor: Department of Internal Medicine, ?Division of Endocrinology and Metabolism
University of Iowa
- The Role of Surgery and Chemobolization in the Management of Carcinoid
Presented by:? Rodney Pommier, MD, FACS
Associate Professor of Surgery, Division of General Surgery, Section of Surgical Oncology
Oregon Health Sciences University
- Carcinoid Case Presentation and Discussion – The American Perspective
Dr. Richard R P Warner
Department of Medicine, Gastrointestinal Division, The Mount Sinai School of Medicine,
One Gustave L. Levy Place, New York, NY 10029, USA
Presented at the ENET meeting in London, May 2003Abstract
The rationale underlying an aggressive approach in the management of some carcinoid patients is explained and illustrated by the presented case of a middle-aged man with advanced classic typical midgut carcinoid. The patient exhibited somatostatin receptor scintigraphy positive massive liver metastases, Carcinoid Syndrome, severe tricuspid and pulmonic cardiac valve disease with congestive heart failure, ascites, and malnutrition. He had been treated for several years with supportive medications and biotherapy including octreotide and alpha interferon but his tumor eventually progressed and his overall condition was markedly deteriorated when he first sought more aggressive treatment. This consisted of prompt replacement of both tricuspid and pulmonic valves, followed by hepatic artery chemoembolus injection and then surgical tumor debulking including excision of the primary tumor in the small intestine. In addition, radiofrequency ablation was utilized to reduce the volume of metastases in the liver. Prophylactic cholecystectomy was also performed and a biopsy of tumor was submitted for cell culture drug resistance testing. This was followed by systemic chemotherapy utilizing the drug (docetaxel) which the in vitro studies suggested as most likely to be effective. His excellent response to this succession of treatments exemplifies the successful application of aggressive sequential multi-modality therapy.
- Diagnosing and Treating Carcinoid
Transcript of lecture from the METRO NY Carcinoid Support Group meeting
Sunday, April 27, 2003
Mt Sinai Hospital, NY
The Dana-Farber Experience
Guest Speaker: Matthew Kulke MD,
Assistant Professor of Medicine Department of Medical Oncology
Dana-Farber Cancer Institute, Boston
- METRO NY Carcinoid Support Group Tri-State Meeting
January 13, 2002
Mount Sinai Hospital, NYC
2002 Annual Update and Review of Carcinoid Disease
Presented by Richard R.P.Warner MD
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
Clinical Associate Professor of Medicine, Weill Medical College of Cornell University, New York, NY, ?and Medical Director, Carcinoid Cancer Foundation, Inc.
- Carcinoid Wellness Conference
March 9, 2002
Memorial Medical Center
New Orleans, LA
- “Introduction to the Basic Sciences of Carcinoid”
Presented by Eugene Woltering MD FACS
The James D. Rives Professor of Surgery and Neuro Sciencece
Chief, Section of Surgical Endocrinology,
Director Of Surgical Research The Louisiana State Health Science Center, New Orleans, LA
- “Current Concepts in the Medical Treatment of Carcinoid”
Presented by Lowell Anthony MD
Louisiana State University Med. Center
- Carcinoid Symposium 2002
April 12-13, 2002
Coordinated by Dianne Comstock, R.N., M.Ed. and Rhonda Ryan RN
Made possible by an educational grant from Norvartis Oncology
- Carciniod Tumors and the Carcinoid Syndrome:?”What’s new in the therapeutic pipeline”
Presented by Larry K. Kvols MD
Professor of Medicine
H. Lee Moffitt Cancer Center & Research Institute, Tampa, FL
- Psychological Effects of Carcinoid Diseases: ?A study for Carcinoid Patients and their caregivers
Presented by Elizabeth Soliday, PhD and Suzanne Smith, PhD
- “Coping with Carcinoid Diarrhea”
Presented by Valerie Bennett, RN
- Understanding Biochemial Markers
Presented by Nancy Gardner, Ph.D., AR
- National Carcinoid Symposium 2000
May 11, 2000
Coordinated by Dianne Comstock, R.N., M.Ed.
Made possible by an educational grant from Norvartis Oncology and sponsored by the The Wellness Community-Southwest Florida
- “The Role of Sandostatin Analogue in the Reduction of Tumor Growth”
Presented by Eugene Woltering, M.D.
Louisiana State University Medical Center, New Orleans, Louisiana