Category: rare diseases

Clinical Trial for Patients with Advanced Pancreatic Neuroendocrine Tumors Shows Significant Improvement in Progression-Free Survival

An important development in the treatment of cancer patients with advanced pancreatic neuroendocrine tumors (pNET) was presented at the ESMO Conference:  12th World Congress on Gastrointestinal Cancer, held in Barcelona, Spain from June 30 through…

Happy 4th of July from The Carcinoid Cancer Foundation

ASCO Calendar of Hope — Call for Artwork

Carcinoid and neuroendocrine cancer patients, and cancer survivors of all ages, are invited by the American Society of Clinical Oncology (ASCO) to share their emotions through art and inspire hope in others.  ASCO is accepting artwork submissions …

Only 3 Days Left to Register for Carcinoid NET Patient Conference in California

There are only a few spots left and registration closes on July 5 for the 2010 San Francisco Carcinoid and Neuroendocrine Tumor Patient Conference, sponsored by InterScience Institute (ISI) and the Carcinoid Cancer Awareness Network (CCAN).  Join …

Take Them a Meal: How to Help a Carcinoid Patient

If you know a carcinoid cancer patient who has just had surgery or is feeling too ill to cook, here’s a great website to visit:  http://takethemameal.com.

TakeThemAMeal.com is a free online tool designed to coordinate the delivery of meals to someone …

Is It Irritable Bowel Syndrome or Carcinoid Cancer? Think Zebras, Not Horses

So often misdiagnosed as irritable bowel syndrome or Crohn’s disease, carcinoid cancer is a diagnosis where doctors are thinking zebras not horses.  The saying goes back to medical school when students are taught to consider the uncommon.  “Ninety-nine…

Advocacy Award Honors the Late Monica Warner of the Carcinoid Cancer Foundation: Call for Nominations

Novartis Oncology has announced its 2010 Warner Advocacy Award named in honor of Monica Warner, a driving force behind the Carcinoid Cancer Foundation for two decades and an extraordinary advocate for carcinoid and neuroendocrine tumor patients. …

Lung Carcinoid Survivor Runs Marathon in California

When Kenneth Todd asked his surgeon how the removal of his left lung would affect his daily activities, the surgeon told him he could do everything except run a marathon.  Mr. Todd, who had never previously been a runner, decided he had a new goal.  In 2006,…

Carcinoid Cancer Advocacy

For Heather Yohnka-Boettcher serving as an advocate for carcinoid cancer is her focus as a team captain in the American Cancer Society’s Relay for Life.  The 2010 Relay for Life of Van Buren West will be held on June 12 and 13 from 10:00 am to 10:00 am at Bangor…

Proclamation Heralds Worldwide Neuroendocrine Tumor (NET) Cancer Awareness Day: November 10, 2010

To raise greater awareness of neuroendocrine tumor (NET) cancers the first annual Worldwide NET Cancer Awareness Day is being planned for Wednesday, November 10, 2010.  In preparation for this unique day, a proclamation has been created by the World…