Category: rare diseases

Carcinoid & NET Patients: Free Webinar about Access to Health Care and Navigating Insurance

The Cancer Legal Resource Center  invites you to participate in a free 90-minute teleconference and webinar on “Access to Health Care and Navigating Insurance” to better understand the legal rights of health care consumers and how to become…

Carcinoid & Neuroendocrine Cancer Conference Presented by CCAN Now Online

If you missed the carcinoid and NET conference presented by the Carcinoid Cancer Awareness Network in November, you can now view it online.  And if you want to hear some great presentations again, click here.

The guest speakers and their presentations …

Advocacy Session New on Carcinoid Cancer & Neuroendocrine Tumor Conference Program in Canada

Carcinoid cancer and neuroendocrine tumor patients — learn more about being your own advocate during a special session to be held on Thursday, May 13th from 3 to 5 pm at the The Carcinoid NeuroEndocrine International Conference and Symposium for…

Free Education Workshops for Carcinoid Cancer & Neuroendocrine Tumor Patients

Carcinoid and neuroendocrine cancer patients have a wonderful resource in CancerCare, a national nonprofit organization that provides free, professional support services for anyone affected by cancer.  “CancerCare’s free Connect® Education …

Highlights of International Carcinoid & Neuroendocrine Tumor Conference in Vancouver, Canada

Carcinoid cancer and neuroendocrine tumor specialists from around the world, fascinating lectures on all aspects of these rare diseases, the opportunity to meet fellow carcinoid/NET patients and caregivers from near and far – these are all features…

Clinical Trial Recruiting Neuroendocrine Tumor Patients with Pheochromocytoma or Paraganglioma

Neuroendocrine tumor patients with malignant pheochromocytoma or paraganglioma are being sought for a multi-center clinical trial conducted by Molecular Insight Pharmaceuticals, Inc. In the New York area, one of the clinical trial sites is the Mount…

Canadian Report Card on Cancer Features Carcinoid and Neuroendocrine Cancers

An article by Maureen Coleman, President of the Carcinoid Neuro-Endocrine Tumour Society (CNETS) Canada www.cnetscanada.org, on carcinoid and neuroendocrine cancers is featured in the rare cancers section of the 2009-2010 Report Card on Cancer …

Carcinoid Cancer Foundation Salutes CCAN

As we enjoy the holiday season and prepare for the New Year, it is also a time to reflect upon the past year and to recognize those individuals who go above and beyond on a daily basis to improve the lives of carcinoid cancer/neuroendocrine tumor patients …

How Do I Find a Carcinoid/NET Doctor?

“How can I find a doctor who knows how to diagnose or treat carcinoid?” is one of the most frequent questions we hear from callers to our information/support line.  And we can help you.  There are carcinoid/neuroendocrine tumor (NET) specialists…