Category: rare diseases

Tannis Brown, pheochromocytoma patient, to be featured on Discovery Fit & Health TV show

Neuroendocrine Cancer Survivor Featured on Discovery Fit & Health TV Show

July 8, 2012

THIS JUST IN:  Tannis Brown, a pheochromocytoma patient and Vice President of the Pheo Para Troopers, will be featured on the Discovery Fit & Health Network on Monday, July 9 in a program titled Diagnosis: Dead or Alive.* The 60 minute show will focus…

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American Multiple Endocrine Neoplasia Support and Mayo Clinic sponsor MEN Seminar

Multiple Endocrine Neoplasia (MEN) Type 1 Seminar Scheduled for June 2012 at Mayo Clinic

March 29, 2012

MEN, carcinoid, and neuroendocrine cancer patients, family members, caregivers, advocacy groups, physicians, and healthcare professionals are invited to attend the Multiple Endocrine Neoplasia Type 1 Seminar presented by American Multiple Endocrine

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Carcinoid Car is Finalist in Sponsafier Competition

Racing for a Cause: Carcinoid Car Selected as Finalist in Sponsafier Competition!

October 5, 2011

Fantastic news!  The top ten finalists have been announced and the CARCINOID CAR is a Finalist in the Sponsafier competition! There are 15 days left to vote for the next Sponsafier Champion We need your help – please vote every day from today, October

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New Feature for Medical Professionals on Carcinoid Cancer Foundation Website

September 5, 2011

The Carcinoid Cancer Foundation is pleased to announce that a new feature for the medical community has been added to its website, www.carcinoid.org.  The section is entitled Continuing Medical Education (CME)  Upcoming events include:

  • The Penn
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Toby and Stephanie Plank with their daughters Katelyn and Mackenzie

Colorado Golf Tournament to Benefit Carcinoid Cancer Foundation and High School Scholarship Fund

August 8, 2011

If you love golf, want to support the Carcinoid Cancer Foundation, and are in the Denver, Colorado, area on Saturday, September 24, 2011, please sign up for The Toby Plank Memorial Golf Tournament. The tournament will be held in memory of Toby M. Plank, …

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Clincial trial for carcinoid patients

Phase II Clinical Trial Recruiting Carcinoid and Related Neuroendocrine Tumor Patients

July 21, 2011

Participants are being recruited for a Phase II clinical study of capecitabine and temozolomide (CAPTEM) for neuroendocrine cancer patients with progressive, differentiated, metastatic neuroendocrine tumors (NETs). Patients with carcinoid,

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Carcinoid Cancer Awareness Network (CCAN)

9 Conferences for the Carcinoid and Neuroendocrine Tumor Community

July 19, 2011

If you are a carcinoid or NET cancer survivor, caregiver, family member or medical professional you can learn about what’s happening now and what’s new in carcinoid/NETs treatments, clinical trials, research, and more from specialists…

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Music for the Carcinoid and Neuroendocrine Tumor Community

June 30, 2011

What music has been important to you on your journey as a carcinoid neuroendocrine tumor survivor?  We asked this question on the Carcinoid Cancer Foundation’s Facebook page and got a wonderful variety of responses that we are sharing here with videos…

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The late Monica Warner of The Carcinoid Cancer Foundation

Call for Nominations: 2011 Warner Advocacy Award

June 29, 2011

Novartis Oncology has announced its 2011 Warner Advocacy Award named in honor of Monica Warner, a driving force behind the Carcinoid Cancer Foundation for two decades and an extraordinary advocate for carcinoid and neuroendocrine tumor survivors. …

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Worldwide NET Cancer Awareness Day Updates

June 21, 2011

With less than five months until the second Worldwide NET Cancer Awareness Day on Thursday, November 10, 2011, there have been many exciting developments to share with the carcinoid and NET community.

The first Chinese NET website (www.net.org.tw) …

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