Category: rare diseases

Worldwide NET Cancer Awareness Day Updates

With less than five months until the second Worldwide NET Cancer Awareness Day on Thursday, November 10, 2011, there have been many exciting developments to share with the carcinoid and NET community.

The first Chinese NET website (www.net.org.tw) …

Up-to-the-Minute: News for the Carcinoid and Neuroendocrine Tumor Community

The first device that simultaneously performs PET and MRI scans, a new alpha-emitter-based therapy for NET cancer patients with progressive therapy-resistant tumors, the first–ever randomized virtual clinical trial, over 100  abstracts on carcinoid…

6 iPhone, Droid, BlackBerry, and iPad Apps for Carcinoid Patients and Physicians

A new iPhone app from ASCO, an app from 3M for physicians to help them manage and keep track of patient data, and the American Cancer Society’s Journals app are some of the newest mobile apps in the areas of medicine and healthcare.  For carcinoid and neuroendocrine…

Carcinoid Cancer Foundation Thanks Symposium Sponsors

There’s still time to register for the Carcinoid Cancer Foundation’s 14th annual  symposium for patients, family, friends, and healthcare professionals, which will be held on Sunday, May 1st at Mount Sinai Medical Center in New York City.  The Foundation…

1st World Congress on Gallium-68 and Peptide Receptor Radionuclide Therapy (PRRNT)

Since 1997, when he first used the radiolabeled peptide Y-90 DOTATOC (a somatostatin analogue) to treat a 15-year-old boy with a rare neuroendocrine tumor, called paraganglioma, and saw the boy go from being wheelchair-bound and in terrible pain to …

Multiple Endocrine Neoplasia (MEN) Seminar Scheduled for September 2011 at Mayo Clinic

SPECIAL NOTE:  This seminar has been cancelled but may be rescheduled at a later date in a different format.  We will post any updates we  receive.

__________________________________________________________________

MEN, carcinoid, and neuroendocrine…

CNETS Canada Presents 2011 Halifax Neuroendocrine Conference for Patients and Medical Professionals

Carcinoid and neuroendocrine tumor patients and medical professionals are invited to attend the 2011 Halifax Conference, presented by the Canadian Neuroendocrine Tumour Society (CNETS). The conference will be held on Saturday, May 7 at the beautiful…

Carcinoid Cancer Foundation to Speak on Behalf of NET Cancer Patients at April 12, 2011 FDA Oncologic Drugs Advisory Committee Meeting

Grace Goldstein, Chief Operating Officer of the Carcinoid Cancer Foundation, will speak at the Open Public Hearing segment during the U.S. Food and Drug Administration’s (FDA) Oncologic Drugs Advisory Committee Meeting on April 12, 2011 in Silver …

Neuroendocrine Tumors Featured on Healthy Body, Healthy Mind Television Series

For a comprehensive overview of neuroendocrine tumors, watch this fascinating video on the Healthy Body, Healthy Mind television series. Every episode on the health and wellness TV series focuses on the stories of real people; people who are working…

WebMD Articles Raise Awareness about Carcinoid Cancer

Understanding carcinoid tumors, carcinoid syndrome, and treatments for carcinoid when surgery is not an option are the focus of three feature articles by Ellen Greenlaw on WebMD.com this month.  For these articles, Ms. Greenlaw sought the expertise…