Category: rare diseases

astor crown plaza new orleans

2012 National Carcinoid & NETs Conference: Save the Date

September 24, 2010

Dr. Eugene A. Woltering, the Carcinoid Cancer Awareness Network (CCAN), and the New Orleans Neuroendocrine Tumor Specialist team at Ochsner Medical Center – Kenner in Louisiana have announced the dates for the 2012 National Carcinoid/NETs Conference

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arthur t sands md phd president and chief executive officer lexicon pharmaceuticals5

Lexicon Pharmaceuticals, Inc. Clinical Trial Recruiting Carcinoid Syndrome Patients

September 10, 2010

Patients with carcinoid syndrome, whose symptoms are not managed by octreotide therapy, are being recruited for a Phase 2 clinical trial of Lexicon Pharmaceuticals’ LX1606 (a.k.a. LX1032).  The trial has been given Fast Track status in the U.S. and …

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ebrahim s delpassand md facnm

FDA Approves Novel Radio-peptide Targeted Therapy Clinical Trial for Neuroendocrine Cancer: PRRT (Peptide Receptor Radionuclide Therapy)

August 24, 2010

For the first time in North America, neuroendocrine cancer patients will have the opportunity to participate in a clinical trial of Lutetieum-177 (LU-177)with Octreotate. Ebrahim S. Delpassand, MD, chief executive officer and medical director of…

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medwatcher1

10 More iPhone Apps for Patients and Physicians

August 21, 2010

If you are a carcinoid or neuroendocrine cancer iPhone user, a healthcare provider who treats carcinoid/NETs patients, or a medical student, here are 10 more iPhone apps that will give you information about everything from new drug warnings to places…

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worldwide net cancer awareness day ribbon

Worldwide NET (Neuroendocrine Tumor) Cancer Awareness Day Website Goes Live

August 19, 2010

A new website, www.netcancerday.org, has just gone live to launch an international campaign to bring about greater awareness of neuroendocrine cancers.  The first Worldwide NET Cancer Awareness Day (WNCAD) will take place on November 10, 2010.  The…

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cancer services of new mexico spring 2010 family cancer retreat

Carcinoid and Neuroendocrine Cancer Survivors of New Mexico Invited to Family Cancer Retreat

August 16, 2010

Adult carcinoid and NET cancer patients/survivors and their primary caregivers are invited to attend the Cancer Services of New Mexico’s Fall 2010 Family Cancer Retreat from September 24 to 26 in Glorieta, New Mexico.  This is a free educational program…

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marlena johnston and partner gary hull

Carcinoid Cancer Foundation Welcomes Channeling Jackie-O

August 10, 2010

When Marlena Johnston was first diagnosed with carcinoid cancer of the appendix in April 2010, she went to the Carcinoid Cancer Foundation’s website and embarked on a journey to learn all she could about her rare disease.  She began with Newly Diagnosed:

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Fructose vs. Glucose: The Effect of Sugars on Cancer Cells

August 9, 2010

All sugars are not the same when it comes to cancer cells, according to a newly published study by Dr. Anthony Heaney, endocrinologist and neuroendocrine tumor specialist, and his colleagues at UCLA.  The study found that fructose caused pancreatic …

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sanofi gomeals iphone app

12 iPhone Apps for Patients and Physicians

July 27, 2010

For carcinoid and neuroendocrine cancer iPhone users there are many resources for you as a patient or for your physician that have been created by big pharmaceutical companies around the world.  These pharma companies include Novartis, Pfizer, Merck

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runjan chetty

Goblet Cell Carcinoid: New Article in the World Journal of Gastrointestinal Oncology

July 9, 2010

“Goblet Cell Carcinoid Tumors of the Appendix: An Overview,” by Paromita Roy, Department of Pathology at the University of Toronto in Canada, and Runjan Chetty, Department of Pathology at the University of Glasgow in Scotland, has been published in …

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