Category: rare diseases
Study to Evaluate Families with History of Carcinoid Cancer
The Natural History of Familial Carcinoid Tumor is recruiting participants who are interested in being part of a study that will “evaluate families with a history of carcinoid cancer to determine ways to improve early detection and to find the gene that…
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New Zebra Awareness Item to Benefit Carcinoid Cancer Foundation
A new zebra amulet necklace is now available from the Barking Zebra (www.barkingzebra.net). Enter the Zebra Room to see this lovely, delicate zebra which comes with a bright sterling silver chain, either 16” or 18” in length. $5.00 from the sale of each…
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YMCA/Rocky Gap Triathlon in Maryland Supports Carcinoid Cancer Foundation
Thanks to the extraordinary generosity of the Cumberland YMCA in Maryland, the YMCA/Rocky Gap Triathlon, and a carcinoid patient and her family, the Carcinoid Cancer Foundation is one of three charitable organizations being supported by the June 5,…
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Carcinoid & Neuroendocrine Tumor Patients Invited to FDA Public Hearing
For carcinoid and neuroendocrine tumor patients who would like their voices to be heard regarding the Food and Drug Administration’s (FDA) regulation of drugs, biologics, and devices for the diagnosis and treatment of rare diseases, you are invited…
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Inspiration for Carcinoid and Neuroendocrine Cancer Patients
If you are a carcinoid or neuroendocrine cancer patient seeking inspiration, there is a wonderful article in the Spring 2010 issue of Cancer Fighters Thrive TM entitled, “Dr. Bernie Siegel’s Very Simple Secrets of Happiness,” by Bernie S. Siegel, MD,…
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Y-90 Radiomicrosphere Therapy Workshop To Be Offered in Florida
Carcinoid and neuroendocrine cancer patients interested in learning more about Y-90 radiomicrosphere therapy can join physicians, scientists, and technologists for a workshop being presented by “Advances in Minimally Invasive Treatments” International…
READ MORE13th Anniversary of First Carcinoid Patient Website: Kudos to Susan Anderson
When she was finally diagnosed with carcinoid cancer in 1995, Susan Anderson had already spent 8 years trying to find out what was the cause of her “anemia,” pain, and losing 62 pounds in 6 months. Little did she realize that diagnosis would also result …
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Multiple Endocrine Neoplasias (MEN) Patient Education Conference to Be Held at MD Anderson Cancer Center in June
MEN, carcinoid, and neuroendocrine tumor patients, family members, advocacy groups, physicians, and caregivers are invited to attend MD Anderson Cancer Center’s Multiple Endocrine Neoplasias Patient Education Conference on Saturday, June 26,…
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Zebra Medical ID Bracelets and Chains for Carcinoid & Neuroendocrine Tumor Patients
Consider the situation – you have carcinoid or another neuroendocrine cancer and you have a medical emergency, perhaps you go into carcinoid crisis or you can’t speak. A medical ID bracelet or charm may save your life. You can buy zebra-striped medical…
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2010 California & Virginia Carcinoid and Neuroendocrine Tumor Patient Conferences: Registration Is Now Open
InterScience Institute (ISI) and the Carcinoid Cancer Awareness Network (CCAN) are presenting their first joint conferences for carcinoid and neuroendocrine cancer patients on Saturday, July 17, 2010 in San Francisco, California, and on Saturday,…
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