Category: rare diseases

Carcinoid Cancer Foundation Thanks Steve Jobs for Bringing about Greater Awareness of Neuroendocrine Cancers

Since the announcement was made earlier this month that Apple’s CEO Steve Jobs would be taking a medical leave of absence there has been significant media coverage about pancreatic neuroendocrine tumors, NET cancer, and carcinoid.  Although…

Carcinoid Cancer Foundation Asks You to Help Support Rare Disease Day: Write Your Reps Campaign

Carcinoid patients, physicians, family, friends and colleagues can help support Rare Disease Day 2011 by participating in NORD’s Write Your Reps Campaign.  NORD (National Organization for Rare Diseases) and its advocacy partners have worked with…

Steve Jobs to Take New Medical Leave from Apple

Steve Jobs, CEO and co-founder of Apple and the most well-known member of the carcinoid and neuroendocrine tumor community, is taking a new medical leave of absence.  This announcement was reported today, January 17, 2011, by The New York Times, a year…

Carcinoid Cancer Featured in ASCO 2011 Expressions of Hope Calendar

Carcinoid cancer is the focus of the April calendar page for the 2011 Expressions of Hope calendar published by the ASCO (American Society of Clinical Oncology) Cancer Foundation. The calendar illustrations have been created by cancer patients, family…

16th US Governor Supports NET Cancer Awareness

Deval L. Patrick, Governor of Massachusetts, is the 16th United States governor to support carcinoid and neuroendocrine tumor (NET) cancer awareness.  In his proclamation of December 24, 2010 declaring November 2010 NET Cancer Awareness Month, Governor…

Videos from 2010 Vancouver International Carcinoid & NET Cancer Conference Now Online

Maureen Coleman, President of CNETS Canada, has announced that videos from the May 2010 international carcinoid and NET cancer conference for patients and medical professionals are now online at http://cnetscanada.org.  According to Ms. Coleman,…

10 Resources for Carcinoid Cancer Patients

For carcinoid cancer patients who are feeling too ill to cook, shop or clean; for those who have experienced hair loss due to chemotherapy; or need lodging when traveling to cancer treatments there are some wonderful resources available.

Cleaning for…

United States Governors Supporting NET Cancer Awareness Now Total 15

Iowa Governor Chet Culver, Kansas Governor Mark Parkinson, and Oklahoma Governor Brad Henry have each named November 10th as NET Cancer Awareness Day in support of the global campaign for greater awareness about carcinoid and NET cancers.  With the …

12th United States Governor Supports NET Cancer Awareness

Jim Doyle, Governor of Wisconsin, is the 12th United States governor to join in the global campaign for NET Cancer Awareness.  Governor Doyle named November 10th Worldwide NET Cancer Awareness Day.

Nearly 4,400 people have signed the Proclamation…

California Governor Calls for Increased NET Cancer Awareness & Research

Governor Arnold Schwarzenegger of California is the 11th United States Governor to support NET cancer awareness.  In his November 10, 2010 letter to the Northern California Neuroendocrine Cancer Fighters, a support group for carcinoid and NET cancer…