9 Conferences for the Carcinoid and Neuroendocrine Tumor Community

If you are a carcinoid or NET cancer survivor, caregiver, family member or medical professional you can learn about what’s happening now and what’s new in carcinoid/NETs treatments, clinical trials, research, and more from specialists throughout the country. Between August and November 2011 there are 9 conferences from the East Coast to the West Coast. Registration is quickly filling for many of these conferences, save your spot today!

August 2011

Carcinoid Cancer Awareness Network (CCAN)The Carcinoid Cancer Awareness Network’s (CCAN) 7th Annual Long Island (NY) Patient Conference will be held on Saturday, August 20th. The guest speakers and their topics are:

Dr. Hal Gerstein, Prioritizing Treatment Options for NET Cancer Patients
Dr. Steven Libutti, What Is the Role of Surgery in NET Cancer?
Dr. Patrick C. Malloy, Neuroendocrine Tumors: Recognition, Potential New Therapies and a Look at the Future
Dr. Thomas O’Dorisio, Choosing Options of Care and the Value of Tumor Markers in the Process
Dr. Ebrahim Delpassand, What’s New in PRRT Treatments?

The day-long conference begins at 8:00 am at the Holiday Inn in Carle Place.

September 2011

Stanford, California; Philadelphia, Pennsylvania; and Indianapolis, Indiana are the sites for three conferences in September.

Palo Alto Moonlight Walk and RunThe Stanford Neuroendocrine Tumor Patient Education Weekend begins on Friday, September 9th with the Palo Alto Moonlight Walk & Run.  Cheer on Team CFCF as the team walks or runs 5K or 10K loop courses over the Palo Alto Baylands levee, through the marshslands. Caring for Carcinoid Foundation and the Stanford Cancer Center will present a NET patient education conference on Saturday, September 10th at Stanford University.  Among the topics to be covered are Surgery for NETs by Dr. Jeffrey Norton, Carcinoid Syndrome:  Complications and Management by Dr. Emily Bergsland and Nutrition What to Eat and Why by dietitian Greta Macaire.


Caring for Carcinoid Foundation (CFCF) and the Penn Medicine’s Abramson Cancer Center will present Focus on Neuroendocrine Tumors – Patient & Caregiver Conference on Friday, September 16 at the Hilton Hotel in Philadelphia.

Among the topics to be covered are Tumor Markers and Pathology, Surgical Management of GI NET Tumors, Surgical Management of Bronchial Carcinoids, Liver-Directed Therapies for NETs, MIBG and PRRT, and Pancreatic NET Genome Project.  The program will include a patient panel and a session focused on caregivers.

For the first time, CFCF we will offer a live stream of the conference online. You can even join in the discussions with neuroendocrine cancer experts during a live webchat. Reserve your spot and ask your questions.


The Carcinoid Cancer Awareness Network (CCAN), Inter Science Institute and Ochsner Medical Center in Kenner, Louisiana are presenting two NET Cancer Patient Conferences in 2011. The first is on Saturday, September 17th at the Hyatt Regency in Indianapolis, Indiana.  The same conference will also be presented on Saturday, October 15 in Dallas, Texas.

Inter Science Institute

The physician guest speakers and their topics for the two conferences are:

Dr. Lowell Anthony, New Approaches to the Medical Treatment of  NETS
Dr. J. Philip Boudreaux, What’s New and Novel in NETs Surgery
Dr. Thomas O’Dorisio, The Developing Role of Ga-68 Scanning and PRRT
Dr. Aaron Vinik, Evaluation and Treatment of Pancreatic NETs
Dr. Eugene Woltering, Personalized Approaches to NET Care

The September event will begin on Friday, September 16 at the Hyatt Regency from 6:30 to 10 pm when the Indy Carcinoid Awareness Network (ICAN) hosts A Rare Affair with an evening of appetizers, wonderful desserts, wines, entertainment and a silent auction fundraiser that will benefit CCAN.

While attending the conference, guests can enjoy the many wonderful attractions of downtown Indianapolis including a world class zoo, the Indianapolis Museum of Art, the largest children’s museum in the world, the Indy Irish Festival and the inaugural Wix Filters Speedway Nationals at the famed Indianapolis Motor Speedway, featuring over 4,000 rods, customs, classics and muscle cars thru ’72.
Indianapolis Zoo


October 2011
CCAN, Inter Science Institute, and Ochsner Medical Center will present the second NET Cancer Patient Conference on Saturday, October 15 at the DoubleTree Dallas Hotel near the Galleria. There are over 200 restaurants, theaters, shopping and entertainment venues in the immediate area.  From Cowboys Stadium to Southfork Ranch; downtown entertainment districts like the West End and Deep Ellum; family favorites like Hawaiian Falls Adventure Park or Six Flags over Texas, enjoy the many wonderful offerings of this magnificent city.

Ochsner Medical Center, Kenner Neuroendocrine Tumor Program Team

Neuroendocrine Tumor Program Team at Ochsner Medical Center, Kenner

The program and guest speakers for the conference will be the same as the September 17th conference.

The 2011 Pheochromocytoma & Paraganglioma Symposium will take place on Thursday, October 16 from 8 am to 4 pm at Lake Land College in Matoon, Illinois. A day-long symposium, this program is designed for pheochromocytoma and paraganglioma patients, healthcare providers, students, and community members.  Among the topics to be discussed are diagnostic imaging, cell histology, liver transplant, SDHD mutations, pheo during pregnancy, familial paraganglioma, treatments, pheo with cardiac ablation, and homeopathic treatment of adrenal disease.


North American NeuroEndocrine Tumor Society (NANETS)NET Diagnosis and Treatment:  A New Era — A New Direction is the focus of the North American NeuroEndocrine Tumor Society’s (NANETS) 2011 symposium.  Accreditation for the symposium is made possible by the joint sponsorship of the University of Texas, MD Anderson Cancer Center and NANETS. The symposium will be held in Minneapolis, Minnesota from October 20 to October 22. This forum is designed for physicians and other health professionals from a variety of practice settings and levels including the specialties of oncology, endocrinology, surgery, pathology, internal medicine, gastroenterology, research, diagnostic radiology, interventional radiology, pulmonology, nuclear medicine, and primary care.

Among the agenda topics are a special session for Young Investigators; sessions on Standards of Care and Guidelines Update and Collaborative Partnerships in the NET Community; educational sessions including Pulmonary NETs, Clinical Management of MEN 1, Improving Long Term Management of NET Patients, and Current Development in Systemic Therapies for Tumor & Symptom Control; abstracts on Basic/Translational Research and Clinical Research; and case presentations.

Is your healthcare professional a member of NANETS?  For membership information, CLICK HERE.

University of Texas, MD Anderson Cancer Center & NANETS sponsor symposium

November 2011
Carcinoid/NETs:  Not your average cancer . . . is a day-long conference for patients, caregivers, family members, and medical professionals, sponsored by the New Jersey Carcinoid Cancer Network. The Saturday, November 5th conference will be held at the Crowne Plaza in Edison, New Jersey. The guest speakers will be:

Dr. Richard Warner, the “guru” of carcinoid/NETs, Professor of Medicine, Mt. Sinai Medical Center, New York City; Medical Director, Carcinoid Cancer Foundation
Dr. Michael Soulen, Professor of Radiology, Penn Presbyterian Medical Center; Interventional Radiology, University of Pennsylvania
Dr. Giuseppe Condemi, Holy Name Hospital Cancer Center, New Jersey
Dr. Rodney Pommier, Professor of Surgery, Oregon Health & Science Center


Worldwide NET Cancer Awareness Day

The second annual Worldwide NET Cancer Awareness Day will be held on November 10, 2011, Please visit www.netcancerday.org for more information.

Learn more about neuroendocrine cancer research and clinical care when the Caring for Carcinoid Foundation presents an event on Friday, November 11th for patients at the University of Texas, MD Anderson Cancer Center in Houston in conjunction with Worldwide NET Cancer Awareness Day.  Attendees will be able to interact with physicians, researchers, and other patients and their families at formal panels as well as during meals.

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