Tag: rare diseases

monica20warner2023

8th Annual Warner Advocacy Award: Call for Nominations

November 14, 2017

Novartis Oncology and The NET Alliance have announced that nominations are open for the 8th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize …

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Patient Education on Carcinoid Syndrome: From Diagnosis to Treatment

February 17, 2017

A Live Online Event on Wednesday, March 1, 11 am to 12 noon Eastern Standard Time

Ask Your Questions during the Live Program or Submit Them in Advance

Cancer Coach Live, in partnership with the Carcinoid Cancer Foundation, is presenting a special patient…

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Neuroendocrine Tumors to Be Focus of Presentations and Posters at ASCO Gastrointestinal Cancers Symposium

January 14, 2016

Presentations on recent advances in the treatment of neuroendocrine tumors (NETs) and new findings from the NETTER-1 clinical study on PRRT with Lutathera along with posters on a wide variety of subjects about NETs will be part of the program during the…

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Lexicon’s Carcinoid Syndrome Treatment Meets Primary Endpoint in Phase III Clinical Trial

August 5, 2015

Lexicon Pharmaceuticals Inc. has announced that the pivotal phase III clinical trial, TELESTAR, of its oral drug candidate telotristat etiprate met the primary endpoint in treating cancer patients with carcinoid syndrome that is not adequately controlled…

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warner advocacy award 2015 deadline for submissions

Call for Nominations: 6th Annual Warner Advocacy Award

July 30, 2015

Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? Novartis Oncology and The NET Alliance are searching for an outstanding NET patient advocate to recognize and honor with the 6th Annual Warner Advocacy

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15 Videos from the 3rd Theranostics World Congress

May 14, 2015

The 3rd Theranostics World Congress featured a patient education day on Saturday, March 14, made possible with support from the Carcinoid Cancer Foundation and the Caring for Carcinoid Foundation. The NorCal CarciNET Community provided funding to…

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carcinoid net specialists collage 2015

March 30 Is National Doctors’ Day

March 29, 2015

March 30 is NATIONAL DOCTORS’ DAY. In recognition of carcinoid/neuroendocrine tumor (NET) doctors – you are our heroes and superheroes!! Pictured are some of the NET specialists throughout the United States.

Pictured by columns, left to right, top …

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Breaking News: US FDA Approves Lanreotide for Gastroenteropancreatic Neuroendocrine Tumors

December 16, 2014

December 16, 2014: The US Food and Drug Administration (FDA) today approved “lanreotide (Somatuline Depot Injection, Ipsen Pharma) for the treatment of patients with unresectable, well or moderately differentiated, locally advanced or metastatic

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1st Annual Tommyland Invitational Charity Golf Tournament to Benefit Carcinoid Cancer Foundation

August 25, 2014

The 1st Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held at Schneiter’s Riverside Golf Course in Riverdale, Utah on Sunday, September 14th. The tournament is being held in memory of …

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Clinical Trial for GI Carcinoid Patients Recruiting Through September

July 23, 2014

Gastrointestinal carcinoid patients who have tumors that either are not suitable for standard treatment or are not responding to standard treatment have the opportunity to enroll in a Phase I/II clinical trial conducted by Tekmira Pharmaceuticals

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