Tag: rare diseases

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Carcinoid & Neuroendocrine Tumor Patients Invited to FDA Public Hearing

May 16, 2010

For carcinoid and neuroendocrine tumor patients who would like their voices to be heard regarding the Food and Drug Administration’s (FDA) regulation of drugs, biologics, and devices for the diagnosis and treatment of rare diseases, you are invited…

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Cancer Legal Resource Center

Carcinoid & NET Patients: Free Webinar about Access to Health Care and Navigating Insurance

April 17, 2010

The Cancer Legal Resource Center  invites you to participate in a free 90-minute teleconference and webinar on “Access to Health Care and Navigating Insurance” to better understand the legal rights of health care consumers and how to become…

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Clinical Trial Recruiting Neuroendocrine Tumor Patients with Pheochromocytoma or Paraganglioma

March 28, 2010

Neuroendocrine tumor patients with malignant pheochromocytoma or paraganglioma are being sought for a multi-center clinical trial conducted by Molecular Insight Pharmaceuticals, Inc. In the New York area, one of the clinical trial sites is the Mount

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Neuroendocrine Tumor and Carcinoid Cancer Patients: Please Participate in This Poll

March 26, 2010

The Carcinoid Neuroendocrine Tumor Society of Singapore (CNETS Singapore) has created a one question poll on NET Patient Misdiagnosis.  We need your help and only 60 seconds of your time to hit the 200 mark for responses to the poll.  There are already …

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Canadian Report Card on Cancer Features Carcinoid and Neuroendocrine Cancers

March 26, 2010

An article by Maureen Coleman, President of the Carcinoid Neuro-Endocrine Tumour Society (CNETS) Canada www.cnetscanada.org, on carcinoid and neuroendocrine cancers is featured in the rare cancers section of the 2009-2010 Report Card on Cancer

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Worldwide Neuroendocrine Tumor (NET) Cancer Awareness Day: November 10, 2010

March 16, 2010

An extraordinary, first of its kind event is planned for November 10, 2010: Worldwide NET (neuroendocrine tumor) Cancer Awareness Day.  Leaders of carcinoid/NET patient support and advocacy groups from throughout the world have been brought together…

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Silja Chouquet

Carcinoid Cancer Foundation Thanks Silja Chouquet

March 14, 2010

During a recent meeting in Berlin of the international Steering Committee for Worldwide NET Cancer Awareness Day (WNCAD) on November 10, 2010, Grace Goldstein of the Carcinoid Cancer Foundation had the opportunity to hear a fascinating presentation…

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