Tag: rare diseases

Eugene Woltering, MD

Carcinoid and Neuroendocrine Tumor Specialist Dr. Eugene A. Woltering Named Chair of AJCC Expert Panel

April 8, 2014

Eugene A. Woltering, MD, The James D. Rives Professor of Surgery and Neuroscience and Director of Surgical Research at LSU Health Sciences Center/Ochsner in Kenner, Louisiana, has been selected to serve as Chair of the Neuroendocrine Tumors (NETs)

READ MORE
CCF, CFCF combined logo

First Ever Global Survey for Carcinoid & Neuroendocrine Tumor (NET) Patients

March 3, 2014

Participate in the first ever global survey specifically focused on NET (neuroendocrine tumor) cancer!

Please help the Carcinoid Cancer Foundation and the Caring for Carcinoid Foundation – both members of the International Neuroendocrine Cancer

READ MORE
Charlotte NC collage_2

2014 National NET Cancer Patient Conference — Registration Now Open

January 30, 2014

Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers and family members, as well as physicians and other health professionals, have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis…

READ MORE
Hands and smartphone

Mobile Survey for Carcinoid Syndrome Community

January 16, 2014

Carcinoid syndrome patients, caregivers, and advocates in the carcinoid syndrome community are invited to participate in an exclusive mobile survey being conducted by WEGO Health via Truvio.

WEGO Health is an organization committed to empowering…

READ MORE
Jim Weiveris

10 Highlights of the Year 2013 for the Carcinoid and Neuroendocrine Tumor Community

December 18, 2013

As the Carcinoid Cancer Foundation looks back on the year 2013, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

READ MORE
Telotristat Etiprate Clinical Trial

Discover Something New in Carcinoid Syndrome

November 11, 2013

For patients who suffer from carcinoid syndrome – with symptoms such as diarrhea, frequent bowel movements, abdominal pain, and flushing – that is not adequately controlled by their current somatostatin analog therapy, there is an opportunity to participate…

READ MORE
Richard R.P. Warner, MD

New Jersey Carcinoid Cancer NETwork Conference in November, Registration through October 16

October 2, 2013

Three of the country’s leading carcinoid and neuroendocrine cancer specialists will be featured speakers for the New Jersey Carcinoid Cancer NETwork Conference. to be held on Saturday, November 2, 2013 at the Crowne Plaza in Edison, New Jersey.  Carcinoid/NETs: 

READ MORE
Dean Paras

2nd Annual Dean Paras Memorial Cross Country Run/Walk for Neuroendocrine Cancer Research

September 20, 2013

Run, walk, or cheer on all participating in the 2nd Annual Dean Paras Memorial 5K on Sunday, October 13th at University School in Hunting Valley, Ohio.  In-person registration begins at 11:30 am and the Run/Walk starts at 1:00 pm.  Michael Papanikolaou

READ MORE
Find a Doctor collage of specialists_2

Coming Soon — New Feature on Carcinoid Cancer Foundation Website

August 8, 2013

The Carcinoid Cancer Foundation welcomes feedback from the carcinoid/NET community so that we can regularly update our website, providing the most sought- after and up-to-date information possible.  Recently we were asked to add a feature to our Find

READ MORE
YouTube, Watch Us On

Carcinoid Cancer Foundation Releases Nutrition and Neuroendocrine Tumors Video

July 31, 2013

What is a healthy diet for neuroendocrine tumor patients?  If a NET patient has carcinoid syndrome which foods should be avoided?  Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and…

READ MORE