Tag: rare diseases

Run for Hope, Life is a Journey

9th Annual Run for Hope to Benefit Carcinoid Cancer Research and Education

June 30, 2013

Get your running shoes ready for the 9th ANNUAL RUN FOR HOPE on Saturday, July 13 in Fort Collins, Colorado – run, walk, or cheer people on during the 5K event!!  Neuroendocrine Cancer:  New Treatments and New Hope, an educational event with keynote speakers…

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Maria Gonzalez’s Book, But You Look So Good

But You Look So Good . . . Stories by Carcinoid Cancer Survivors

June 28, 2013

The intimate stories of those living with a poorly understood and rare cancer are shared in Maria Gonzalez’s new book, But You Look So Good . . . . Stories by Carcinoid Cancer Survivors. Over 20 patient and caregiver stories explore how carcinoid and neuroendocrine…

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Warner Advocacy Award 2013 Call for Nominations

Call for Nominations: 2013 Warner Advocacy Award

June 21, 2013

Novartis Oncology has announced the 2013 Warner Advocacy Award, named in honor of  the late Monica Warner, a driving force behind the Carcinoid Cancer Foundation for two decades and extraordinary advocate for carcinoid and neuroendocrine tumor patients.…

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Susan Anderson’s Book, Becoming Sunny Susan

Becoming Sunny Susan: A Carcinoid Survivor’s Memoir

June 20, 2013

“My story is one many of you can identify with – an uplifting look at a life that I am determined to live well, despite all of the obstacles that I have been dealt,” says “Sunny Susan” Anderson about her new book, BECOMING SUNNY SUSAN. “At the heart of the story…

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Alexander Masters

A Possible Cure for Neuroendocrine Cancer: Exciting Update!

June 19, 2013

Back in September 2012 we shared the following:  “For $1.6 million (1 million pounds) an oncolytic virus that has the potential to cure neuroendocrine cancer can be named for the donor.  At Uppsala University in Sweden researchers are ready to start a …

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Matthew Kulke, OncTV, Biomarkers

OncLive TV Releases 2 More Videos in Neuroendocrine Tumors Series

April 1, 2013

Two new videos have been released in the OncLive TV series on carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors, and genetic syndromes that predispose people to develop pancreatic NETs such MEN1 (multiple endocrine…

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Matthew Kulke, MD

New OncLive TV Series Focuses on Neuroendocrine Tumors

March 24, 2013

Carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors and even more uncommon NETs such as goblet cell carcinoid and mixed adenocarcinomas, are discussed by a panel of medical experts in this new video series from …

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Inspire Pancreatic Neuroendocrine Tumor Support Community

New Online Pancreatic Neuroendocrine Tumor (pNET) Support Community

March 16, 2013

There’s a wonderful new resource for pancreatic neuroendocrine tumor (pNET) patients and their loved ones at Inspire, the creator of online health and wellness communities for patients and caregivers, in partnership with national patient advocacy…

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Cheryl Stanley Simpson

New Videos in Carcinoid Cancer Foundation 2012-2013 Series

December 26, 2012

Faces of Hope and Surgery and Treatment Options are the newest videos in the Carcinoid Cancer Foundation’s 2012-2013 series.  Awareness and education are the first critical components in the fight against carcinoid and NET (neuroendocrine …

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NET Cancer Day Zebra Cartoon Brings Awareness to Rare Cancers

10 Highlights of the Year 2012 for the Carcinoid and Neuroendocrine Tumor Community

December 20, 2012

As the Carcinoid Cancer Foundation looks back on the year 2012, there were many significant events and advances for the carcinoid and neuroendocrine tumor (NET) community.  Here are 10 of the year’s important stories:

1)       NET Cancer Day, November

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