Tag: rare diseases

WEGO Health Builds Online Carcinoid Community

You can make a difference! To learn more about the needs of the carcinoid patient community, WEGO Health is conducting a survey and would appreciate your input.

To reach out to the carcinoid community, WEGO Health has created a survey to learn more about…

Carcinoid Cancer Foundation Awards Grant to Stanford University

The Carcinoid Cancer Foundation in White Plains, New York has awarded a grant of more than $65,000.00 to Stanford University in California to expand access to its Gallium-68 (Ga-68) DOTA-TATE PET/CT program for carcinoid and neuroendocrine tumor (NET)…

North Carolina Golf Tournament Raises Awareness of Carcinoid Cancer and Funds for the Carcinoid Cancer Foundation

Larry Sanders, Plant Engineer at Arclin USA in Moncure, North Carolina, and his colleagues held the Arclin’s Men and Women’s Golf Tournament on May 24, 2014 to express appreciation for those who work at the plant and for Arclin’s clients and to raise awareness…

Zebra Talk — A Handbook for Newly Diagnosed Carcinoid & Neuroendocrine Tumor Patients and Their Primary Care Physicians

There’s a terrific new resource for carcinoid and neuroendocrine tumor patients and their primary care physicians entitled Zebra Talk. According to Suzi Garber of Bucks County, Pennsylvania, editor, the handbook “is intended as a reference for those…

Call for Nominations: 2014 Warner Advocacy Award

Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? The NET Alliance™ and Novartis Oncology have announced the 2014 Warner Advocacy Award, named in honor of the late Monica Warner, a driving force behind the…

NET Alliance Issues New E-Book on Neuroendocrine Cancer

NETrospectives, a new e-book produced by The NET Alliance, is “a journey through the past and a vision for the future of neuroendocrine cancer.” The e-book presents patients, patient advocates, and physicians talking about the diagnoses…

Carcinoid and Neuroendocrine Tumors in the News!

Who is at risk for getting carcinoid or another neuroendocrine cancer? What are the signs and symptoms? We are very pleased to share a feature article from the April 27, 2014 edition of the New York Daily News, “Daily Checkup: Carcinoid Tumors Have a Variety…

New England Carcinoid Connection Announces June 2014 Conference for the Carcinoid and Neuroendocrine Tumor Community

Carcinoid and neuroendocrine cancer patients, family members, caregivers, and healthcare professionals are invited to attend the New England Carcinoid Connection Conference on Friday, June 27, 2014 at The Lantana in Randolph, Massachusetts. The…

Gallium-68 Scan Coming to NOLANETS for Carcinoid and Neuroendocrine Tumor Patients

Dr. Eugene A. Woltering has announced that the Gallium-68 DOTATATE PET/CT scan is going to be available beginning in the summer of 2014 through The New Orleans Louisiana Neuroendocrine Tumor Specialists (NOLANETS) Neuroendocrine Tumor Program at …

Luncheon with the Experts in New York City — Carcinoid and Neuroendocrine Tumor Patients Are Invited!

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for lunch on Sunday, May 4 from 12:30 to 3:30 pm in a private dining room at Dorrian’s restaurant in Manhattan…