Tag: rare diseases
“Sunny Susan” Anderson Wins 2012 Warner Advocacy Award
When “Sunny Susan” Anderson began her search on the Internet in 1995 for information about carcinoid cancer little did she realize that she would later create the first carcinoid patient website and become an extraordinary advocate for others seeking…
READ MORELexicon Pharmaceuticals Begins Phase 3 Clinical Trial of Telotristat Etiprate in Patients with Carcinoid Syndrome
Patients with metastatic carcinoid syndrome will have the opportunity to participate in a new Phase 3 clinical trial of Lexicon Pharmaceutical’s telotristat etiprate (LX1032), an oral drug candidate designed to treat carcinoid syndrome by reducing…
READ MOREArchived Neuroendocrine Tumor Webinar by Dr. Eric Liu Now Available
Dr. Eric H. Liu, Director of the Neuroendocrine Center and Director of Surgical Services at Vanderbilt University Medical Center in Tennessee, presented a live webinar on August 22, 2012 entitled Imaging of Neuroendocrine Tumors and Obstacles to Diagnosis.…
READ MORECycling the C&O Canal for Carcinoid
When Diane and Dwight Mikulis cycle the 184 miles of the Chesapeake & Ohio Canal this summer, they will bring greater awareness to the rare cancer that Diane’s mother, Stella Mae Lux Behers, battled for six years after being diagnosed in 1996. Like …
READ MOREWorldwide NET Cancer Awareness Day Alliance Launches Zebra Cartoon Sequel
Global recognition of the need for NET (neuroendocrine tumor) cancer awareness will be marked by the third annual worldwide NET Cancer Day on November 10, 2012. In anticipation of the day, the Worldwide NET Cancer Awareness Day Alliance has launched…
READ MORENeuroendocrine Cancer Survivor Featured on Discovery Fit & Health TV Show
THIS JUST IN: Tannis Brown, a pheochromocytoma patient and Vice President of the Pheo Para Troopers, will be featured on the Discovery Fit & Health Network on Monday, July 9 in a program titled Diagnosis: Dead or Alive.* The 60 minute show will focus…
READ MOREMonica Grundmann Dedicates Championship Ride to Carcinoid Cancer Awareness
Congratulations to carcinoid cancer survivor Monica Grundmann on winning the OCTRA 25 mi/40 km Competitive Trail Ride in Stormont, Ontario, Canada with her MORAB stallion, Excalibur Legend, on June 10th (check out those zebra striped gloves!!). …
READ MOREMud Cats Little League Team Raises Awareness for Carcinoid Cancer and Funds for the Carcinoid Cancer Foundation
To the amazing Mud Cats Little League Team, their coaches, families and friends we say a huge THANK YOU!!! Raising awareness about carcinoid cancer and funds for the Carcinoid Cancer Foundation was the goal of the June 2, 2012 Loudoun County, Virginia…
READ MOREFirst Mobile App for Carcinoid and Neuroendocrine Cancer Community Goes Live
The first mobile app for carcinoid cancer and neuroendocrine tumor (NET) patients is now available for downloading on the iPhone, iPad, and Android! My NET Manager, a free app provided by Novartis Oncology, offers patients a unique opportunity to track…
READ MORENational Carcinoid and NET Patient Conference: Have You Registered?
Have you registered for the national carcinoid and NET patient conference in New Orleans, September 20 – 22? The hotel is over 90% booked and registration is nearing capacity! This is a wonderful opportunity to learn more about carcinoid and …
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