Category: carcinoid cancer

Zebra Tales: Share Your Self-Care Story about Living with Carcinoid and Neuroendocrine Tumors

June 9, 2017

The Carcinoid Cancer Foundation and our partner Self Care Catalysts are pleased to launch Zebra Tales, a series of patient and caregiver stories about self-care while living with Carcinoid or other Neuroendocrine Tumors (NETs).

We are inviting you …

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Acronyms Used in the Carcinoid and Neuroendocrine Tumor Community

April 19, 2017

Whether you are newly diagnosed, a friend or family member of a carcinoid/neuroendocrine tumor (NET) patient, or someone living with the disease for a long time, the language used in the carcinoid/NET community, especially the acronyms, can seem like…

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April Luncheon with the Experts in White Plains, NY — Carcinoid and Neuroendocrine Tumor Patients Are Invited!

January 16, 2017

The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, April 2, 2017 at 12:00 pm at the Westchester Hills Golf Club, 401 Ridgeway Avenue, …

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December Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

October 31, 2016

Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, December 18, 2016.  This special program was initiated and is sponsored by the Big

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Project Zebra: Help Raise Awareness for the Carcinoid and Neuroendocrine Tumor Community

September 17, 2016

Dear Friends,

You can help us raise awareness for the 125,000 people in the United States diagnosed with carcinoid and other neuroendocrine tumors by participating in Project Zebra.

The Carcinoid Cancer Foundation and our partner Self Care Catalysts…

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October Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

September 1, 2016

Join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Luncheon with the Experts in New York City on Sunday, October 16, 2016.  This special program was initiated and is sponsored by the Big Apple NETs support group,…

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Carcinoid Syndrome Symptoms

Seeking Carcinoid Syndrome Patients for New Publication

August 18, 2016

Carcinoid Syndrome Patients: Share Your Journey  — Can you help us to raise awareness about carcinoid syndrome?

Health Monitor Network, in collaboration with the Carcinoid Cancer Foundation, is producing a Guide to Living with Carcinoid Syndrome

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Neuroendocrine Tumor Patients and Clinical Trials — Seeking Volunteers for Interviews

July 22, 2016

A pharmaceutical partner has commissioned a research company to try to understand how clinical trials can be carried out in a way that better suits carcinoid/neuroendocrine tumor patients, their families, and the physicians who treat them. The research…

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Holly’s Story: Taking Control of Carcinoid Cancer

May 5, 2016

Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?

Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using…

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One Step Closer in the US to Peptide Receptor Radionuclide Therapy, PRRT, for Neuroendocrine Cancers

May 3, 2016

The clock is ticking!! With Advanced Accelerator Applications’ completed New Drug Application (NDA) submission of Lutathera to the U.S. Food and Drug Administration last week, a decision from the FDA is expected by early 2017.  Additionally, an

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