Category: carcinoid cancer

Big Apple NETs 0

December Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

October 31, 2016

Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, December 18, 2016.  This special program was initiated and is sponsored by the Big

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Project Zebra Social Media 3

Project Zebra: Help Raise Awareness for the Carcinoid and Neuroendocrine Tumor Community

September 17, 2016

Dear Friends,

You can help us raise awareness for the 125,000 people in the United States diagnosed with carcinoid and other neuroendocrine tumors by participating in Project Zebra.

The Carcinoid Cancer Foundation and our partner Self Care Catalysts…

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Big Apple NETs 0

October Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

September 1, 2016

Join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Luncheon with the Experts in New York City on Sunday, October 16, 2016.  This special program was initiated and is sponsored by the Big Apple NETs support group,…

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Carcinoid Syndrome WebMD slideshow signs of

Seeking Carcinoid Syndrome Patients for New Publication

August 18, 2016

Carcinoid Syndrome Patients: Share Your Journey  — Can you help us to raise awareness about carcinoid syndrome?

Health Monitor Network, in collaboration with the Carcinoid Cancer Foundation, is producing a Guide to Living with Carcinoid Syndrome

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Clinical Trials 5

Neuroendocrine Tumor Patients and Clinical Trials — Seeking Volunteers for Interviews

July 22, 2016

A pharmaceutical partner has commissioned a research company to try to understand how clinical trials can be carried out in a way that better suits carcinoid/neuroendocrine tumor patients, their families, and the physicians who treat them. The research…

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App Carcinoid NETs Take Control of Your Health

Holly’s Story: Taking Control of Carcinoid Cancer

May 5, 2016

Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?

Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …

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Lu 177

One Step Closer in the US to Peptide Receptor Radionuclide Therapy, PRRT, for Neuroendocrine Cancers

May 3, 2016

The clock is ticking!! With Advanced Accelerator Applications’ completed New Drug Application (NDA) submission of Lutathera to the U.S. Food and Drug Administration last week, a decision from the FDA is expected by early 2017.  Additionally, an Expanded

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Big Apple NETs 0

June Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

April 27, 2016

Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, June 12, 2016.  This special program was initiated and is sponsored by the Big Apple

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Sue ODorisio MD 7

OncLive Features Neuroendocrine Tumors in Videos and News Articles

April 14, 2016

Chemotherapy Options in Neuroendocrine Tumors is the latest video to be released in the OncLive series on Neuroendocrine Tumors. Matthew H. Kulke, MD, Director of the Program in Neuroendocrine and Carcinoid-Tumors at Dana-Farber/Brigham and Women’s…

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App Carcinoid NETs Updated 2

New and Improved App for Managing Carcinoid Cancer and Neuroendocrine Tumors

March 17, 2016

Have you heard about or downloaded the Carcinoid NETs Health Storylines self-care app? Originally launched last year, the app has been updated recently with lots of improvements based on your feedback!

Developed in partnership with the Carcinoid Cancer…

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