Category: carcinoid cancer
Carcinoid NETs Health Storylines App Launches New Features
Living with Neuroendocrine Tumors (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier.
Zebra Tales presents real stories about real life experiences by people…
READ MOREOctober Luncheon with the Experts in White Plains, NY for the Neuroendocrine Tumor Community
The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, October 14, 2018 at 12:30 pm at the Westchester Hills Golf Club, 401 Ridgeway …
READ MOREPeptide Receptor Radionuclide Therapy, PRRT: Updates and Locations
Since we shared the news of the FDA’s January 26, 2018 approval of peptide receptor radionuclide therapy, PRRT, with Lutathera (lutetium Lu 177 dotatate), more information has become available for the neuroendocrine tumor community, including updates…
READ MORELive Online Carcinoid Syndrome Program for Patients and Caregivers
Patient & Caregiver Education on Carcinoid Syndrome: Talking to Your Doctor About Symptoms, Diet, and Treatment
Last Spring, we were pleased to create an interactive resource for people living with Carcinoid Syndrome with our partner CancerCoachLive – we’ve teamed …
READ MORE8th Annual Warner Advocacy Award: Call for Nominations
Novartis Oncology and The NET Alliance have announced that nominations are open for the 8th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize …
READ MOREFree Kids’ Bicycles for the NET Cancer Community
Do you know a child in the NET cancer community – a child diagnosed with NET cancer or a child living in a family touched by NET disease – who would like to win a bicycle? The Carcinoid Cancer Foundation and Advanced Accelerator Applications are partnering…
READ MOREZebra Tales: Share Your Self-Care Story about Living with Carcinoid and Neuroendocrine Tumors
The Carcinoid Cancer Foundation and our partner Self Care Catalysts are pleased to launch Zebra Tales, a series of patient and caregiver stories about self-care while living with Carcinoid or other Neuroendocrine Tumors (NETs).
We are inviting you …
READ MOREAcronyms Used in the Carcinoid and Neuroendocrine Tumor Community
(Updated 2022)
Whether you are newly diagnosed, a friend or family member of a carcinoid/neuroendocrine tumor (NET) patient, or someone living with the disease for a long time, the language used in the carcinoid/NET community, especially the acronyms,…
READ MOREApril Luncheon with the Experts in White Plains, NY — Carcinoid and Neuroendocrine Tumor Patients Are Invited!
The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, April 2, 2017 at 12:00 pm at the Westchester Hills Golf Club, 401 Ridgeway Avenue, …
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