Category: carcinoid cancer

App Carcinoid NETs Updated_2

Carcinoid NETs Health Storylines App Launches New Features

August 23, 2018

Living with Neuroendocrine Tumors (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier.

 

Zebra Tales presents real stories about real life experiences by people…

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Luncheon with the Experts, l to r, Drs. Michail Shafir, Edward Wolin, Jerome Zacks, October 2018

October Luncheon with the Experts in White Plains, NY for the Neuroendocrine Tumor Community

August 14, 2018

The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, October 14, 2018 at 12:30 pm at the Westchester Hills Golf Club, 401 Ridgeway …

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PRRT infographic, segment_2

Peptide Receptor Radionuclide Therapy, PRRT: Updates and Locations

July 26, 2018

Since we shared the news of the FDA’s January 26, 2018 approval of peptide receptor radionuclide therapy, PRRT, with Lutathera  (lutetium Lu 177 dotatate), more information has become available for the neuroendocrine tumor community, including updates…

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Cancer Coach Live, Carcinoid Syndrome program, on-demand-2

Live Online Carcinoid Syndrome Program for Patients and Caregivers

June 14, 2018
Register Today and Ask Your Questions for the June 20, 2018 Online Education Program on Carcinoid Syndrome! http://www.cancercoachlive.com/landing-page-carcinoid-syndrome/ Sign Up for the On Demand Program If You Can’t Join Us Next Week… READ MORE
Carcinoid Syndrome, Live Online Event, June 2018, Dr. David Metz, Bonnie Bennett

Patient & Caregiver Education on Carcinoid Syndrome: Talking to Your Doctor About Symptoms, Diet, and Treatment

June 5, 2018
A  Free, Live Online Event on Wednesday, June 20, 3:00-4:00 pm EST Click Here to Register

 

Last Spring, we were pleased to create an interactive resource for people living with Carcinoid Syndrome with our partner CancerCoachLive – we’ve teamed …

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MonicaWarner(2)

8th Annual Warner Advocacy Award: Call for Nominations

November 14, 2017

Novartis Oncology and The NET Alliance have announced that nominations are open for the 8th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize …

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Bicycle

Free Kids’ Bicycles for the NET Cancer Community

September 22, 2017

Do you know a child in the NET cancer community – a child diagnosed with NET cancer or a child living in a family touched by NET disease – who would like to win a bicycle?  The Carcinoid Cancer Foundation and Advanced Accelerator Applications are partnering…

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Zebra Tales, Self Care Catalysts & CCF

Zebra Tales: Share Your Self-Care Story about Living with Carcinoid and Neuroendocrine Tumors

June 9, 2017

The Carcinoid Cancer Foundation and our partner Self Care Catalysts are pleased to launch Zebra Tales, a series of patient and caregiver stories about self-care while living with Carcinoid or other Neuroendocrine Tumors (NETs).

We are inviting you …

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Acronym wordcloud_2

Acronyms Used in the Carcinoid and Neuroendocrine Tumor Community

April 19, 2017

(Updated 2022)

Whether you are newly diagnosed, a friend or family member of a carcinoid/neuroendocrine tumor (NET) patient, or someone living with the disease for a long time, the language used in the carcinoid/NET community, especially the acronyms,…

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Big Apple NETs_0

April Luncheon with the Experts in White Plains, NY — Carcinoid and Neuroendocrine Tumor Patients Are Invited!

January 16, 2017

The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, April 2, 2017 at 12:00 pm at the Westchester Hills Golf Club, 401 Ridgeway Avenue, …

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