Tag: carcinoid blogs

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Show Your Stripes by Contributing to Carcinoid and NET Research

August 17, 2016

 

Dear Friends,

Don’t miss this opportunity to Show Your Stripes by participating in the first ever Project Zebra: Real-World Patient Journey Research for Carcinoid and Neuroendocrine Tumors in the United States.

The Carcinoid Cancer Foundation…

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Clinical Trials_5

Neuroendocrine Tumor Patients and Clinical Trials — Seeking Volunteers for Interviews

July 22, 2016

A pharmaceutical partner has commissioned a research company to try to understand how clinical trials can be carried out in a way that better suits carcinoid/neuroendocrine tumor patients, their families, and the physicians who treat them. The research…

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Los Angeles Neuroendocrine Tumor Patient Education Conference 2016

June 14, 2016

Join neuroendocrine tumor (NET) patients and family members, NET cancer expert physicians, and members of the healthcare community on Saturday, June 25, 2016 for a free, one-day conference at Cedars-Sinai Medical Center in Los Angeles.  The conference…

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New Survey for the Carcinoid Syndrome Community

June 7, 2016

Dear Friends,

We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment…

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App Carcinoid NETs, Take Control of Your Health

Holly’s Story: Taking Control of Carcinoid Cancer

May 5, 2016

Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?

Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …

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June Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

April 27, 2016

Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, June 12, 2016.  This special program was initiated and is sponsored by the Big Apple

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Sue O’Dorisio, MD_7

OncLive Features Neuroendocrine Tumors in Videos and News Articles

April 14, 2016

Chemotherapy Options in Neuroendocrine Tumors is the latest video to be released in the OncLive series on Neuroendocrine Tumors. Matthew H. Kulke, MD, Director of the Program in Neuroendocrine and Carcinoid-Tumors at Dana-Farber/Brigham and Women’s…

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Oncolytic virus clinical trial, Uppsala

Oncolytic Virus Clinical Trial for Neuroendocrine Tumor Patients Begins at Uppsala University, Sweden

April 6, 2016

It is with great excitement that we share the announcement of the start of the AdVince clinical trial  for neuroendocrine cancer patients at Uppsala University in Sweden – the oncolytic virus is on its way to the first patient in the trial!!

 

What…

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Diane Reidy Lagunes, MD, Memorial Sloan Kettering_2

News and Notes for the Carcinoid and Neuroendocrine Tumor Community, March 2016

March 23, 2016

Breaking News from Advanced Accelerator Applications (AAA) about PRRT Treatment— Advanced Accelerator Applications announced on March 23 that the company has initiated an expanded access program (EAP) in the United States for the investigational…

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Steven and Jackie Muller and their daughters

Trader Joe’s Saved My Life: Steven Muller’s Story

February 29, 2016

The combination of a lengthy road-bike ride, a recovery drink mix, and dried figs from Trader Joe’s led to a health crisis for Steven Muller and a subsequent diagnosis of a neuroendocrine tumor (NET) in his small intestine. Neuroendocrine tumors, including…

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