New Survey for the Carcinoid Syndrome Community

Dear Friends,

We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment approaches.

This survey for patients and caregivers in the United States is groundbreaking because it brings together the collective efforts of seven leading national and regional neuroendocrine tumor patient advocacy and patient groups:

  • Carcinoid Cancer Foundation (CCF)
  • Neuroendocrine Cancer Awareness Network (NCAN)
  • Neuroendocrine Tumor Research Foundation (NETRF)
  • Healing NET Foundation
  • Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
  • NorCal CarciNET Community
  • Big Apple NETs

Working together, we hope to spotlight the significant effects that carcinoid syndrome has on patients’ lives, while raising awareness and understanding in the physician communities about this rare syndrome.

We are extremely grateful to you for your participation.  In sharing your individual and personal experiences, you are helping to elevate both understanding and awareness about what it’s like to live with carcinoid syndrome.

Learn More about Carcinoid Syndrome

The survey is being conducted through the sponsorship of Lexicon Pharmaceuticals and corresponds with the launch of the new carcinoid syndrome patient education site,

To learn more about the survey, click on the video below.

Carcinoid Syndrome Impact Survey

We also hope you will share the survey and video with other patients and caregivers so they can also participate. 

Together we can help improve the lives of patients with carcinoid syndrome. 

Thank you so much for your support and participation!

 With appreciation,

The Carcinoid Cancer Foundation Team


This survey is now closed.

Thank you for your participation!

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