Tag: carcinoid blogs

App, Carcinoid NETs on desktop or mobile

New — Carcinoid NETs Mobile App — Keeping Track of Your Health Just Got Easier!

April 1, 2015

The Carcinoid Cancer Foundation is pleased to announce that a new unique tool for carcinoid/NETs patients and their caregivers is now available!

The Carcinoid NETs self-care tool, powered by Health Storylines™ allows you to track your mood, symptoms,…

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Cy Ball, carcinoid, SoundCloud music

Cancer and Meditation by Cy Ball

March 19, 2015

Our guest blogger this month is Cy Ball, a retired computer software developer, enthusiastic fly fisherman, and music producer. He was diagnosed with carcinoid cancer about a year after his retirement, with a primary tumor in his intestinal area (still…

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Learn More About NET Cancer, NET Cancer Day

Intelligent Patients — Just What the Doctor Didn’t Order by Ronny Allan

January 28, 2015

The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan (pictured), a carcinoid cancer patient from the UK,…

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Immunotherapy Researchers, June, Hu, Kunz

10 Highlights of the Year 2014 for the Carcinoid and Neuroendocrine Tumor Community

December 18, 2014

As the Carcinoid Cancer Foundation looks back on the year 2014, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

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FDA logo

Breaking News: US FDA Approves Lanreotide for Gastroenteropancreatic Neuroendocrine Tumors

December 16, 2014

December 16, 2014: The US Food and Drug Administration (FDA) today approved “lanreotide (Somatuline Depot Injection, Ipsen Pharma) for the treatment of patients with unresectable, well or moderately differentiated, locally advanced or metastatic

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Songs for Life, Supporting Cancer Research — Please Vote for Giovanna Imbesi’s “Hush”

November 21, 2014

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.  The song, says Giovanna, was created to “inspire peacefulness and quiet in the midst of frightening medical…

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Josh Mailman

Josh Mailman’s Patient Perspective on Integrative Oncology

November 20, 2014

“A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer” by Josh Mailman has been published in the November 2014 issue of the Journal of the National Cancer Institute Monographs focused on Integrative…

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Big Apple NYC_2

Luncheon with Carcinoid and Neuroendocrine Tumor Experts in New York City

November 13, 2014

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Lunch with the Experts on Sunday, December 14, 2014 at 12:30 pm in a private dining room at Dorrian’s restaurant

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NET Cancer Day proclamation map, 46 states, Nov 8, 2014

5 Highlights about NET Cancer Awareness Day 2014

November 9, 2014

November 10, 2014 is the fifth Worldwide NET Cancer Awareness Day!! Many exciting events and activities are taking place around the world tomorrow and have been held in the days leading up to NET Cancer Day.

1. The Carcinoid Cancer Foundation has contacted…

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NET Cancer Day Selfies Siobhan Conroy

Selfies Campaign for NET Cancer Awareness Day, November 10

October 28, 2014

Worldwide NET Cancer Awareness Day, November 10, 2014, is less than two weeks away!  The theme for this year’s awareness campaign is “Time to Diagnosis,” focusing on one of the most common issues with carcinoid and other types of neuroendocrine cancers. …

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