Ignyta Chief Medical Officer, Pratik Mutani, MD

STARTRK-2: A Basket Trial for Neuroendocrine Tumor Patients with Specific Gene Rearrangements

April 7, 2017

Precision medicine, molecular testing, basket studies, STARTRK-2 – it may sound like technology of the future but it is here today and it might be the answer to slowing or stopping tumor growth for neuroendocrine tumor (NET) patients who have specific…

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Gallium 68 PET/CT Scanning for Neuroendocrine Tumors — Information and Locations (updated January 26, 2019)

April 6, 2017

The US Food and Drug Administration’s (FDA) June 1, 2016 approval of the Gallium-68 PET/CT DOTATATE scan using NETSPOT® heralded a new age of nuclear imaging for neuroendocrine tumors in the United States.

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Patient Education on Carcinoid Syndrome: From Diagnosis to Treatment

February 17, 2017

A Live Online Event on Wednesday, March 1, 11 am to 12 noon Eastern Standard Time

Ask Your Questions during the Live Program or Submit Them in Advance

Cancer Coach Live, in partnership with the Carcinoid Cancer Foundation, is presenting a special patient…

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Neuroendocrine Tumors on TV: Rare Disease Day Special, February 28, 2017

February 15, 2017

NETs on TV!  The Carcinoid Cancer Foundation has teamed up with The Balancing Act and Advanced Accelerator Applications to raise awareness about carcinoid and neuroendocrine tumors (NETs) during a feature on Lifetime TV on February 28 (Rare Disease

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April Luncheon with the Experts in White Plains, NY — Carcinoid and Neuroendocrine Tumor Patients Are Invited!

January 16, 2017

The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, April 2, 2017 at 12:00 pm at the Westchester Hills Golf Club, 401 Ridgeway Avenue, …

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Call for Nominations: 7th Annual Warner Advocacy Award

November 17, 2016

Novartis Oncology and The NET Alliance have announced that nominations are open for the 7th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize the …

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The Project Zebra Report: Real-World Insights from the Carcinoid and NET Patient Community

November 10, 2016

In honor of Worldwide NET Cancer Awareness Day, we are pleased to release the first ever Project Zebra Report: Real-World Insights from the Carcinoid and Neuroendocrine Tumor Patient Community, a collaboration between our partner Self Care Catalysts

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Fighting NET Cancer with Grace and Gratitude

November 9, 2016

The Carcinoid Cancer Foundation is very excited to share what we have planned around this year’s Worldwide NET Cancer Awareness Day, November 10, and hope you will help us spread the word about NET cancer to support and inspire one another, and those yet…

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December Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

October 31, 2016

Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, December 18, 2016.  This special program was initiated and is sponsored by the Big

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Go Zebra-Striped for NET Cancer Day

October 23, 2016

We’re incredibly excited to share our app worldwide to raise awareness of carcinoid and neuroendocrine cancers on and around NET Cancer Day, November 10, and throughout the year. Follow the directions here, https://www.carcinoid.org/go-zebra-striped/

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