Zebra Tales, Self Care Catalysts & CCF

Zebra Tales: Share Your Self-Care Story about Living with Carcinoid and Neuroendocrine Tumors

June 9, 2017

The Carcinoid Cancer Foundation and our partner Self Care Catalysts are pleased to launch Zebra Tales, a series of patient and caregiver stories about self-care while living with Carcinoid or other Neuroendocrine Tumors (NETs).

We are inviting you …

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Acronyms Used in the Carcinoid and Neuroendocrine Tumor Community

April 19, 2017

Whether you are newly diagnosed, a friend or family member of a carcinoid/neuroendocrine tumor (NET) patient, or someone living with the disease for a long time, the language used in the carcinoid/NET community, especially the acronyms, can seem like…

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App, international release April 2017

Carcinoid NETs Health Storylines — Now Available in Seven Countries

April 17, 2017
 Are you from the UK, Ireland, Australia, New Zealand, or Singapore? A new self-care management tool for Carcinoid and Neuroendocrine Tumors (NETs) is now available for you!

The Carcinoid Cancer Foundation (CCF) and our partner Self Care Catalysts (SCC)

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Luncheon with the Experts, May 21, 2017, Drs. Ratner, Warner, Zacks (l to r)

May Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

April 9, 2017

Join carcinoid and neuroendocrine tumor patients in New York City on Sunday, May 21, 2017 for a unique opportunity to have lunch with three medical experts. Share your experiences with others who have similar concerns and hear from physicians on issues…

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Ignyta Chief Medical Officer, Pratik Mutani, MD

STARTRK-2: A Basket Trial for Neuroendocrine Tumor Patients with Specific Gene Rearrangements

April 7, 2017

Precision medicine, molecular testing, basket studies, STARTRK-2 – it may sound like technology of the future but it is here today and it might be the answer to slowing or stopping tumor growth for neuroendocrine tumor (NET) patients who have specific…

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Gallium 68 PET/CT Scanning for Neuroendocrine Tumors — Information and Locations (updated January 26, 2019)

April 6, 2017

The US Food and Drug Administration’s (FDA) June 1, 2016 approval of the Gallium-68 PET/CT DOTATATE scan using NETSPOT® heralded a new age of nuclear imaging for neuroendocrine tumors in the United States.

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Carcinoid Syndrome Live Event, Dr. Edward Wolin banner

Patient Education on Carcinoid Syndrome: From Diagnosis to Treatment

February 17, 2017

A Live Online Event on Wednesday, March 1, 11 am to 12 noon Eastern Standard Time

Ask Your Questions during the Live Program or Submit Them in Advance

Cancer Coach Live, in partnership with the Carcinoid Cancer Foundation, is presenting a special patient…

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Balancing Act, Judy Banner_Final (2)

Neuroendocrine Tumors on TV: Rare Disease Day Special, February 28, 2017

February 15, 2017

NETs on TV!  The Carcinoid Cancer Foundation has teamed up with The Balancing Act and Advanced Accelerator Applications to raise awareness about carcinoid and neuroendocrine tumors (NETs) during a feature on Lifetime TV on February 28 (Rare Disease

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April Luncheon with the Experts in White Plains, NY — Carcinoid and Neuroendocrine Tumor Patients Are Invited!

January 16, 2017

The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, April 2, 2017 at 12:00 pm at the Westchester Hills Golf Club, 401 Ridgeway Avenue, …

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MonicaWarner(2)

Call for Nominations: 7th Annual Warner Advocacy Award

November 17, 2016

Novartis Oncology and The NET Alliance have announced that nominations are open for the 7th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize the …

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