aboutcarcinoid_3

New Survey for the Carcinoid Syndrome Community

June 7, 2016

Dear Friends,

We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment…

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App Carcinoid NETs, Take Control of Your Health

Holly’s Story: Taking Control of Carcinoid Cancer

May 5, 2016

Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?

Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …

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Lu-177

One Step Closer in the US to Peptide Receptor Radionuclide Therapy, PRRT, for Neuroendocrine Cancers

May 3, 2016

The clock is ticking!! With Advanced Accelerator Applications’ completed New Drug Application (NDA) submission of Lutathera to the U.S. Food and Drug Administration last week, a decision from the FDA is expected by early 2017.  Additionally, an Expanded

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Big Apple NETs_0

June Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

April 27, 2016

Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, June 12, 2016.  This special program was initiated and is sponsored by the Big Apple

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Immunotherapy cells

News and Notes for the Carcinoid and Neuroendocrine Tumor Community, April 2016

April 25, 2016

Rare Neuroendocrine Skin Cancer Treated by Immunotherapy

Merkel cell carcinoma, a rare neuroendocrine virus-linked skin cancer, has been added to the list of cancers that can be treated by immunotherapy. Scientists who led the clinical study of the…

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Sue O’Dorisio, MD_7

OncLive Features Neuroendocrine Tumors in Videos and News Articles

April 14, 2016

Chemotherapy Options in Neuroendocrine Tumors is the latest video to be released in the OncLive series on Neuroendocrine Tumors. Matthew H. Kulke, MD, Director of the Program in Neuroendocrine and Carcinoid-Tumors at Dana-Farber/Brigham and Women…

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Oncolytic virus clinical trial, Uppsala

Oncolytic Virus Clinical Trial for Neuroendocrine Tumor Patients Begins at Uppsala University, Sweden

April 6, 2016

It is with great excitement that we share the announcement of the start of the AdVince clinical trial  for neuroendocrine cancer patients at Uppsala University in Sweden – the oncolytic virus is on its way to the first patient in the trial!!

 

What…

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Carcinoid_NET Specialists collage 2016

National Doctors’ Day 2016

March 30, 2016

March 30 is NATIONAL DOCTORS’ DAY. In recognition of carcinoid/neuroendocrine tumor (NET) doctors – you are our heroes and superheroes!! Pictured are some of the NET specialists throughout the United States.  Click here to see our Find a Doctor list:

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Diane Reidy Lagunes, MD, Memorial Sloan Kettering_2

News and Notes for the Carcinoid and Neuroendocrine Tumor Community, March 2016

March 23, 2016

Breaking News from Advanced Accelerator Applications (AAA) about PRRT Treatment— Advanced Accelerator Applications announced on March 23 that the company has initiated an expanded access program (EAP) in the United States for the investigational…

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App Carcinoid NETs Updated_2

New and Improved App for Managing Carcinoid Cancer and Neuroendocrine Tumors

March 17, 2016

Have you heard about or downloaded the Carcinoid NETs Health Storylines self-care app? Originally launched last year, the app has been updated recently with lots of improvements based on your feedback!

Developed in partnership with the Carcinoid Cancer…

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