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Project Zebra: Help Raise Awareness for the Carcinoid and Neuroendocrine Tumor Community

September 17, 2016

Dear Friends,

You can help us raise awareness for the 125,000 people in the United States diagnosed with carcinoid and other neuroendocrine tumors by participating in Project Zebra.

The Carcinoid Cancer Foundation and our partner Self Care Catalysts…

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Carcinoid Syndrome Impact Survey Results to Be Presented During September 21 Webcast

September 14, 2016

Members of the carcinoid and neuroendocrine tumor community are invited to be the first to hear the results of the Carcinoid Syndrome Impact Survey that was conducted this summer.  A Webcast about the survey results will be presented on Wednesday, September

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October Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community

September 1, 2016

Join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Luncheon with the Experts in New York City on Sunday, October 16, 2016.  This special program was initiated and is sponsored by the Big Apple NETs support group,…

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Seeking Carcinoid Syndrome Patients for New Publication

August 18, 2016

Carcinoid Syndrome Patients: Share Your Journey  — Can you help us to raise awareness about carcinoid syndrome?

Health Monitor Network, in collaboration with the Carcinoid Cancer Foundation, is producing a Guide to Living with Carcinoid Syndrome

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Show Your Stripes by Contributing to Carcinoid and NET Research

August 17, 2016

 

Dear Friends,

Don’t miss this opportunity to Show Your Stripes by participating in the first ever Project Zebra: Real-World Patient Journey Research for Carcinoid and Neuroendocrine Tumors in the United States.

The Carcinoid Cancer Foundation…

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Neuroendocrine Tumor Patients and Clinical Trials — Seeking Volunteers for Interviews

July 22, 2016

A pharmaceutical partner has commissioned a research company to try to understand how clinical trials can be carried out in a way that better suits carcinoid/neuroendocrine tumor patients, their families, and the physicians who treat them. The research…

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Los Angeles Neuroendocrine Tumor Patient Education Conference 2016

June 14, 2016

Join neuroendocrine tumor (NET) patients and family members, NET cancer expert physicians, and members of the healthcare community on Saturday, June 25, 2016 for a free, one-day conference at Cedars-Sinai Medical Center in Los Angeles.  The conference…

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New Survey for the Carcinoid Syndrome Community

June 7, 2016

Dear Friends,

We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment…

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Holly’s Story: Taking Control of Carcinoid Cancer

May 5, 2016

Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?

Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …

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One Step Closer in the US to Peptide Receptor Radionuclide Therapy, PRRT, for Neuroendocrine Cancers

May 3, 2016

The clock is ticking!! With Advanced Accelerator Applications’ completed New Drug Application (NDA) submission of Lutathera to the U.S. Food and Drug Administration last week, a decision from the FDA is expected by early 2017.  Additionally, an Expanded

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