Category: neuroendocrine tumors
Acronyms Used in the Carcinoid and Neuroendocrine Tumor Community
(Updated 2022)
Whether you are newly diagnosed, a friend or family member of a carcinoid/neuroendocrine tumor (NET) patient, or someone living with the disease for a long time, the language used in the carcinoid/NET community, especially the acronyms,…
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Carcinoid NETs Health Storylines — Now Available in Seven Countries
The Carcinoid Cancer Foundation (CCF) and our partner Self Care Catalysts (SCC)…
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Gallium 68 PET/CT Scanning for Neuroendocrine Tumors — Information and Locations (updated January 26, 2019)
The US Food and Drug Administration’s (FDA) June 1, 2016 approval of the Gallium-68 PET/CT DOTATATE scan using NETSPOT® heralded a new age of nuclear imaging for neuroendocrine tumors in the United States.
PLEASE SCROLL DOWN FOR A STATE-BY STATE LIST … READ MORE
April Luncheon with the Experts in White Plains, NY — Carcinoid and Neuroendocrine Tumor Patients Are Invited!
The Big Apple NETs support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and 3 medical experts for Lunch with the Experts on Sunday, April 2, 2017 at 12:00 pm at the Westchester Hills Golf Club, 401 Ridgeway Avenue, …
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December Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community
Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, December 18, 2016. This special program was initiated and is sponsored by the Big…
READ MORE October Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community
Join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Luncheon with the Experts in New York City on Sunday, October 16, 2016. This special program was initiated and is sponsored by the Big Apple NETs support group,…
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Los Angeles Neuroendocrine Tumor Patient Education Conference 2016
Join neuroendocrine tumor (NET) patients and family members, NET cancer expert physicians, and members of the healthcare community on Saturday, June 25, 2016 for a free, one-day conference at Cedars-Sinai Medical Center in Los Angeles. The conference…
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Holly’s Story: Taking Control of Carcinoid Cancer
Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?
Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …
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One Step Closer in the US to Peptide Receptor Radionuclide Therapy, PRRT, for Neuroendocrine Cancers
The clock is ticking!! With Advanced Accelerator Applications’ completed New Drug Application (NDA) submission of Lutathera to the U.S. Food and Drug Administration last week, a decision from the FDA is expected by early 2017. Additionally, an Expanded…
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News and Notes for the Carcinoid and Neuroendocrine Tumor Community, April 2016
Rare Neuroendocrine Skin Cancer Treated by Immunotherapy
Merkel cell carcinoma, a rare neuroendocrine virus-linked skin cancer, has been added to the list of cancers that can be treated by immunotherapy. Scientists who led the clinical study of the…
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