Category: neuroendocrine tumors

New Jersey Carcinoid Cancer NETwork Conference Videos Now Available

January 19, 2014

Carcinoid and neuroendocrine tumor (NET) patients, physicians, caregivers, support group leaders and patient advocates gathered to learn more from nationally and internationally recognized carcinoid/NET specialists and local physician specialists…

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Jim Weiveris

10 Highlights of the Year 2013 for the Carcinoid and Neuroendocrine Tumor Community

December 18, 2013

As the Carcinoid Cancer Foundation looks back on the year 2013, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

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Molly Clarke

Carcinoid and Neuroendocrine Tumors and Social Security Disability Benefits

December 15, 2013

Carcinoid tumors are usually slow growing tumors that arise from the neuroendocrine system, which produces hormones. Many carcinoids begin in the digestive track and can lead to carcinoid syndrome, which refers to an array of symptoms that occur as …

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Telotristat Etiprate Clinical Trial

Discover Something New in Carcinoid Syndrome

November 11, 2013

For patients who suffer from carcinoid syndrome – with symptoms such as diarrhea, frequent bowel movements, abdominal pain, and flushing – that is not adequately controlled by their current somatostatin analog therapy, there is an opportunity to participate…

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YouTube, Watch Us On

Carcinoid Cancer Foundation Releases Nutrition and Neuroendocrine Tumors Video

July 31, 2013

What is a healthy diet for neuroendocrine tumor patients?  If a NET patient has carcinoid syndrome which foods should be avoided?  Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and…

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Susan Anderson’s Book, Becoming Sunny Susan

Becoming Sunny Susan: A Carcinoid Survivor’s Memoir

June 20, 2013

“My story is one many of you can identify with – an uplifting look at a life that I am determined to live well, despite all of the obstacles that I have been dealt,” says “Sunny Susan” Anderson about her new book, BECOMING SUNNY SUSAN. “At the heart of the story…

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Alexander Masters

A Possible Cure for Neuroendocrine Cancer: Exciting Update!

June 19, 2013

Back in September 2012 we shared the following:  “For $1.6 million (1 million pounds) an oncolytic virus that has the potential to cure neuroendocrine cancer can be named for the donor.  At Uppsala University in Sweden researchers are ready to start a …

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Society of Nuclear Medicine Patient Program June 2013

Neuroendocrine Tumors Featured in Society of Nuclear Medicine and Molecular Imaging Patient Program

May 22, 2013

Josh Mailman, President of the NorCal CarciNET support group and Chair of the Patient Advocate Advisory Board for the Society of Nuclear Medicine and Molecular Imaging (SNMMI), will give the Welcome presentation for the SNMMI Patient Education Day …

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Excel Diagnostics logo_2

Excel Diagnostics and Nuclear Oncology Center Selected For New Investigational PRRT Treatment and Gallium Scan for Carcinoid and Neuroendocrine Tumor Patients

May 15, 2013

For carcinoid, pancreatic neuroendocrine tumor, and other NET cancer patients seeking the most advanced nuclear medicine opportunities in  the United States, Excel Diagnostics and Nuclear Oncology Center  in Houston, Texas, in collaboration with…

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Matthew Kulke, OncTV, Biomarkers

OncLive TV Releases 2 More Videos in Neuroendocrine Tumors Series

April 1, 2013

Two new videos have been released in the OncLive TV series on carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors, and genetic syndromes that predispose people to develop pancreatic NETs such MEN1 (multiple endocrine…

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