Tag: carcinoid cancer

Warner Advocacy Award 2015_Deadline for Submissions

Call for Nominations: 6th Annual Warner Advocacy Award

July 30, 2015

Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? Novartis Oncology and The NET Alliance are searching for an outstanding NET patient advocate to recognize and honor with the 6th Annual Warner Advocacy

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App, CCF_Responsive mock

Did I Take It . . . or Didn’t I?

July 7, 2015

When it comes to taking pills, drops, injections, and other forms of medication, about one third to one half of U.S. patients do not adhere to prescribed medication regimens (Osterberg and Blaschke, Adherence to Medication, New England Journal of Medicine,…

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Michael Farris Golden Rule

DENIED: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment

June 8, 2015

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…

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Cy Ball, carcinoid, SoundCloud music

Cancer and Meditation by Cy Ball

March 19, 2015

Our guest blogger this month is Cy Ball, a retired computer software developer, enthusiastic fly fisherman, and music producer. He was diagnosed with carcinoid cancer about a year after his retirement, with a primary tumor in his intestinal area (still…

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Immunotherapy Researchers, June, Hu, Kunz

10 Highlights of the Year 2014 for the Carcinoid and Neuroendocrine Tumor Community

December 18, 2014

As the Carcinoid Cancer Foundation looks back on the year 2014, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

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Songs for Life, Supporting Cancer Research — Please Vote for Giovanna Imbesi’s “Hush”

November 21, 2014

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.  The song, says Giovanna, was created to “inspire peacefulness and quiet in the midst of frightening medical…

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Clinical Trial for GI Carcinoid Patients Recruiting Through September

July 23, 2014

Gastrointestinal carcinoid patients who have tumors that either are not suitable for standard treatment or are not responding to standard treatment have the opportunity to enroll in a Phase I/II clinical trial conducted by Tekmira Pharmaceuticals

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WEGO Health logo

WEGO Health Builds Online Carcinoid Community

July 1, 2014

You can make a difference! To learn more about the needs of the carcinoid patient community, WEGO Health is conducting a survey and would appreciate your input.

To reach out to the carcinoid community, WEGO Health has created a survey to learn more about…

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Suzi Garber_2

Zebra Talk — A Handbook for Newly Diagnosed Carcinoid & Neuroendocrine Tumor Patients and Their Primary Care Physicians

June 11, 2014

There’s a terrific new resource for carcinoid and neuroendocrine tumor patients and their primary care physicians entitled Zebra Talk. According to Suzi Garber of Bucks County, Pennsylvania, editor, the handbook “is intended as a reference for those…

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Warner Advocacy Award 2014, Call for Nominations

Call for Nominations: 2014 Warner Advocacy Award

June 6, 2014

Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? The NET Alliance™ and Novartis Oncology have announced the 2014 Warner Advocacy Award, named in honor of the late Monica Warner, a driving force behind the…

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