PRRT – FDA Approves Lutathera®, What’s Next?
The FDA approval of Lutathera®, a peptide receptor radionuclide therapy (PRRT), on January 26, 2018 signals a new era in treatment options for the neuroendocrine cancer community. It has also raised a host of questions including:
- What exactly is this
Zebra Tales: Carcinoid NETs Health Storylines Launches New Feature
Carcinoid NETs Health Storylines presents Zebra Tales! This brand new feature enables you to learn and share more about the experiences of others within the neuroendocrine tumor (NET) community.
Our first inspiring story is from Stacie Chevrier –…READ MORE
Patient Education on Carcinoid Syndrome: From Diagnosis to Treatment
A Live Online Event on Wednesday, March 1, 11 am to 12 noon Eastern Standard Time
Ask Your Questions during the Live Program or Submit Them in Advance
Cancer Coach Live, in partnership with the Carcinoid Cancer Foundation, is presenting a special patient…READ MORE
Go Zebra-Striped for NET Cancer Day
We’re incredibly excited to share our app worldwide to raise awareness of carcinoid and neuroendocrine cancers on and around NET Cancer Day, November 10, and throughout the year. Follow the directions here, https://www.carcinoid.org/go-zebra-striped/…READ MORE
Trader Joe’s Saved My Life: Steven Muller’s Story
The combination of a lengthy road-bike ride, a recovery drink mix, and dried figs from Trader Joe’s led to a health crisis for Steven Muller and a subsequent diagnosis of a neuroendocrine tumor (NET) in his small intestine. Neuroendocrine tumors, including…READ MORE
Neuroendocrine Tumors Focus of Upcoming Issue of Hematology/Oncology Clinics
Neuroendocrine Tumors will be featured in the February 2016 issue of Hematology/Oncology Clinics. Dr. Jennifer Chan and Dr. Matthew Kulke, both from Dana-Farber Cancer Institute in Boston, Massachusetts are Editors of the issue, published by Elsevier.…READ MORE
2nd Annual Tommyland Invitational Charity Golf Tournament, Utah
The 2nd Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held on Sunday, September 13, 2015 at the Sun Hills Golf Course in Layton, Utah. The tournament is being held in memory of Thomas Craig Patterson…READ MORE
Call for Nominations: 6th Annual Warner Advocacy Award
Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? Novartis Oncology and The NET Alliance are searching for an outstanding NET patient advocate to recognize and honor with the 6th Annual Warner Advocacy …READ MORE
Did I Take It . . . or Didn’t I?
When it comes to taking pills, drops, injections, and other forms of medication, about one third to one half of U.S. patients do not adhere to prescribed medication regimens (Osterberg and Blaschke, Adherence to Medication, New England Journal of Medicine,…READ MORE
DENIED: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment
The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…READ MORE