Tag: carcinoid cancer

Patient Education on Carcinoid Syndrome: From Diagnosis to Treatment

February 17, 2017

A Live Online Event on Wednesday, March 1, 11 am to 12 noon Eastern Standard Time

Ask Your Questions during the Live Program or Submit Them in Advance

Cancer Coach Live, in partnership with the Carcinoid Cancer Foundation, is presenting a special patient…

READ MORE
Go Zebra-Striped for NET Cancer Day

Go Zebra-Striped for NET Cancer Day

October 23, 2016

We’re incredibly excited to share our app worldwide to raise awareness of carcinoid and neuroendocrine cancers on and around NET Cancer Day, November 10, and throughout the year. Follow the directions here, https://www.carcinoid.org/go-zebra-striped/

READ MORE

Trader Joe’s Saved My Life: Steven Muller’s Story

February 29, 2016

The combination of a lengthy road-bike ride, a recovery drink mix, and dried figs from Trader Joe’s led to a health crisis for Steven Muller and a subsequent diagnosis of a neuroendocrine tumor (NET) in his small intestine. Neuroendocrine tumors, including…

READ MORE

Neuroendocrine Tumors Focus of Upcoming Issue of Hematology/Oncology Clinics

November 27, 2015

Neuroendocrine Tumors will be featured in the February 2016 issue of Hematology/Oncology Clinics. Dr. Jennifer Chan and Dr. Matthew Kulke, both from Dana-Farber Cancer Institute in Boston, Massachusetts are Editors of the issue, published by Elsevier.…

READ MORE

2nd Annual Tommyland Invitational Charity Golf Tournament, Utah

August 24, 2015

The 2nd Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held on Sunday, September 13, 2015 at the Sun Hills Golf Course in Layton, Utah.  The tournament is being held in memory of Thomas Craig Patterson

READ MORE

Call for Nominations: 6th Annual Warner Advocacy Award

July 30, 2015

Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? Novartis Oncology and The NET Alliance are searching for an outstanding NET patient advocate to recognize and honor with the 6th Annual Warner Advocacy

READ MORE

Did I Take It . . . or Didn’t I?

July 7, 2015

When it comes to taking pills, drops, injections, and other forms of medication, about one third to one half of U.S. patients do not adhere to prescribed medication regimens (Osterberg and Blaschke, Adherence to Medication, New England Journal of Medicine,…

READ MORE
Clinical Trial Rider Insurance Policy from Golden Rule

DENIED: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment

June 8, 2015

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…

READ MORE
Cy Ball's music, Carcinoid on SoundCloud

Cancer and Meditation by Cy Ball

March 19, 2015

Our guest blogger this month is Cy Ball, a retired computer software developer, enthusiastic fly fisherman, and music producer. He was diagnosed with carcinoid cancer about a year after his retirement, with a primary tumor in his intestinal area (still…

READ MORE
Immunotherapy Researchers on Neuroendocrine Tumors

10 Highlights of the Year 2014 for the Carcinoid and Neuroendocrine Tumor Community

December 18, 2014

As the Carcinoid Cancer Foundation looks back on the year 2014, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

READ MORE