Tag: carcinoid cancer

PRRT – FDA Approves Lutathera®, What’s Next?

February 20, 2018

The FDA approval of Lutathera®, a peptide receptor radionuclide therapy (PRRT), on January 26, 2018 signals a new era in treatment options for the neuroendocrine cancer community.  It has also raised a host of questions including:

  • What exactly is
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Zebra Tales: Carcinoid NETs Health Storylines Launches New Feature

February 15, 2018

Carcinoid NETs Health Storylines presents Zebra Tales! This brand new feature enables you to learn and share more about the experiences of others within the neuroendocrine tumor (NET) community.

Our first inspiring story is from Stacie Chevrier –…

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Patient Education on Carcinoid Syndrome: From Diagnosis to Treatment

February 17, 2017

A Live Online Event on Wednesday, March 1, 11 am to 12 noon Eastern Standard Time

Ask Your Questions during the Live Program or Submit Them in Advance

Cancer Coach Live, in partnership with the Carcinoid Cancer Foundation, is presenting a special patient…

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Go Zebra-Striped for NET Cancer Day

Go Zebra-Striped for NET Cancer Day

October 23, 2016

We’re incredibly excited to share our app worldwide to raise awareness of carcinoid and neuroendocrine cancers on and around NET Cancer Day, November 10, and throughout the year. Follow the directions here, https://www.carcinoid.org/go-zebra-striped/

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Trader Joe’s Saved My Life: Steven Muller’s Story

February 29, 2016

The combination of a lengthy road-bike ride, a recovery drink mix, and dried figs from Trader Joe’s led to a health crisis for Steven Muller and a subsequent diagnosis of a neuroendocrine tumor (NET) in his small intestine. Neuroendocrine tumors, including…

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Neuroendocrine Tumors Focus of Upcoming Issue of Hematology/Oncology Clinics

November 27, 2015

Neuroendocrine Tumors will be featured in the February 2016 issue of Hematology/Oncology Clinics. Dr. Jennifer Chan and Dr. Matthew Kulke, both from Dana-Farber Cancer Institute in Boston, Massachusetts are Editors of the issue, published by Elsevier.…

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2nd Annual Tommyland Invitational Charity Golf Tournament, Utah

August 24, 2015

The 2nd Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held on Sunday, September 13, 2015 at the Sun Hills Golf Course in Layton, Utah.  The tournament is being held in memory of Thomas Craig Patterson

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Call for Nominations: 6th Annual Warner Advocacy Award

July 30, 2015

Do you know someone who is a passionate advocate for patients with neuroendocrine tumors (NETs)? Novartis Oncology and The NET Alliance are searching for an outstanding NET patient advocate to recognize and honor with the 6th Annual Warner Advocacy

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Did I Take It . . . or Didn’t I?

July 7, 2015

When it comes to taking pills, drops, injections, and other forms of medication, about one third to one half of U.S. patients do not adhere to prescribed medication regimens (Osterberg and Blaschke, Adherence to Medication, New England Journal of Medicine,…

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Clinical Trial Rider Insurance Policy from Golden Rule

DENIED: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment

June 8, 2015

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…

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