Tag: rare cancer

Understanding Patient Preferences in Neuroendocrine Tumor Treatments

When you meet with your healthcare team do you discuss what is important to you as you consider neuroendocrine tumor treatment options?  You can help physicians better understand patient-centered treatment decision making by participating in this…

Holly’s Story: Taking Control of Carcinoid Cancer

Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?

Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …

Lexicon’s Carcinoid Syndrome Treatment Meets Primary Endpoint in Phase III Clinical Trial

Lexicon Pharmaceuticals Inc. has announced that the pivotal phase III clinical trial, TELESTAR, of its oral drug candidate telotristat etiprate met the primary endpoint in treating cancer patients with carcinoid syndrome that is not adequately controlled…

March 30 Is National Doctors’ Day

March 30 is NATIONAL DOCTORS’ DAY. In recognition of carcinoid/neuroendocrine tumor (NET) doctors – you are our heroes and superheroes!! Pictured are some of the NET specialists throughout the United States.

Pictured by columns, left to right, top …

Intelligent Patients — Just What the Doctor Didn’t Order by Ronny Allan

The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan (pictured), a carcinoid cancer patient from the UK,…

10 Highlights of the Year 2013 for the Carcinoid and Neuroendocrine Tumor Community

As the Carcinoid Cancer Foundation looks back on the year 2013, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

9th Annual Run for Hope to Benefit Carcinoid Cancer Research and Education

Get your running shoes ready for the 9th ANNUAL RUN FOR HOPE on Saturday, July 13 in Fort Collins, Colorado – run, walk, or cheer people on during the 5K event!!  Neuroendocrine Cancer:  New Treatments and New Hope, an educational event with keynote speakers…

A Possible Cure for Neuroendocrine Cancer: Exciting Update!

Back in September 2012 we shared the following:  “For $1.6 million (1 million pounds) an oncolytic virus that has the potential to cure neuroendocrine cancer can be named for the donor.  At Uppsala University in Sweden researchers are ready to start a …

Cycling the C&O Canal for Carcinoid

When Diane and Dwight Mikulis cycle the 184 miles of the Chesapeake & Ohio Canal this summer, they will bring greater awareness to the rare cancer that Diane’s mother, Stella Mae Lux Behers, battled for six years after being diagnosed in 1996. Like …

Worldwide NET Cancer Awareness Day Alliance Launches Zebra Cartoon Sequel

Global recognition of the need for NET (neuroendocrine tumor) cancer awareness will be marked by the third annual worldwide NET Cancer Day on November 10, 2012.  In anticipation of the day, the Worldwide NET Cancer Awareness Day Alliance has launched…