Tag: pheochromocytoma

Karel Pacak, MD, PhD, DSc Oct 21, 2021

Dr. Karel Pacak to Be Featured Guest for CCF’s Luncheon with the Experts

October 17, 2021

Karel Pacak, DSc, MD, PhD, an internationally recognized expert in the diagnosis and treatment of neuroendocrine tumors, especially pheochromocytoma and paraganglioma, will be the featured guest for Luncheon with the Experts on Thursday, October…

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NET Webinar, November 21, 2019

Surgical Management of Neuroendocrine Tumors, November 21 Webinar for Patients and Caregivers

November 13, 2019

You’re invited to participate in a Neuroendocrine Tumor Awareness Month Webinar on November 21 from 7 to 9 pm, Eastern Time, presented by the American Association of Endocrine Surgeons (AAES). Four national experts will discuss the surgical management…

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Jennifer Chan, MD and Matthew Kulke, MD

Neuroendocrine Tumors Focus of Upcoming Issue of Hematology/Oncology Clinics

November 27, 2015

Neuroendocrine Tumors will be featured in the February 2016 issue of Hematology/Oncology Clinics. Dr. Jennifer Chan and Dr. Matthew Kulke, both from Dana-Farber Cancer Institute in Boston, Massachusetts are Editors of the issue, published by Elsevier.…

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Jim Weiveris

10 Highlights of the Year 2013 for the Carcinoid and Neuroendocrine Tumor Community

December 18, 2013

As the Carcinoid Cancer Foundation looks back on the year 2013, we reached out to physicians, patients, support group leaders, listserv managers, patient advocates, and business colleagues to see what they thought were among the highlights of the past…

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Maria Gonzalez’s Book, But You Look So Good

But You Look So Good . . . Stories by Carcinoid Cancer Survivors

June 28, 2013

The intimate stories of those living with a poorly understood and rare cancer are shared in Maria Gonzalez’s new book, But You Look So Good . . . . Stories by Carcinoid Cancer Survivors. Over 20 patient and caregiver stories explore how carcinoid and neuroendocrine…

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NET Cancer Day Zebra Cartoon Brings Awareness to Rare Cancers

10 Highlights of the Year 2012 for the Carcinoid and Neuroendocrine Tumor Community

December 20, 2012

As the Carcinoid Cancer Foundation looks back on the year 2012, there were many significant events and advances for the carcinoid and neuroendocrine tumor (NET) community.  Here are 10 of the year’s important stories:

1)       NET Cancer Day, November

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Cycling the C&O for Carcinoid

Cycling the C&O Canal for Carcinoid

August 12, 2012

When Diane and Dwight Mikulis cycle the 184 miles of the Chesapeake & Ohio Canal this summer, they will bring greater awareness to the rare cancer that Diane’s mother, Stella Mae Lux Behers, battled for six years after being diagnosed in 1996. Like …

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Tannis Brown

Neuroendocrine Cancer Survivor Featured on Discovery Fit & Health TV Show

July 8, 2012

THIS JUST IN:  Tannis Brown, a pheochromocytoma patient and Vice President of the Pheo Para Troopers, will be featured on the Discovery Fit & Health Network on Monday, July 9 in a program titled Diagnosis: Dead or Alive.* The 60 minute show will focus…

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Clincial Trials logo

Phase II Clinical Trial Recruiting Carcinoid and Related Neuroendocrine Tumor Patients

July 21, 2011

Participants are being recruited for a Phase II clinical study of capecitabine and temozolomide (CAPTEM) for neuroendocrine cancer patients with progressive, differentiated, metastatic neuroendocrine tumors (NETs). Patients with carcinoid,

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CCAN logo

9 Conferences for the Carcinoid and Neuroendocrine Tumor Community

July 19, 2011

If you are a carcinoid or NET cancer survivor, caregiver, family member or medical professional you can learn about what’s happening now and what’s new in carcinoid/NETs treatments, clinical trials, research, and more from specialists…

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