News and Notes from the Carcinoid Cancer Foundation, March 2022

Ask the NET Expert — A New Web-Based Program

The Carcinoid Cancer Foundation is excited to have launched in February a new web-based program for the neuroendocrine tumor (NET) community – Ask the NET Expert. Each month, we are featuring a different physician who specializes in neuroendocrine cancer. This program gives NET patients and caregivers the unique opportunity to get the expertise of doctors from around the country in all areas of medicine via CCF’s website. Dr. Jaydira Del Rivero, medical oncologist and endocrinologist, is the NET expert for March 2022.  Dr. Del Rivero is the Director of the Neuroendocrine Tumor Program as well as a research scientist in the Developmental Therapeutics Branch at the National Cancer Institute of the National Institutes of Health in Maryland.  Read more about the program here and how to submit questions,, and check out questions posed and answered to date.  Submit your non-case specific questions for Dr. Del Rivero today!

Jaydira Del Rivero, MD


New Appointment for NET Expert Dr. Boris Naraev

Boris_Naraev, MDCongratulations to Dr. Boris Naraev upon being appointed Medical Oncology Leader – Gastrointestinal, Neuroendocrine, and Rare Cancers Program at the Anderson Family Cancer Institute in Jupiter, Florida. Dr. Naraev previously led the Neuroendocrine Cancer Program at Banner MD Anderson Cancer Center in Phoenix, Arizona. We wish Dr. Naraev all the best in his new practice! Click here for his contact information:…/boris-g-naraev-md-phd-facp…/


The Passing of Dr. Thomas O’DorisioThomas O’Dorisio, MD_3

It is with great sadness that we share the passing of Dr. Thomas O’Dorisio on February 2, 2022.  Dr. O’Dorisio was a pioneer and leader in the field of neuroendocrine cancer; a compassionate and dedicated physician; an outstanding colleague at the University of Iowa; and beloved husband to Dr. M. Sue O’Dorisio, father and grandfather. He will be missed by all.


Steven Libutti, MD_2New NET Research Collaboration

Exciting news about a new research collaboration to discover and develop novel therapies targeting immune checkpoint proteins for the treatment of neuroendocrine tumors and other cancers.  The collaboration was announced by NexImmune Inc., a clinical-stage biotechnology company, working with Rutgers University. NET expert Dr. Steven K. Libutti (pictured), Director of Rutgers Cancer Institute of New Jersey, Vice Chancellor of Cancer Programs, Rutgers Biomedical and Health Sciences, and Senior Vice President of Oncology Services, RWJBarnabas Health, will be the principal investigator. READ MORE

International Neuroendocrine Cancer Alliance Adds New NET FactsheetsINCA NET Information in Many Lanuagues (002)

The International Neuroendocrine Cancer Alliance (INCA), of which the Carcinoid Cancer Foundation is a proud member, has released additional NET factsheets.  There are 20 factsheets available ranging from Primary Neuroendocrine Cancer to Carcinoid Syndrome to High Grade Neuroendocrine Cancer.  Choose from 10 languages to download the factsheets at no charge.


Pheo Para Alliance Announces New Website Resource Focused on Children

The Pheo Para Alliance has added a new section to their website, Pheo Para in Kids, While pheochromocytoma and paraganglioma are rare in adults they are even rarer in children. Check out this excellent resource for parents and caregivers.

Pheo Para in Kids

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