Tag: pancreatic neuroendocrine tumors

Remembering Dr. Martin Luther King and Sharing the Carcinoid Cancer Foundation’s Dream

Fifty years ago today, August 28, 1963, the Rev. Dr. Martin Luther King gave his historic speech, “I Have a Dream.”  That enormously powerful speech, http://youtu.be/smEqnnklfYs, still resonates with people decades later. As we listened to Dr. King’s…

But You Look So Good . . . Stories by Carcinoid Cancer Survivors

The intimate stories of those living with a poorly understood and rare cancer are shared in Maria Gonzalez’s new book, But You Look So Good . . . . Stories by Carcinoid Cancer Survivors. Over 20 patient and caregiver stories explore how carcinoid and neuroendocrine…

A Possible Cure for Neuroendocrine Cancer: Exciting Update!

Back in September 2012 we shared the following:  “For $1.6 million (1 million pounds) an oncolytic virus that has the potential to cure neuroendocrine cancer can be named for the donor.  At Uppsala University in Sweden researchers are ready to start a …

Neuroendocrine Tumors Featured in Society of Nuclear Medicine and Molecular Imaging Patient Program

Josh Mailman, President of the NorCal CarciNET support group and Chair of the Patient Advocate Advisory Board for the Society of Nuclear Medicine and Molecular Imaging (SNMMI), will give the Welcome presentation for the SNMMI Patient Education Day …

OncLive TV Releases 2 More Videos in Neuroendocrine Tumors Series

Two new videos have been released in the OncLive TV series on carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors, and genetic syndromes that predispose people to develop pancreatic NETs such MEN1 (multiple endocrine…

New OncLive TV Series Focuses on Neuroendocrine Tumors

Carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors and even more uncommon NETs such as goblet cell carcinoid and mixed adenocarcinomas, are discussed by a panel of medical experts in this new video series from …

New Online Pancreatic Neuroendocrine Tumor (pNET) Support Community

There’s a wonderful new resource for pancreatic neuroendocrine tumor (pNET) patients and their loved ones at Inspire, the creator of online health and wellness communities for patients and caregivers, in partnership with national patient advocacy…

I Have Cancer. And I’ve Never Felt Better!

Imagine nine years of debilitating gastrointestinal illness; misdiagnoses from doctors that include gastroparesis, pancreatitis, functional dyspepsia, Irritable Bowel Syndrome (IBS), and being told to reduce the stress in your life; a battery…

10 Highlights of the Year 2012 for the Carcinoid and Neuroendocrine Tumor Community

As the Carcinoid Cancer Foundation looks back on the year 2012, there were many significant events and advances for the carcinoid and neuroendocrine tumor (NET) community.  Here are 10 of the year’s important stories:

1)       NET Cancer Day, November …

Carcinoid Cancer Foundation Releases New Video Series Beginning with “The ABC’s of Carcinoid/NETs”

What is the most common kind of neuroendocrine tumor (NET)?  How do these tumors grow?  What is carcinoid syndrome?  What are the quality of life issues for patients?  In “The ABC’s of Carcinoid/NETs,” three of the world’s leading carcinoid and NET cancer…