Worldwide NET Cancer Awareness Day Updates

With less than five months until the second Worldwide NET Cancer Awareness Day on Thursday, November 10, 2011, there have been many exciting developments to share with the carcinoid and NET community.

The first Chinese NET website ( was launched by the Hope Society for Cancer Care in Taiwan on June 14th. Featured on the site is Prince Star, a renowned Taiwanese astrologer, who is also a NET cancer survivor.  Diagnosed in 2006 he spent 10 days in a coma and in order to save his life, surgeons amputated his left leg.  In the YouTube video on the website, Prince Star talks about his treatment and experience with NET cancer.  His mission now is to help bring about greater awareness of NETs.  Significant press coverage about the launch of the site resulted in more than 50 news clippings from print, online, and broadcast media.

APTED, the French neuroendocrine cancer patient groupThe World NET Community welcomed its newest member, APTED, L’Association des Patients porteurs de Tumeurs Endocrines Diverses. Pascal Louw is the new President of APTED.

NET cancer awareness is growing throughout the world. The Australian Broadcasting Corporation’s national radio station featured neuroendocrine tumors in a broadcast on June 20. Dr. John Leyden, Chairman of the Unicorn Foundation in Sydney, and a NET patient talked about NET symptoms, treatments, and misdiagnoses. Click on Download Audio to listen to the 10-minute broadcast. A transcript of the broadcast is also available, CLICK HERE.

Maryann Wahmann, Vice President of the Carcinoid Cancer Awareness Network (CCAN) and a member of the Membership Council of Worldwide NET Cancer Awareness Day, announced that an American flag will be flown over the U.S. Capitol Building in Washington, DC on November 10 in honor of CCAN and Worldwide NET Cancer Awareness Day.

Peter Stothard, a pancreatic NET survivor, is featured in an article in the UK Daily Mail.  Mr. Stothard, a patron of the NET Patient Foundation and author of On the Spartacus Road, A Spectacular Journey through Ancient Italy, reflects on a new book entitled The Cancer Survivor’s Companion and his experience as a cancer survivor.  READ MORE

Peter Stothard, NET cancer patient

Peter Stothard

The Membership Council of Worldwide NET Cancer Awareness Day welcomed Carmen-miranda Kleinegris as the representative for Netherlands NET group, Stichting NET-groep.  Here’s a link to their website in Dutch,  and to the website translated into English, CLICK HERE.

Stichting NET=groep, the NET cancer patient group from the Netherlands

The Prime Minister of Norway, @jensstoltenberg, is following @NETCancerDay on Twitter!

There are more than 1,500 members of the NET Cancer Day Facebook community!

There is now an Executive Committee within the Membership Council (formerly known as the Steering Committee) of Worldwide NET Cancer Awareness Day Alliance.  The Executive Committee members are:

John Leyden, MD, The Unicorn Foundation, Australia (Chairman)
Tore Aasbu, CarciNor, Norway
Pierrette Breton, Carcinoid Neuroendocrine Tumor Society (CNETS-Canada)
Grace Goldstein, Carcinoid Cancer Foundation, United States
Agneta H-Franzen, The Carcinoid Patient Association (CARPA), Sweden
Maia Sissons, The NET Patient Foundation: Incorporating Living with Carcinoid, United  Kingdom

Also serving on the Membership Council are:

Catherine Bouvier, NET Patient Foundation: Incorporating Living with Carcinoid, United Kingdom
Kari Brendtro, North American Neuroendocrine Tumor Society (NANETS), United States
William Claxton, Carcinoid & Neuroendocrine Tumor Society (CNETS-Singapore)
Maureen Coleman, Carcinoid & Neuroendocrine Tumor Society (CNETS-Canada)
Jaroslaw Cwikla, MD, Stowarzyszenie Pacjentow i Osob Wspierajacych Chroych na Guzy Neuroendokrynne, Poland
Carmen-miranda Kleinegris, Stichting NET-groep, The Netherlands
Teodora Kolarova, APOZ and Friends, Bulgaria
Katharina Mellar, Bundesweites Netzwerk Neuroendokrine Tumoren (NeT) e.V., Germany
Maryann and Robert Wahmann, Carcinoid Cancer Awareness Network (CCAN), United States

To show your support for Worldwide NET Cancer Awareness Day please SIGN and SHARE our Proclamation (, FOLLOW us on Twitter (@NETCancerDay), and become a FAN on Facebook.

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