News

CCF Announces Partnership with Clarified Precision Medicine

The Carcinoid Cancer Foundation (CCF) and Clarified Precision MedicineTM have partnered to offer neuroendocrine tumor (NET) patients the opportunity to receive an expert review of their tumor sequencing results from any commercially available…

SNMMI NET Patient Education Day 2021 Now Available for Viewing Online

The SNMMI, Society of Nuclear Medicine & Molecular Imaging, Annual NET Patient Education Day is now available for viewing online. The 2021 event featured a virtual, online, live webinar offering patients, caregivers, and advocates a unique opportunity…

New NET Support Group in Africa

Exciting news for NET patients and your loved ones in South Africa and throughout Africa – you are invited to join the new online Neuro-Endocrine Tumor (NET) Southern Africa Support Group, NETSAS. The goal of the group is to help you and your family adjust…

New Survey for the NET Community

You can help advance research in the neuroendocrine tumor community by participating in an international survey being conducted by a pharmaceutical company in the United States, United Kingdom, Ireland, and Canada. The goal of the study is to better…

New Drug Application Accepted by FDA

The U.S. Food and Drug Administration, FDA, has accepted the filing of the new drug application (NDA) for surufatinib as a potential therapeutic option for patients with pancreatic and extra-pancreatic neuroendocrine tumors (NETs). READ MORE

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Lisa Yen of LACNETS Receives the 2020 Monica Warner Award

Congratulations to Lisa Yen, NP, NBC-HWC, of LACNETS upon being selected as the 2020 Monica Warner Award recipient! The award, established by Novartis Oncology in 2009, is presented annually to “honor a patient, supporter, or caregiver who most embodies…

Diane Reidy-Lagunes, MD, to be Featured Guest for CCF’s Luncheon with the Experts

Diane Reidy-Lagunes, MD, is the featured guest for CCF’s Facebook Live Luncheon with the Experts on Thursday, June 10 from 12 noon to 1 pm, Eastern Time.  Dr. Reidy-Lagunes, a medical oncologist, is Associate Deputy Physician-In-Chief, Regional…

Satya Das, MD, to be Featured Guest for Luncheon with the Experts

Satya Das, MD, MSCI, medical oncologist, will be the featured guest for Luncheon with the Experts on Thursday, May 6, 2021 from 1 to 2 pm, Eastern Time. PLEASE NOTE THIS CHANGE OF TIME FOR THE MAY 6Th PROGRAM ONLY. Dr. Das is Lead of the Neuroendocrine…

NJ Program Offering Free Rides to COVID-19 Vaccination Sites

Are you a resident of New Jersey who needs assistance getting to and from a vaccination site?  NJ Transit has a new public-private partnership offering New Jersey residents complimentary rides to and from vaccination sites.  The “VAXRIDE” program is…

Dr. Daneng Li to be Featured Guest for Luncheon with the Experts

Daneng Li, MD, medical oncologist, will be the featured guest for Luncheon with the Experts on Thursday, April 29, 2021 from 12 noon to 1 pm, Eastern Time. Dr. Li is Co-Director of the Neuroendocrine Tumor Program at City of Hope in Duarte, California. He…