Webinar for the NET Community: Understanding Medicare Part D Coverage

November 1, 2017

On Thursday, November 16, 2017 from 1:00 to 2:00 pm PST, NorCal CarciNET Community will host a webinar to help NET patients around the United States better understand the process for selecting Part D Medicare Coverage.  Ann Kayrish from the National Council…

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First New Mexico NET Patient Conference and CME for Healthcare Professionals

October 15, 2017

On November 4, the University of New Mexico Comprehensive Cancer Center will host 2 events: a CME entitled Neuroendocrine Cancer Management: Evolving Therapies and Approaches and the first NET patient conference in the state, Understanding My NET

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CCF Offers Toolkit for NET Cancer Day Media Coverage

October 2, 2017

The Carcinoid Cancer Foundation, with support from Advanced Accelerated Applications, is offering a Media Toolkit to assist organizations or individuals who planning an awareness-raising event to incorporate news media in their efforts.  The Toolkit…

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Free Bicycles Raffle for Children Ages 7 to 9

September 22, 2017

Do you know a child in the NET cancer community – a child diagnosed with NET cancer or a child living in a family touched by NET disease – who would like to win a bicycle? The Carcinoid Cancer Foundation and Advanced Accelerator Applications are partnering…

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Arizona Symposium on Patient Self-Advocacy — August 22

August 10, 2017

The Arizona Carcinoid & Neuroendocrine Foundation, Inc. (AZCNF) invites you to attend VOICES: A Symposium on Patient Self-Advocacy on Tuesday, August 22 at the Banner MD Anderson Cancer Center in Gilbert, Arizona.  The theme of VOICES will…

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Now Available on Demand — Patient Education on Carcinoid Syndrome from Diagnosis to Treatment

June 15, 2017

Watch now, program recorded live on March 1, 2017! Whether you are a newly diagnosed neuroendocrine cancer patient with carcinoid syndrome or have been living with carcinoid syndrome for years, this interactive program with a neuroendocrine tumor …

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Learning to Speak Up with Cancer

June 9, 2017

Do you have concerns about speaking with your doctor? Wonder how to convey what you are feeling physically and emotionally? Josh Mailman’s newly published article in CURE, “What stands in the way of patient-physician communications and how can we get…

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NET Specialist David C. Metz, MD Receives Prestigious AGA Recognition Award

May 14, 2017

Congratulations to Dr. David C. Metz, Co-Director of the Neuroendocrine Tumor Center at Penn Medicine, who has received the American Gastroenterological Association (AGA) Distinguished Clinician Award, Clinical Academic Practice. The AGA cited…

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Neuroendocrine Tumors on TV: Rare Disease Day Special, February 28, 2017

February 28, 2017

NETs on TV!  The Carcinoid Cancer Foundation teamed up with The Balancing Act and Advanced Accelerator Applications to raise awareness about carcinoid and neuroendocrine tumors (NETs) during a feature on Lifetime TV on February 28 (Rare Disease Day)

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Breaking News on Rare Disease Day — FDA Approves New Drug for Carcinoid Syndrome Diarrhea

February 28, 2017

On February 28, 2017, the US Food and Drug Administration (FDA) approved XERMELO™ (telotristat ethyl) 250 mg as a first and only orally administered therapy for the treatment of carcinoid syndrome diarrhea in combination with somatostatin analog (SSA)…

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