News

TerSera Therapeutics Acquires Xermelo and Continued NET Patient Nursing Support Services

TerSera Therapeutics recently acquired Xermelo (telotristat ethyl) from Lexicon Pharmaceuticals. Xermelo is the first and only FDA-approved prescription medicine, used along with somatostatin analog (SSA), for carcinoid syndrome diarrhea …

FDA Approves New NET Diagnostic Imaging Radiopharmaceutical

The U.S. Food and Drug Administration (FDA) has approved Detectnet™, copper Cu 64 dotatate injection. This is a new diagnostic radiopharmaceutical for use with positron emission tomography (PET) for the detection, localization, and monitoring of…

Facebook LIVE with Theresa Wittenberg

Join us on Monday, June 22nd at 12 noon EST, for a special Facebook Live event! We’ll hear from Theresa Wittenberg, PA for an in-depth discussion about Quality of Life for neuroendocrine tumor patients. We hope to see you there!

If you have any questions …

Facebook LIVE with Josh Mailman

Join us on Thursday, May 28th at 12 noon EST, for a special Facebook Live event! We’ll hear from neuroendocrine tumor (NET) patient advocate Josh Mailman for an in-depth discussion about Support Groups. We hope to see you there!

If you have any questions…

10th Annual Monica Warner Awards Announced

Congratulations to Pam Ryan and Gil Schaenzle who have been named recipients of the 10th Annual Monica Warner Award. Both Pam and Gil embody the passion, dedication, leadership, and spirit of the late Monica Warner, a driving force in the neuroendocrine…

COVID-19: Facebook LIVE with Amr Mohamed, MD

Join us on Thursday,  May 7th at 12 noon EST, for a special Facebook Live Event! We’ll hear from neuroendocrine tumor (NET) expert Dr. Amr Mohamed for an in-depth discussion about COVID-19: Your Health and Safety. We hope to see you there!

If you have any …

Charity Streaming Event to Support CCF

Calling all gamers! Patrick Kanouse, a writer and role-playing game master, along with High Shelf Gaming and the Death Die Club hosted a charity streaming game in support of the Carcinoid Cancer Foundation (CCF) on Friday, May 1. He ran the Classic Traveller…

Breaking News: Ipsen Temporarily Modifies Program for Receiving Somatuline Depot during the Pandemic

Ipsen CARES is temporarily making Somatuline Depot available, at no charge, for eligible patients who cannot get their medicine because they are homebound due to the pandemic, and allowing eligible patients covered by Medicare or Medicaid to participate…

COVID-19: Facebook Live with Namrata Vijayvergia, MD

Join us on Tuesday, April 28th at 12 noon EST, for a special Facebook Live Event! We’ll hear from neuroendocrine tumor (NET) expert Dr. Namrata Vijayvergia for an in-depth discussion about COVID-19: Your Health and Safety. We hope to see you there!…

Ipsen Temporarily Modifies Program for Receiving Somatuline Depot During the Pandemic

Ipsen CARES is temporarily making Somatuline Depot available, at no charge, for eligible patients who cannot get their medicine because they are homebound due to the pandemic, and allowing eligible patients covered by Medicare or Medicaid to participate…