From New York to California, in Canada and online, there are many upcoming events for the neuroendocrine tumor (NET) community during the months of February, March, and April.
“Whoever you are, you have the power to reduce the impact of cancer for yourself, the people you love and for the world.” World Cancer Day is February 4. 2019. It marks the launch of the 3-year ‘I Am and I Will’ campaign. ‘I Am and I Will’ is an empowering call-to-action urging for personal commitment and represents the power of individual action taken now to impact the future. READ MORE
The Seventh Annual Bay Area Neuroendocrine Patient Education Conference will be held at UCSF on Sunday, February 10, 2019 from 8:30 am to 5 pm. Speakers from UCSF, Stanford, Kaiser, and CSC will discuss the latest in NET patient care. There will be breakout sessions for caregivers and specific topic areas as well as extended lunch table talks for networking and information sharing. The keynote speaker will be Dr. Sonia Lupien, the Director and Founder of the the Centre of Studies on Human Stress at the Institut universitair en santementale de Montreal, and will speak on “Stress and Cancer: From Science to Personal Perspective.” READ MORE
Frankly Speaking about Cancer: Neuroendocrine and Carcinoid Tumors is a workshop to be presented by the Cancer Support Community of Greater Philadelphia on Wednesday, February 13 at 6 pm. This FREE workshop for patients, loved ones, and the public will raise awareness about NET diagnoses, treatment options, managing side effects, coping with the psychosocial impact of carcinoid NET tumors, and how to foster constructive dialogue with your healthcare team. The featured presenters are Bonnie Bennett, RN, BSN, who is the Nurse Coordinator for the Neuroendocrine Tumor Treatment Program at the University of Pennsylvania, and Diann Boyd, BSN RN OCN, Oncology Nurse Navigator for the Neuroendocrine Tumor Treatment Program at the University of Pennsylvania. The workshop will also be available online: https://zoom.us/j/2154413290. READ MORE
On February 28, 2019, the twelfth international Rare Disease Day, hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities. Read more on the Rare Disease Day US website: https://www.rarediseaseday.org/event/united-states/2810. Read more on the Rare Disease Day European website: https://ern-euro-nmd.eu/event/rare-disease-day-2019/
Neuroendocrine Cancer Patient Conference of the Carolinas will be presented by the Neuroendocrine Cancer Awareness Network (NCAN) in Charleston, South Carolina on Saturday, March 2. The day-long program will feature neuroendocrine cancer physicians speaking on topics such as an introduction to neuroendocrine tumors, diagnostic scans, clinical trials, liver metastases, controlling serotonin, interventional radiology, and PRRT, as well as a panel featuring NET patients. READ MORE
Help educate local physicians about NETs — encourage your doctor to register for the NANETS, North American Neuroendocrine Tumor Society, Phoenix Regional NET Education Conference on Saturday, March 16. Offered in partnership with Banner MD Anderson Cancer Center, the NANETS Phoenix Regional Conference will bring together area experts in the management of NET cancers with guest speakers from across the county. Topics to be addressed include: An Overview of Neuroendocrine Tumors, Surgical Treatment of NETs, Role of Hormones in NETs, Medical Management of NETs, Hereditary Syndromes with NETs, Pulmonary NETs, Liver-Directed Treatments for Patients with Metastatic NETs, and Case Presentations and Multidisciplinary Tumor Board. READ MORE
Run, walk, or volunteer and support the NorCal CarciNET Community at the 2019 Oakland Running Festival on Sunday, March 24, 2019. Over the past 6 years, more than 210 individuals have taken part in the Oakland Running Festival wearing the NorCal CarciNET zebra running gear! Join them in 2019 too!! READ MORE
Frankly Speaking about Cancer: Neuroendocrine and Carcinoid Tumors is a workshop to be presented at Gilda’s Club New York City on Tuesday, March 26, 2019 and on Facebook Live. Neuroendocrine cancer expert Edward M. Wolin, MD, Director of the Center for Carcinoid and Neuroendocrine Tumors at The Tisch Cancer Institute, Mount Sinai Health System, will be the guest presenter. This FREE workshop will raise awareness about NET diagnoses, treatment options, managing side effects, coping with the psychosocial impact of carcinoid NET tumors, and how to foster constructive dialogue with your healthcare team. If you are unable to attend in person, tune in on Facebook Live, https://www.facebook.com/GildasClubNYC/. READ MORE
MEN 2019: 16th International Workshop on Multiple Endocrine Neoplasia Conference will be hosted by MD Anderson Cancer Center in Texas from March 27 – 29. The focus will be on emerging topics in the genesis and therapy of malignant endocrine tumors associated with multiple endocrine neoplasia and other hereditary tumor syndromes. Topics include: Medullary Thyroid Carcinoma, Gastroenteropancreatic Neuroendocrine Tumors, Parathyroid Carcinoma, Malignant Pheochromocytoma/ Paraganglioma, and Pituitary, Renal and Adrenocortical Tumors. READ MORE
The CNETS Canada 2019 National NET Patient Conference on April 6, 2019 will be held at the Sheraton Toronto Airport Hotel and Conference Center. The objective of the conference is to give neuroendocrine cancer patients hope by showcasing the latest diagnostics and treatments that will improve their quality of life and longevity. Presenters will be the top multidisciplinary NET specialists from across Canada as well as other related health care professionals with an interest in neuroendocrine cancer. Rooms are available for booking at a discounted rate between April 2 and April 10 by CLICKING HERE. Conference Details to Come
