Recent News on Carcinoid.org

NANETS 2012 Early Career Development Award

March 29, 2013

Congratulations to Lauren Fishbein, MD, PhD, upon receiving NANETS’ 2012 Early Career Development Award!  Dr. Fishbein’s research project is “Somatic Mutations in Pheochromocytoma and Paragangliomas.” According to Dr. Fishbein, “"Our hope is to determine if distinct patterns of somatic mutations are associated with different inherited mutations.  Since pheochromocytomas and paragangliomas are tumors associated with high morbidity and mortality with limited treatments for recurrent or metastatic disease, it is critical to understand tumorigenesis [malignant transformation] in order to identify novel molecular markers for future therapeutic targets." The award of $50,000 is supported by Novartis with the goal of improving outcomes for NET patients.

I Have Cancer. And I've Never Felt Better!

March 1, 2013

Join Tracy Krulik, who was diagnosed with a pancreatic neuroendocrine tumor, on her "wild journey from unraveling a medical mystery that took nine years to solve, to navigating the science and art of medicine in search of the right treatments, to finally awakening to a healthier, more balanced life -- with cancer."  Tracy's newly published book, I Have Cancer. And I've Never Felt Better!, can be ordered through Amazon

NET Picture Party

January 1, 2013

Join us for a virtual, global NET Picture Party scheduled for November 10 – you don’t even have to leave your home!! Take a photo of yourself or your friends and family or co-workers having your own zebra party. You may have zebra cupcakes, black and white balloons or a zebra-striped t-shirt. Or you may just want to take a photo of your favorite zebra bed socks! Anything that makes you feel part of the zebra community. Please share this post with all of your friends and loved ones and invite them to join the NET Picture Party!!

Upload your photo on the NET Cancer Day Facebook page, and post a comment along with your photo, telling us briefly where the picture was taken (i.e. location, city, state/province, country).

Note: It is very important that you include the words “NET Picture Party” in your comment. This will ‘tag’ your photo and send it through to our special party page on the NET Cancer Day website. To view the images go to http://netcancerday.org/support-us/net-picture-party, we expect many countries will participate!

NET Cancer Day Zebra

NETumor Humor Benefit

December 6, 2012

NETumor Humor Benefit for Cedars-Sinai Carcinoid and Neuroendocrine Tumor Research Cancer Fund

Great comedy performances, live music and a raffle at the M.I. Westside Comedy Theater in Santa Monica, California!

Proceeds will benefit the Cedars-Sinai Carcinoid and Neuroendocrine Tumor Research Cancer Fund at the Samuel Oschin Comprehensive Cancer Institute in Los Angeles, California.  Dr. Edward M. Wolin, carcinoid/NET specialist, is Co-Director of Cedar-Sinai's Carcinoid and Neuroendocrine Tumor Program.

READ MORE

NETs-Liver-Metastases Landmark Consensus Conference, London, December 12-13, 2012

December 1, 2012

Neuroendocrine Tumor Liver Metastases Landmark Consensus Conference to be held at The Royal College of Physicians, London, UK, December 12-13, 2012

A landmark conference on neuroendocrine liver metastases was held in London, UK at The Royal College of Physicians on December 12 & 13, 2012. Over 300 experts attended this state-of-the-art consensus conference, the goal of which is to provide internationally accepted statements on the management of NET liver metastases. http://net-liver-mets.com/

CCF New Video Series Begins with "The ABC's of Carcinoid and Neuroendocrine Tumors"

November 1, 2012

What is the most common kind of neuroendocrine tumor (NET)?  How do these tumors grow?  What is carcinoid syndrome?  What are the quality of life issues for patients?  In “The ABC’s of Carcinoid/NETs,” three of the world’s leading carcinoid and NET cancer specialists – Dr. Richard R.P. WarnerDr. Edward M. Wolin, and Dr. Eugene A. Woltering  – talk about the advice they offer their patients, the advances they have seen during their careers, and what they anticipate will be available for NET patients in the future. (Click on the words YouTube in the bottom right of the video to see it in a larger size).  READ MORE about the video series.

New Carcinoid/NET Support Group in Los Angeles, California

October 15, 2012

There's a new support group in Los Angeles and the first meeting was held on Thursday, October 25th! Edward M Wolin, MD talked about "Exciting News from the New Orleans NET Conference." Pictured below is Dr. Wolin. Read More

Edward Wolin, MD, a leading carcinoid/NET specialist from Cedars-Sinai in Los Angeles, California

Vote for a Cause, The Lois Merrill Foundation

October 1, 2012

Vote for a Cause!  Here’s a chance to help a terrific organization in the carcinoid/NET community, The Lois Merrill Foundation (LMF), win a $500 donation and a 2 week feature on iDea4aCause.com, with the opportunity to receive up to 20% of great daily deals for restaurants, spans, fun activities and more in San Diego. Voting continues through October 14, read more.

The Lois Merrill Foundation

 

New Edition of ISI Neuroendocrine Tumors Handbook Now Available

October 1, 2012

Inter Science Institute in California specializes in research and development in the area of neuroendocrine tumors (NETs). The current 5th edition handbook, Neuroendocrine Tumors: A Comprehensive Guide to Diagnosis and Management, is now available for download on ISI's website or by contacting ISI at requests@interscienceinstitute.com. This is an excellent book to share with your physician!

2012 National NET Patient Conference

September 1, 2012

Register now for the 2012 National NET Patient Conference to be held September 20 – 22, 2012 in New Orleans, Louisiana.   This is an excellent opportunity to get information about NETs from nationally and internationally recognized carcinoid/NETs specialists.  Whether you are newly diagnosed or have been living with a NET for many years, you will leave the conference with timely information and be a better advocate for yourself. In 2009 this conference was sold-out with 500 in attendance!!! Guests will stay at the Astor Crowne Plaza in the heart of the French Quarter, where Canal Street meets Bourbon Street, and you are steps away from world-renowned dining and the amazing sounds of New Orleans' Jazz or Blues. Click here for more information and to register:   http://conta.cc/zgB5hV.