Recent News on

Denied: Michael Farris' Journey with Insurance for Neuroendocrine Cancer Treatment

June 10, 2015

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught with difficulty. Read more

CNETS Singapore Presents New Webinar Series Featuring Neuroendocrine Cancer Experts

April 22, 2015

The Carcinoid & Neuroendocrine Tumor Society (CNETS) of Singapore is embarking on a series of webinars on various topics related to the diagnosis and treatment of neuroendocrine cancers. Read more

Celebrating Carcinoid/NET Physicians on National Doctors' Day

March 29, 2015

March 30 is NATIONAL DOCTORS’ DAY. We recognize the amazing physicians in the carcinoid/neuroendocrine tumor (NET) community – you are our heroes and superheroes!! Read more

New Mobile Platform to Help Carcinoid Cancer and NET Patients Take Control of Their Rare Diseases

December 9, 2014

The Carcinoid Cancer Foundation and the patient intelligence health solution provider Self Care Catalysts have announced a new partnership to provide carcinoid and neuroendocrine tumor (NET) patients with a new mobile patient support tool. The Carcinoid NETs app will be made available free of charge early in 2015, accessible online through a desktop computer and as a mobile app which can be downloaded from the Google Play and Apple App Stores.  Read more

Songs for Life -- Please Vote for Giovanna Imbesi's "Hush"

November 21, 2014

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.    Giovanna has donated “Hush” to Songs for Life to help raise awareness of carcinoid and neuroendocrine tumor (NET) cancers. Songs for Life is a new contest to support cancer research. Voting is taking place on Facebook through November 30, 2014.  Read more

NET Patient's Perspective on Integrative Oncology

November 19, 2014

“A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer” by Josh Mailman has been published in the November 2014 issue of the Journal of the National Cancer Institute Monographs focused on Integrative Oncology.  Diagnosed with a metastatic neuroendocrine tumor (NET) of the pancreas 8 years ago, Josh has chosen to combine conventional medical treatments for NETs with complementary care, including stress relief, managing fatigue following conventional  treatments, and diet. Read more

Luncheon with Carcinoid and Neuroendocrine Tumor Experts

November 13, 2014

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Lunch with the Experts on Sunday, December 14, 2014 in New York City. This is a unique opportunity to share experiences with others who have similar concerns and to hear from expert physicians in an informal setting on issues ranging from NET cancer treatments and surgery to follow-up testing and new developments. Read more

US Results from First Global NET Patient Survey

November 9, 2014

The Carcinoid Cancer Foundation and the Caring for Carcinoid Foundation, member organizations of the International Neuroendocrine Cancer Alliance (INCA), together with Novartis Pharmaceuticals Corporation, have announced US results from the first global survey of patients with neuroendocrine tumors (NETs). According to the survey, the vast majority (74%) of patients in the United States with NETs reported their quality of life was negatively affected by their disease. These quality-of-life findings are the first in a series of results from the survey being released in conjunction with Worldwide NET Cancer Awareness Day, November 10. Click here to read more.

NET Cancer Day Selfies Awareness Campaign

October 10, 2014

Worldwide NET Cancer Awareness Day, November 10, 2014, is less than a month away! The theme for this year’s awareness campaign is “Time to Diagnosis,” focusing on one of the most common issues with carcinoid and other types of neuroendocrine cancers. Video selfies (deadline November 3) and photo selfies (no deadline) will tell the story!  Read more about how you can participate.

Utah Golf Tournament to Benefit CCF

August 25, 2014

The 1st Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held at Schneiter's Riverside Golf Course in Riverdale, Utah on Sunday, September 14th. The tournament is being held in memory of Thomas Craig Patterson who passed away after a long and courageous battle with carcinoid cancer. Read more