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Songs for Life -- Please Vote for Giovanna Imbesi's "Hush"

November 21, 2014

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.    Giovanna has donated “Hush” to Songs for Life to help raise awareness of carcinoid and neuroendocrine tumor (NET) cancers. Songs for Life is a new contest to support cancer research. Voting is taking place on Facebook through November 30, 2014.  Read more

Luncheon with Carcinoid and Neuroendocrine Tumor Experts

November 13, 2014

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Lunch with the Experts on Sunday, December 14, 2014 in New York City. This is a unique opportunity to share experiences with others who have similar concerns and to hear from expert physicians in an informal setting on issues ranging from NET cancer treatments and surgery to follow-up testing and new developments. Read more

NET Cancer Day Selfies Awareness Campaign

October 10, 2014

Worldwide NET Cancer Awareness Day, November 10, 2014, is less than a month away! The theme for this year’s awareness campaign is “Time to Diagnosis,” focusing on one of the most common issues with carcinoid and other types of neuroendocrine cancers. Video selfies (deadline November 3) and photo selfies (no deadline) will tell the story!  Read more about how you can participate.

Utah Golf Tournament to Benefit CCF

August 25, 2014

The 1st Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held at Schneiter's Riverside Golf Course in Riverdale, Utah on Sunday, September 14th. The tournament is being held in memory of Thomas Craig Patterson who passed away after a long and courageous battle with carcinoid cancer. Read more

Clinical Trial for GI Carcinoid Patients Recruiting through September

July 23, 2014

Gastrointestinal carcinoid patients who have tumors that either are not suitable for standard treatment or are not responding to standard treatment have the opportunity to enroll in a Phase I/II clinical trial conducted by Tekmira Pharmaceuticals. Enrollment is expected to complete by September 30. Centers in Arizona, Florida, Iowa, Massachusetts, Michigan, Minnesota, and Texas are participating in the study. Read more

Zebra Talk Handbook

June 16, 2014

Zebra Talk is a terrific new resource for carcinoid and neuroendocrine tumor patients and their primary care physicians. According to Suzi Garber of Bucks County, Pennsylvania, editor, the handbook “is intended as a reference for those newly diagnosed with NETs (neuroendocrine tumors), in the process, or hoping to explore this bewildering world. It is also a guide to resources that can empower patients through knowledge and the mentorship of others to make informed decisions for medical care.” Read more

NET Alliance Issues New E-Book on Neuroendocrine Cancer

May 12, 2014

NETrospectives, a new e-book produced by The NET Alliance, is "a journey through the past and a vision for the future of neuroendocrine cancer." The e-book presents patients, patient advocates, and physicians talking about the diagnoses of these rare diseases, imaging techniques and treatment options, raising the standard of care, and connecting with others in the carcinoid/neuroendocrine tumor (NET) community. Read more

Luncheon with the Experts in New York City

April 13, 2014

Join carcinoid and neuroendocrine tumor patients on Sunday, May 4, 2014 for a unique opportunity to have lunch with three medical experts.  Share your experiences with others who have similar concerns and hear from the physicians on issues ranging from NET cancer treatments and surgery to carcinoid heart disease to follow-up testing and new developments.  Read more

AJCC Names Chair of Neuroendocrine Tumors Expert Panel

April 7, 2014

Eugene A. Woltering, MD, The James D. Rives Professor of Surgery and Neuroscience and Director of Surgical Research at LSU Health Sciences Center in Kenner, Louisiana, has been selected to serve as Chair of the Neuroendocrine Tumors Expert Panel for the American Joint Committee on Cancer’s (AJCC) Cancer Staging System, 8th Edition. Read more

New OncLive TV Series Focuses on Pancreatic Neuroendocrine Tumors

March 31, 2014

In this new OncLive TV series, moderator Matthew Kulke, MD, leads a panel discussion on the treatment of pancreatic neuroendocrine tumors, with a focus on the effective sequencing of treatment options.  The panel of experts consists of: Rodney F. Pommier, MD, Oregon Health and Science University; Jonathan R. Strosberg, MD, Moffitt Cancer Center; and Diane Reidy Lagunes, MD, Memorial Sloan-Kettering Cancer Center.  Read more and watch the videos.