Recent News on Carcinoid.org

Utah Golf Tournament to Benefit CCF

August 25, 2014

The 1st Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held at Schneiter's Riverside Golf Course in Riverdale, Utah on Sunday, September 14th. The tournament is being held in memory of Thomas Craig Patterson who passed away after a long and courageous battle with carcinoid cancer. Read more

Clinical Trial for GI Carcinoid Patients Recruiting through September

July 23, 2014

Gastrointestinal carcinoid patients who have tumors that either are not suitable for standard treatment or are not responding to standard treatment have the opportunity to enroll in a Phase I/II clinical trial conducted by Tekmira Pharmaceuticals. Enrollment is expected to complete by September 30. Centers in Arizona, Florida, Iowa, Massachusetts, Michigan, Minnesota, and Texas are participating in the study. Read more

NET Alliance Issues New E-Book on Neuroendocrine Cancer

May 12, 2014

NETrospectives, a new e-book produced by The NET Alliance, is "a journey through the past and a vision for the future of neuroendocrine cancer." The e-book presents patients, patient advocates, and physicians talking about the diagnoses of these rare diseases, imaging techniques and treatment options, raising the standard of care, and connecting with others in the carcinoid/neuroendocrine tumor (NET) community. Read more

Luncheon with the Experts in New York City

April 13, 2014

Join carcinoid and neuroendocrine tumor patients on Sunday, May 4, 2014 for a unique opportunity to have lunch with three medical experts.  Share your experiences with others who have similar concerns and hear from the physicians on issues ranging from NET cancer treatments and surgery to carcinoid heart disease to follow-up testing and new developments.  Read more

AJCC Names Chair of Neuroendocrine Tumors Expert Panel

April 7, 2014

Eugene A. Woltering, MD, The James D. Rives Professor of Surgery and Neuroscience and Director of Surgical Research at LSU Health Sciences Center in Kenner, Louisiana, has been selected to serve as Chair of the Neuroendocrine Tumors Expert Panel for the American Joint Committee on Cancer’s (AJCC) Cancer Staging System, 8th Edition. Read more

New OncLive TV Series Focuses on Pancreatic Neuroendocrine Tumors

March 31, 2014

In this new OncLive TV series, moderator Matthew Kulke, MD, leads a panel discussion on the treatment of pancreatic neuroendocrine tumors, with a focus on the effective sequencing of treatment options.  The panel of experts consists of: Rodney F. Pommier, MD, Oregon Health and Science University; Jonathan R. Strosberg, MD, Moffitt Cancer Center; and Diane Reidy Lagunes, MD, Memorial Sloan-Kettering Cancer Center.  Read more and watch the videos.

BerriHealth Supports NET Cancer Research

March 25, 2014

BerriHealth, a leader in providing high-quality black raspberry powder for clinical trials and directly to consumers online, has donated a portion of their 2013 sales to New Orleans Louisiana Neuroendocrine Tumor Specialists (NOLANETS), led by Dr. Eugene Woltering. In 2014, BerriHealth is working to expand their support for cancer research. Read more

NIH Clinical Trial

March 7, 2014

Learn more about a unique opportunity for carcinoid and NET cancer patients to have a state-of-the-art scan: the Gallium-68 (GA-68) DOTATATE PET/CT scan. Click Here

First Global NET Cancer Patient Survey

March 3, 2014

Please help the Carcinoid Cancer Foundation in collaboration with the Caring for Carcinoid Foundation – both members of the International Neuroendocrine Cancer Alliance (INCA) -- increase awareness and education about NET worldwide by completing the first ever global survey of carcinoid and neuroendocrine tumor (NET) cancer patients! Read more

The online survey closed on May 31, 2014.  Thank you to the nearly 2,000 NET patients around the world who completed the survey!!!

2014 National NET Cancer Patient Conference, Registration Open

January 28, 2014

Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers and family members, as well as physicians and other health professionals, have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis and treatments, and to network with hundreds of others who share similar concerns and experiences when the 2014 National NET Patient Conference is held in Charlotte, North Carolina from Thursday, September 18 to Saturday, September 20, 2014.  There will also be a special conference on lung carcinoid and DIPNECH on Sunday morning, September 21.  Whether newly diagnosed or living with a NET for many years, this conference will feature up-to-the-minute information as well advice from specialists on the leading issues faced by NET patients. Read more