A Roller Coaster Ride: Chris Lindsey's Carcinoid Journey

Chris Lindsey's Carcinoid Journey


We were on summer vacation on the shores of Lake Michigan in the summer of ’98. One night I started having incredible pain in my gut. I was literally writhing on the floor in pain. My wife went to the store and brought back all the stomach relief medicine she could find. It didn’t help. Gradually the pain subsided. What we didn’t know at the time was that I had a Carcinoid tumor in my intestine.

Taking Back My Life: Carolyn Francis' Story

(Pictured are Carolyn Francis; her husband Sandy; and children Alex and Elizabeth)

I was diagnosed with bronchial carcinoids when I was 29 years old. I was newly married and on a business trip in Europe when I got pneumonia. Six months later, I was finally diagnosed with carcinoid. I had the lower two lobes of my right lung removed and began the long, uncomfortable road to recovery.

Resources for Carcinoid and NET Cancer Insurance Appeals

The Carcinoid Cancer Foundation is pleased to introduce this new section on our website to assist the carcinoid/NET community when appealing denied insurance claims.  This section will serve as a repository for articles and other materials that have been used in appeals. We will build this resource list over time and invite you to submit articles through the Contact Us form on our site.  We welcome your suggestions on how to make this section of the greatest value to the carcinoid/NET community.


Neuroendocrine Carcinoid Cancer Education Association Sponsors Mid-Winter Conference

The Neuroendocrine Carcinoid Cancer Education Association (NCCEA), in conjunction with the Colorado Carcinoid Support Group, is presenting a mid-winter conference on Saturday, January 26, 2013 at the University of Colorado Anschutz Medical Campus in Denver. The guest presenters will be:

  • Thomas O'Dorisio, MD, University of Iowa

"Neuroendocrine Tumors:  Current & Future Management at the University of Iowa" 

Carcinoid Cancer Foundation Video: Surgery and Treatment Options

What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients?  For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life?  How do patients benefit from clinical trials?  There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers.

Carcinoid Cancer Foundation Video: Faces of Hope

Meet NET cancer survivors Claire, Josh, Judy, Kathy, Kenneth, and "Sunny" Susan as they share their journeys about being diagnosed and living with rare neuroendocrine tumors, including lung carcinoid, carcinoid of the ileum, and pancreatic neuroendocrine tumors.  This is the 2nd video in the Carcinoid Cancer Foundation's 2012-2013 series.  Future videos will focus on treatment options, lung carcinoid, and nutrition.

Vote for a Cause, The Lois Merrill Foundation

Vote for a Cause!  Here’s a chance to help a terrific organization in the carcinoid/NET community, The Lois Merrill Foundation (LMF), win a $500 donation and a 2 week feature on, with the opportunity to receive up to 20% of great daily deals for restaurants, spans, fun activities and mo

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