Group: Familial Carcinoid/ MEN1

Could two first cousins suffer from the same form of cancer and, if so, does that indicate that it is hereditary?

October 17, 2015

There are several types of carcinoid and related neuroendocrine tumors which are genetically determined and are inherited conditions.  They are quite rare, as a group comprising only 4% of all carcinoids. One type in particular, known as familial carcinoid,…

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How many cases of adenocarcinoid have you treated and what is the longest survival rate?

October 17, 2015

Over 50 cases treated, over 10 years longest survival rate. For more information about adenocarcinoma we suggest that you visit the Pancreatic Cancer Action Network website. The familial occurrence of carcinoid is a recognized but exceedingly rare…

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If more than one person in my family has carcinoid, what are the chances that my children will have carcinoid?

October 17, 2015

4% of carcinoids are hereditary.  The best known of the 2 varieties of inherited carcinoids is associated with the MEN-1 syndrome in which 50% of the family develop the condition which is almost always associated with the presence of other endocrine tumors. …

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If my mother has carcinoid and I have symptoms similar to those of carcinoid, what tests should I have?

October 17, 2015

Only 1-2% of carcinoids are familial. If you have symptoms suggestive of carcinoid syndrome, the tests to do are urine 5-HIAA, blood serotonin, tryptophan and chromogranin A. All large commercial laboratories can do these tests and your family doctor…

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