Tag: rare disease
Understanding Patient Preferences in Neuroendocrine Tumor Treatments
When you meet with your healthcare team do you discuss what is important to you as you consider neuroendocrine tumor treatment options? You can help physicians better understand patient-centered treatment decision making by participating in this…
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Intelligent Patients — Just What the Doctor Didn’t Order by Ronny Allan
The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan (pictured), a carcinoid cancer patient from the UK,…
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More Things Zebra for the Carcinoid and Neuroendocrine Tumor (NET) Community: From the Everyday to the Extraordinary
Why the zebra for carcinoid and neuroendocrine cancer awareness? In medical school, students are told, “When you hear hoof beats, think horses, not zebras.” Physicians are taught to focus on the most likely possibilities when making a diagnosis,…
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Social Media Connects Carcinoid and Neuroendocrine Cancer Survivors
Denise Passehl, a carcinoid cancer survivor, will share her experience with social media when she participates in the 140 Characters Conference on April 23 in Des Moines, Iowa. The focus of the conference, designed by Jeff Pulver, is how “real time technology…
READ MOREAdvocacy Session New on Carcinoid Cancer & Neuroendocrine Tumor Conference Program in Canada
Carcinoid cancer and neuroendocrine tumor patients — learn more about being your own advocate during a special session to be held on Thursday, May 13th from 3 to 5 pm at the The Carcinoid NeuroEndocrine International Conference and Symposium for…
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