Category: carcinoid testing
1st World Congress on Gallium-68 and Peptide Receptor Radionuclide Therapy (PRRNT)
Since 1997, when he first used the radiolabeled peptide Y-90 DOTATOC (a somatostatin analogue) to treat a 15-year-old boy with a rare neuroendocrine tumor, called paraganglioma, and saw the boy go from being wheelchair-bound and in terrible pain to …
READ MORE13th Anniversary of First Carcinoid Patient Website: Kudos to Susan Anderson
When she was finally diagnosed with carcinoid cancer in 1995, Susan Anderson had already spent 8 years trying to find out what was the cause of her “anemia,” pain, and losing 62 pounds in 6 months. Little did she realize that diagnosis would also result …
READ MOREOctreoscan Test for Carcinoid & NET Patients Currently on Hold in U.S. and Canada
Due to a voluntary recall by the drug company Covidien, the Octreoscan Kit using Indium In-111 pentetreotide is not available at the present time in the United States or Canada. This means that carcinoid and neuroendocrine tumor patients cannot have…
READ MOREHow Do I Find a Carcinoid/NET Doctor?
“How can I find a doctor who knows how to diagnose or treat carcinoid?” is one of the most frequent questions we hear from callers to our information/support line. And we can help you. There are carcinoid/neuroendocrine tumor (NET) specialists…
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