Tag: National Organization for Rare Disorders

Rare Disease Day Partner

Carcinoid Cancer Foundation Asks You to Help Support Rare Disease Day: Write Your Reps Campaign

January 19, 2011

Carcinoid patients, physicians, family, friends and colleagues can help support Rare Disease Day 2011 by participating in NORD’s Write Your Reps CampaignNORD (National Organization for Rare Diseases) and its advocacy partners have worked with…

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Carcinoid & Neuroendocrine Tumor Patients Invited to FDA Public Hearing

May 16, 2010

For carcinoid and neuroendocrine tumor patients who would like their voices to be heard regarding the Food and Drug Administration’s (FDA) regulation of drugs, biologics, and devices for the diagnosis and treatment of rare diseases, you are invited…

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