Tag: National Organization for Rare Disorders
Carcinoid Cancer Foundation Asks You to Help Support Rare Disease Day: Write Your Reps Campaign
January 19, 2011
Carcinoid patients, physicians, family, friends and colleagues can help support Rare Disease Day 2011 by participating in NORD’s Write Your Reps Campaign. NORD (National Organization for Rare Diseases) and its advocacy partners have worked with…
READ MORECarcinoid & Neuroendocrine Tumor Patients Invited to FDA Public Hearing
May 16, 2010
For carcinoid and neuroendocrine tumor patients who would like their voices to be heard regarding the Food and Drug Administration’s (FDA) regulation of drugs, biologics, and devices for the diagnosis and treatment of rare diseases, you are invited…
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