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Capitol Area Carcinoid/Neuroendocrine Tumor Survivors (CACNETS, formerly CACS)

Welcome to the Capitol Area Carcinoid/Neuroendocrine Tumor Survivors group, CACNETS, founded in September 2001 for neuroendocrine tumor (NET) patients and caregivers in the Washington, DC; Virginia and Maryland region.

Our mission is to provide vital and trusted information and guidance to NET patients from the patient perspective as well as encouragement, hope, emotional and social support to our members, their caregivers and supporters.  We increase awareness of our disease among medical professionals and the general public.


Given COVID-19 concerns, meetings are temporarily being held using Zoom’s secure video and phone platform.  Check our website for specific details for each month’s meeting.  To request Zoom log-in information, send an email to our gmail address (below) noting “Please send link for the next Zoom meeting” in the subject line.  Also, please let us know if you will be participating from outside of our normal physical support group area!

Meetings: Typical monthly meetings include patients sharing their NETs journeys and questions, with other members providing insights and information from their experiences.  Guest speakers (NETs Specialists and other clinical professionals) present at several regular meetings during the year as well as during our major biennial Bea Lehming Lecture Series.

Schedule:  2nd Saturday of every month from 10 am to noon

Location: Life with Cancer Family Center, 8411 Pennell Street, Fairfax, VA  22031

Attendees:  Patients (with or without a caregiver, family member or friend) and caregivers (with or without their patients) are welcome.

Coffee and morning refreshments are served (potluck refreshments although post-pandemic it might be wiser to bring your own . . . TBD).

Contact: or call 301-909-8108.  Please leave a message! Someone from the CACNETS Leadership Team (Sheri, Nan or Sally) will return your call as soon as possible.

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Life with Cancer Family Center
8411 Pennell Street
Fairfax, VA 22031