The Carcinoid Cancer Foundation is pleased to share the newly published NCCN (National Comprehensive Cancer Network) Guidelines for Patients® Neuroendocrine Tumors and to have endorsed these guidelines, which focus on tests and treatment options recommended by experts in cancer.  The 100-page publication is accessible in several ways.

NCCN Neuroendocrine Tumor Guidelines for Patients 2018

The NCCN Quick Guide to Neuroendocrine Tumors, a two-page document available here, summarizes the key points in the full guidelines:

  • What are the endocrine and neuroendocrine systems?
  • What should you know about neuroendocrine tumors?
  • How do you and your doctor decide upon a treatment plan?
  • What are possible treatment options for neuroendocrine tumors?
  • What are some of the first treatment options for the following neuroendocrine tumors? (this section is broken down by different sites for neuroendocrine tumors as well unknown primaries and poorly differentiated neuroendocrine carcinoma)
  • How do I decide between options?

NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.

The NCCN Patient Guideline “Library” consists of 39 Guidelines and additional Quick Guides—one to two page summaries of the full guideline—that individuals can view, download, and print free of charge on

Professionally bound copies can also be ordered at The current Amazon price is $14.99. ORDER ON AMAZON HERE.  If you order the guidelines on AmazonSmile, you can also support the Carcinoid Cancer Foundation.  When you do your shopping at AmazonSmile, Amazon donates 0.5% of the purchase price to the Carcinoid Cancer Foundation. Bookmark the link and support CCF every time you shop.

The NCCN Foundation has also launched a FREE mobile app where guidelines can be viewed and downloaded (including for offline use) onto smartphones and tablets. The app, NCCN Patient Guides for Cancer, is available free of charge and  features the complete library of NCCN Guidelines for Patients and NCCN Quick Guide™ sheets, as well as a highlight of the app sponsors. The app is available for Android and iOS.  Guidelines are listed in alphabetical order.

The NCCN Guidelines for Patients® complement the NCCN Clinical Practice Guidelines Oncology.  The NCCN Guidelines for Neuroendocrine and Adrenal Tumors are available here, They are accessible after setting up a free account.

Both the NCCN Guidelines for Patients® Neuroendocrine Tumors and the NCCN Clinical Practice Guidelines Oncology, Neuroendocrine and Adrenal Tumors, are outstanding resources for NET patients, loved ones, and physicians.



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