Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives.

Rare Disease Day events are presented by hundreds of patient organisations all over the world who work on a local and national level to raise awareness for the rare disease community in their countries. Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage.

Read more on the Rare Disease Day US website:  https://www.rarediseaseday.org/event/united-states/2810

Read more on the Rare Disease Day European website: https://ern-euro-nmd.eu/event/rare-disease-day-2019/